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08-13-2010, 01:57 PM
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#1
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Senior Member
Join Date: Aug 2009
Location: Moultrie, GA
Posts: 431
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Re: Joe passed on this evening
Joe truly left a legacy that his family can forever be proud of. He and Christine have touched so many lives and brought hope to so many. I hope this gives you some comfort in you time of loss. My prayers are with you.
Sandra
__________________
Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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08-13-2010, 02:23 PM
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#2
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: Joe passed on this evening
I am shocked, stunned and saddened by this horrible news of dear Joe's passing.
I, along with most everyone else on this board, it seems, had no idea that Joe was ill. How brave of him to keep it to himself...
My prayers go out to Christine and the entire family.
(:
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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08-13-2010, 03:31 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: Joe passed on this evening
Oh no, I am shocked and very sad to read this news. I am sorry that this horrible disease took your dad from your family.
Please know that your precious mom and you and your sister are in my prayers. What a blessing he was for the time he was here to so many. He will be missed.
Hugs and Prayers,
Lexi
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08-13-2010, 05:00 PM
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#4
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Re: Joe passed on this evening
I was truly hoping that I had somehow read this wrong. I haven't checked in to our site for a while and this is my first day back. I just can't believe it. I am so sorry for your family, your dad was one in a million. He will be sorely missed. Hugs to you and your family.
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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08-13-2010, 10:53 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: Joe passed on this evening
This is such heart wrenching news. I had no idea Joe was ill, but am not surprised that he wished to spare others any concern.
I never had a chance to meet Joe in person, but worked with him over the last year developing the new website. I know he was very proud to go live with the site in January. It is his legacy.
The work that Joe and Christine have poured into this site has grown into a source of knowledge, support, friendship, love and sometimes refuge for so many of us.
My thoughts and prayers are with Christine and the girls and all who were enriched by Joe's outreach.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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08-14-2010, 07:20 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Joe passed on this evening
Dear Christine, Dannielle and Debra,
Such sad news. You already know how much Joe meant to so many. How proud you can be of him, a man who gave his entire heart and soul to many.
Truly an angel to all of us.
So like him to keep his own illness quiet so as not to upset others. We do not get to meet many amazing
people, I am honored to have met him.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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08-13-2010, 03:48 PM
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#7
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Senior Member
Join Date: Oct 2005
Posts: 476
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Re: Joe passed on this evening
Dear Danielle,
My sincere condolence. Your father is a perfect gentleman and has devoted his energy in helping so many people here. He is for sure an angel who will continue to help many of us who need his direction.
Ann
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08-13-2010, 03:49 PM
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#8
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: Joe passed on this evening
Danielle, Christine & family,
I am so very sorry to read about the passing on of Joe. He gave so much to so many. This site means so much to me and I just felt that Joe was looking over all of the members on this site. My thoughts and prayers are with you all.
Kris.....
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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08-13-2010, 04:02 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: Joe passed on this evening
Christine, Danielle, Deborah
And all of my Her2 sisters
I have no words, only tears. But also smiles - I can so envision Joe sticking out his tongue and mooning you!
Joe was so relentless in his advocacy - he was like a tsunami that nothing and nobody could stand against.
And always, always....so alive!!!
I feel like I know you, Danielle and Deborah having heard all his tales at San Antonio. And I'm smiling still at his stories of how he wooed Christine!
Wishing all of us, but especially you, love and comfort.
Joe is I'm sure taking up the cause with a higher power now.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-13-2010, 04:13 PM
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#10
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: Joe passed on this evening
I was so shocked and sorry to read this news. Please know that you and your family are in my heart. And as many have said, tears are being shed.
What a legacy your Dad has left. I've only been on the board for a year and I remember him personally responding to one of my questions.
Rest in peace, Joe. I know you will continue to watch out for us.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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08-13-2010, 04:17 PM
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#11
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Re: Joe passed on this evening
Danielle,
I am so sorry to hear about your father. As you know, he has touched countless lives on this website. His work will always be valued and deeply appreciated.
Asking God to wrap your family is peace and comfort at this time.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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08-13-2010, 05:26 PM
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#12
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Joe passed on this evening
Like most of you, I'm stunned. And crying. Joe was The Man. My thoughts and prayers go out to the family. I haven't been able to visit the site as much as I'd like to, due to computer problems, and just yesterday I was thinking about a PM Joe sent to me awhile back about my avatar pic. He liked it and it reminded him of a pond in Jersey that he used to go to. From time to time I would make little joke postings on the site about Joe and I getting together for a few beers and a couple ribeyes off the grill, and I always hoped that one day we would. Even though most of us never met him, you could just feel that heart of gold shining through in every post he made. He was truly an amazing man and will be missed.
__________________
For Nicola
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08-13-2010, 05:51 PM
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#13
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: Joe passed on this evening
Danielle,
I'm sorry to hear this news. Your dad sounded very upbeat when I spoke with him in June even though he wasn't well.
