 |
|
08-10-2009, 07:03 PM
|
#21
|
|
Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
|
Re: ~Mighy Oak Update~August 10,2009
Marie,
As always your courage brings tears to my eyes. I pray you are showered with the many blessings you deserve. Squeeze brave Ed's hand for me and know I am praying for you both.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
|
|
|
|
08-11-2009, 02:44 AM
|
#22
|
|
Senior Member
Join Date: May 2006
Posts: 157
|
Re: ~Mighy Oak Update~August 10,2009
Marie,
I was having computer problems.
I am sorry to know that Ed had to stop Ixempra, but it is good news that the tumor markers are cut in more than half. During my 9 months on Ixempra, my tumor markers barely came down. I am praying that Ixempra will cross the BBB and that you both will have good news with the MRI results when Ed will be able to do it. I wonder if his short of breath is caused by Ixempra, because I also have short of breath lately.
I think Nalvabine is a very good drug, I was on it with Herceptin for 18 months and my liver mets disappeared, and my lung mets almost disappeared as well, they could hardly see them on the CT scans. This drug was very easy on me. Usually I had very mild nausea on the first few days after treatment, and my medication was food, after I ate, the nausea was gone. I did not feel tired at all, I felt like I was not on chemo, only at the end of the 18 months is that I felt my legs very heavy, and it was hard for me to climb the stairs of my house. My hair grew back while on it. I remember having mild neuropathy at that time, but my doctor said it was from Taxotere that I had before. I pray that Nalvabine will be as easy for Ed as it was for me.
If you have any more questions, please count on me.
Sending healing prayers for Ed, and prayers for your peace as well.
God bless both of you.
Love,
KarlaV.
|
|
|
|
|
08-11-2009, 07:34 AM
|
#23
|
|
Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
|
Re: ~Mighy Oak Update~August 10,2009
Marie,
I continue to think of the two of you daily....thank you for the update. I also still hope for a blessing for the two of you.
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
|
|
|
|
|
08-11-2009, 02:47 PM
|
#24
|
|
Senior Member
Join Date: Apr 2008
Location: me & my three HANDSOME grandsons!!Jacksonville, Arkansas
Posts: 354
|
Re: ~Mighy Oak Update~August 10,2009
thinking of you...
__________________
Terri B.
46 yrs. young
Dx IDC 3/6/08
1.5 cm & .6 cm grade III, Stage IIA
es/pr- Her2+++, 9/9 richardson
Double Mast w/expanders 4-14-08
3/9 nodes positive.
additional excision rt breast 4-25-08
weekly T/H x 12 (6-2-08) Done!
FEC x4 (9-8-08) Last one 11-10-08!
Herceptin complete 8/10/09!!
33 RADS DONE 2/13/09!
rt. breast biopsy 3/20/09 .. B9!!
reconstruction complete!
DEEEEEEported on 5/19/10!!
almost 5 YEARS NED!!
|
|
|
|
|
08-11-2009, 02:53 PM
|
#25
|
|
Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
|
Re: ~Mighy Oak Update~August 10,2009
HEY BIRTHDAY Twin,
You just wrap those loving arms around Ed, put on some Frank sinatra tunes (or Dean or Sammy) and remember I love you both. I walk with Ed on that journey in so many ways and have watched my husband fall to tears in the midst of his unwavering strength. Actually, those tears are a sign of strength, great strength, the very strength you've both shown all along.
I love you,
vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
|
|
|
|
|
08-11-2009, 03:59 PM
|
#26
|
|
Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
|
Re: ~Mighy Oak Update~August 10,2009
Marie...
you and Ed are always in heart and in my prayers,
Gentle hugs to you both,
Marcia
|
|
|
|
|
08-12-2009, 05:35 AM
|
#27
|
|
Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
|
Re: ~Mighy Oak Update~August 10,2009
marie
Stay strong and tell Ed to do the same.....you are a testament to true love, we admire your strength and tenacity...many prayers going out for both of you!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
|
|
|
|
|
08-12-2009, 02:32 PM
|
#28
|
|
Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
|
Re: ~Mighy Oak Update~August 10,2009
Marie ~ reading this just brought tears to my eyes. You are such an amazing lady and I know Ed couldn't be in better loving arms. You two are so special and much loved.
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 12:05 PM.
|
Linear Mode
