 |
|
10-08-2006, 12:25 PM
|
#21
|
|
Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
|
Oh Maryann,
I hope the very, very best for you. You are incredible in strength. My prayers are with you.
XOXO
MCS ( maria)
|
|
|
|
10-08-2006, 05:05 PM
|
#22
|
|
Senior Member
Join Date: Jan 2006
Location: Victoria, Australia
Posts: 95
|
Maryann
So great to hear from you, and I wish you all the best. I just know that you will get through this and be home for Xmas. I agree about the book. Your story is certainly enough to inspire anyone to keep going, and you have such a way with words. Keep fighting, and I will be thinking of you.
Love Lisa
|
|
|
|
|
10-08-2006, 06:44 PM
|
#23
|
|
Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
|
Maryanne,
You are incredible. Keeping you in my thoughts and prayers.
________
Ana_Sofia
Last edited by sassy; 08-22-2011 at 08:55 AM..
|
|
|
|
|
10-08-2006, 06:55 PM
|
#24
|
|
Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
|
Maryann, let me add my voice to the chorus of well wishes for a successful transplant and swift recovery. Christmas will be truly a time of joy for you and yours. I send my prayers.
<3 Lolly
|
|
|
|
|
10-08-2006, 08:01 PM
|
#25
|
|
Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
|
Maryann: You sound so brave! You are such an inspiration. Just reading your posts makes me tired with such a full plate. You have been and will continue to be in my prayers. Sending you a big hug, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
|
|
|
|
|
10-08-2006, 08:53 PM
|
#26
|
|
Senior Member
Join Date: Oct 2005
Location: Carlsbad, CA
Posts: 73
|
Wow Maryann a 10 out of 10 match...it looks as though you are in very good hands. I will continue to keep you in my prayers as you walk this walk and hope that you are home well before Xmas. All the best, tami
|
|
|
|
|
10-08-2006, 08:58 PM
|
#27
|
|
Senior Member
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
|
Maryann,
I'm in complete awe of your strength and tenacity. I always knew that women are tougher than men and you sure do prove it. Also, you sharing your journey with us can only help others so thank you; because what you share is extremely personal. Sharing has also let us see what a beautiful soul you have and that optimism........is why you will continue to be a survivor.
Thinking of you, Al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
|
|
|
|
|
10-09-2006, 04:41 AM
|
#28
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
MaryAnn
You are such an inspiration in both courage and fight...I was reading an article yesterday about a girl who had the same type of leukemia, went through the chemo, blood, more chemo, bone marrow transplant etc, and is doing fine after 20 years.....with your fight and will, you will double what shes done. What a great gift for Christmas to be done and be home and have all this behind you.
It truly will be a Blessed Christmas.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
10-09-2006, 10:07 AM
|
#29
|
|
Senior Member
Join Date: Sep 2005
Location: Maryland
Posts: 30
|
You have tremendous strength and courage. You are an inspiration to me. I am praying for you.
__________________
Margo
Diagnosed 08/2004 @ 45; Metaplastic Breast Cancer (MpBC)
Stage IV, HER2 3+, ER-/PR-, Met to Liver
08/2004 - Neo-adjuvant Taxotere/Carboplatin/Herceptin (TCH) - 4 rounds.
09/2004 - Herceptin - Weekly.
11/2004 - Liver RFA, followed w/TCH - 2 rounds.
12/2004 - Lumpectomy, axillary node dissection, followed w/TCH - 2 rounds.
05/2005 - Radiation - Breast, shoulder, neck (left side) - 35X
09/2005 - Developed severe osteoporosis - Boniva - monthly
04/2008 - Herceptin - Every 3 weeks (changed from weekly).
05/2012 - Mets: 3 new liver and 2 lymph nodes.
06/2012 - Start 16 rounds Navelbine and Herceptin weekly.
11/2012 - Liver resection, RFAs (8), lymphadenectomy (2), cholecystectomy.
12/2012 - Herceptin and Letrozole.
05/2014 - Mets: 5 aortocaval nodes & 1 mesenteric.
06/2014 - Herceptin/Perjeta/Taxotere - 6 rounds.
10/2014 - Herceptin / Perjeta - Open ended
04/2015 - Progression: Porta hepatic node, 2 aortocaval nodes.
05/2015 - Exploratory surgery treating progression, 12 nodes removed.
07/2015 - Restart Herceptin / Perjeta
01/2016 - Progression 8 nodes.
02/2016 - Starting T-DM1 (Kadcyla) - Open ended.
07/2017 - Progression.
|
|
|
|
|
10-09-2006, 10:28 AM
|
#30
|
|
Senior Member
Join Date: Sep 2005
Location: Central Valley, CA
Posts: 73
|
Thank you for sharing. You are an inspiration to us.
Best wishes,
Helen
__________________
- Diagnosed May 2005 8 months after giving birth. Stage IV due to a single liver mets.