Please tell your mom that my thoughts are with her and your family. I'm glad I stayed with you and her in Chicago, but was disappointed that your dad was not well enough to attend ASCO. I enjoyed meeting your parents for lunch a few years ago in New Jersey.
Your father did a tremendous amount of work for our cause. He will be missed. Besides Dr. Slamon, he's the other HER2 guy.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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08-13-2010, 05:56 PM
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#14
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Senior Member
Join Date: Aug 2008
Location: Virginia Beach, Virginia
Posts: 145
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Re: Joe passed on this evening
Another crack in my heavy heart in hearing this news. Joe was a giant among men and Christine a saint for sharing him with all of us. He and his meaningful work will be sorely missed.
Sending my love and prayers to Christine and all of the family.
Darlene
__________________
12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY
01/14/08 2 AC TREATMENTS-NOT WORKING
02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS!
05/12/08 HERCEPTIN EVERY 3 WKS
08/22/08 BRAIN METS! 8 <5MM
09/17/08 CYBERKNIFED BRAIN METS
10/20/08 BRAIN METS SHRINKING
12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT
01/16/09 LIVER REOCUR-XELODA/HERCEPTIN
03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ?
3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN
06/08/09 STUPID BRAIN HAS 3 LESIONS
06/29/09 CYBERKNIFE
07/01/09 LIVER REGRESSION NO NEW METS
07/07/09 TYKERB XELODA HERCEPTIN
11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!!
03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE
05/21/10 NAVELBINE/HERCEPTIN WORKING!
07/19/10 GOOD BRAIN MRI
08/20/10 LIVER PROGRESSION
09/08/10 TDM1 - NASHVILLE TN
01/10/11 LIVER RESPONDING TO TDM1
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08-13-2010, 06:27 PM
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#15
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: Joe passed on this evening
Standing with my her2 sisters and brothers, I, too, say THANK YOU to Joe and you his family for sharing yourselves the way you have. Joe and Christine gave of themselves so unselfishly and always with graciousness and love for others. God speaks of "not letting your left hand know what you are doing" (Matthew 6:3) reminding us that doing good deeds does not have to be announced....your Father in Heaven knows what you are doing. That was their style........it doesn't surprise me at all that Joe wouldn't want to "burden" (he would see it as a burden) others with His illness.....his way is to do for others and not want attention drawn to himself. That always came through loud and clear when reading his posts.
God's Peace and comfort to you Danielle and your precious family! May memories of the good man your father was be what brings you smiles.
Love and blessings,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-13-2010, 06:18 PM
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#16
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: Joe passed on this evening
I'm so shocked and sad to hear this news. My memory of Joe is how very proud of his "girls" he was. Such love and pride of his 3 special ones. He has given so much and accomplished so much for each of us through his hard work and committment. It does seem so very unfair for this disease to take him. Love and prayers to you Christine and to the girls. Joe will be so very missed. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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08-13-2010, 06:32 PM
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#17
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Re: Joe passed on this evening
My heart goes out to Joe's family.
I have been blessed by Joe's life, as he and Christine provided a family here on Her2 support.
The quality of life is always talked about for cancer patients and I just want to say Joe has given me something no chemo could give me.
My life is better and will always be better, because of Joe.
I will fight on.
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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08-13-2010, 06:29 PM
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#18
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Senior Member
Join Date: Apr 2008
Location: NY
Posts: 240
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Re: Joe passed on this evening
Dear Danielle, Christine & family (that includes our Her2 family) - I'm shocked and saddened at this news - like so many others, I had no idea Joe was battling his own beast - he was an amazing person - he touched so many lives and will be truly missed, may he rest in peace. :-(
__________________
xxoo
Kathy
2/5/08 - dx age 53, post-menopausal;
IDC Stage 1, Grade 1
ER+ 90% /PR+ 90% /Her2++++, BRAC1 & 2 neg
3/5/08 - mast with muscle-sparing free tram;
0/7 nodes clear; Stage 1 lymphedema in right arm
3/11/08 - MRSA infection in abdomen causes large hernia
4/11/08 - Oncotype DX score 22 (intermediate)
4/12/08 - Muga score 67%
4/23/08 - Chemo, Navelbine and Herceptin every 2 weeks
8/20/08 - Last Navelbine infusion! Yay!
1/22/09 - First mammo since dx - unaffected breast CLEAR!
1/30/09 - Second Muga score 63%
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08-13-2010, 06:41 PM
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#19
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: Joe passed on this evening
Wow.........reminds me of Sheila's profile signature line. You never know one's battles. Huge condolences to everyone who knew him well and loved him dearly. I suspect that's a large number.
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08-13-2010, 07:52 PM
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#20
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Guest
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Re: Joe passed on this evening
Danielle,
Mom called me this morning. I'm heartsick for the four of you. I wish I could be there to help.
Your Dad was so proud of your patience and love in caring for him. My love and prayers to you. I'll call on Saturday.
Frank Flanagan
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