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Old 10-06-2009, 08:16 AM   #18
Sandra in GA
Senior Member
 
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
Re: Side Effects of Ending Herceptin

I am almost finished with my year-long treatment of Herceptin and Tykerb. I will get my last Herceptin dose Nov. 11th and then take the Tykerb one more week and finish everything Nov. 18th. I had not thought about side effects of coming off these drugs until I read your responses to this thread. I am glad this is here. Now, I understand better what to expect. I am still excited and looking forward to having my port removed and my reconstruction completed.

My onc is checking to see if there are any more openings in the vaccine trial that is evaluating the dosage of the vaccine down here at Mayo in Jacksonville, FL. While I am disease free, I want to do everything I can to stay that way. This is one tough battle and I have met the strongest women in the world in this battle through this discusion board. Every time I read here, I am amazed at the knowledge that all of you have about this disease, the doctors, and the treatments. Thank you so much for sharing and caring.
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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