- Carbo/Taxotere/ Herceptin combo for 6 months
- Herceptin/ Navelbine
- Recurrence on the same liver spot in 7/07
- Liver resection 9/07
- Tykerb/xeloda 10/22/07
- NED since 9/07 and continued Tykerb/xeloda
- PET/CT in May 2009 show small spot in lungs. Continued Tykerb/xeloda
- PET/CT in Aug 2009 shows progression on lung nodules (slightly bigger)
- Onc considering Taxol/avastin
|
|
|
|
|
10-09-2006, 02:40 PM
|
#31
|
|
Senior Member
Join Date: Mar 2006
Posts: 39
|
you will be in my thoughts and prayers. sincerely, susan
|
|
|
|
|
10-09-2006, 05:47 PM
|
#32
|
|
Senior Member
Join Date: Feb 2005
Location: Wisconsin
Posts: 159
|
Maryann--
I wish you all the best in this. I love reading your posts....they are informative and funny and inspiring all at the same time.... I look forward to reading more of them soon :-)
XXOO
Val
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
|
|
|
|
|
10-09-2006, 09:02 PM
|
#33
|
|
Senior Member
Join Date: Feb 2006
Posts: 43
|
I know it has been said before, but you truly are my hero. I know you don't even know me, but when I get down about my BC, my prognosis, my future, I think of you, and how you have hung in there and beaten all odds, overcome the unimaginable and maintained your determination. Your spirit shines on this board. I wish I could meet you in person. I can't imagine how hard it must be to be so far away from your family. It will all be worth it when you are with them at home for the rest of your very long life.
And Halloween is my second favorite too, so I will buy an extra decoration and hang it with my kids in your honor.
Natalie
|
|
|
|
|
10-10-2006, 05:21 AM
|
#34
|
|
Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
|
>>And Halloween is my second favorite too, so I will buy an extra decoration and hang it with my kids in your honor.<<
Natalie - Don't make me cry!!! Thank you!!
>>I was reading an article yesterday about a girl who had the same type of leukemia, went through the chemo, blood, more chemo, bone marrow transplant etc, and is doing fine after 20 years.....<<
Sheila - The challenge is on!!! Do you no where you read that article??
>>When I read your posts, I sometimes wonder how in the world you keep your momentum.<<
Tom - Like I have any other choice?? And you are one to speak...you have never given up on your mom!!!
>>A friend of mine's sister went through this quite a few years ago and is doing well.<<
Barbara - thank you! These are the stories I want to hear!!!
>>I can't believe how you make everything sound like a big adventure!<<
Chris - In a way it is. I would rather jump out of a plane (with a chute), but this is the ride I am on at the moment. The ups and downs are like a roller coaster. I pray there are no brick walls at the end of this ride. I do believe there is work for me to be doing when I achieve my "cure."
>>...since your perfect match donor is from overseas, do you think you may start speaking Hungarian or (worse yet) craving some indescribably gross culinary delicacies?<<
I already eat some pretty weird stuff, but wouldn't it be great if I could speak the language, play piano and be an amazing athlete???
>>I'm reading a great book about Quantum Healing.<<
Michele - I will look in to it. I am bringing along essential oils for aromatherapy and music for imagery and mediation. I practice Reiki and will look in to massage therapy while in the hospital (the hospital near my home offers massage).
>>I think you should read your emails and posts and think of writing a book about this whole experience.<
Sarah - The only problem with that, is that I don't WANT anyone to have to buy it!
To everyone else that has replied and to all that haven't but have kept me in their prayers - thank you!!! I do not reply to all the posts, but wish I could. You are all in MY prayers and I pray for the day that we can turn this site in to a recipe exchange or knitting circle!!!
I am off to the dermatologist for a full body check (as everyone should do) to make sure I don't have skin cancer - now wouldn't that be a kick???
..·´¨¨)) -:¦:-
¸.·´ .·´¨¨)) -:¦:-
((¸¸.·´ ¸.·´ -:¦:- -:¦:-
-:¦:- ((¸¸.Maryann -:¦:-´´
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
|
|
|
|
|
10-11-2006, 10:21 PM
|
#35
|
|
Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
|
Maryann;
I am so pleased you have found such a great match.....and what a wonderful person she is to be doing this. God bless you and help you through this next stage of your ordeal. One step at a time you are concuring this beast.
Cathy
__________________
Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
|
|
|
|
|
10-12-2006, 08:57 PM
|
#36
|
|
Senior Member
Join Date: Sep 2005
Location: Atlanta
Posts: 87
|
MaryAnn~
As one of my dearest friends said to me, "Stay Strong, and when you can't, Lean Hard!"
That is what we, and all the folks that love, respect and admire you, are here for. I hope you know that if you receive even half the love, support, prayers, guidance & comfort you have offered so many of us, what great abundance surrounds you!
Prayers, Faith & Courage,
...and HOPE~there's always HOPE...
Much Aloha & God Bless~
Jessica
|
|
|
|
|
10-18-2006, 05:53 PM
|
#37
|
|
Member
Join Date: Jul 2006
Location: San Antonio, TX/Germany
Posts: 19
|
Amazing!
Please keep up the strength, courage, and faith to go through it all. My prayers are with you and your family.
Moni
|
|
|
|
|
10-18-2006, 06:43 PM
|
#38
|
|
Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
|
Maryann, I could hardly read your post for the tears---not tears of pity , either, but of joy for knowing such a tremendous spirit! I will be off line for a few days due to our move to Utah, but I will be adding my prayers for you to all the others. I will be anxious to hear how it all went. You are truly loved and admired on this website, and I hope you will remember that all of us are thinking of you and praying for your complete recovery. Hugs, Tricia
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 07:17 AM.
|
Linear Mode
