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07-21-2007, 07:06 PM
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#1
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Member
Join Date: Feb 2007
Posts: 23
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How to prescribe over state lines?
Hello all: I have a problem I hope someone can help with. I cannot get my general oncologist (the only doc available to me where I am) to prescribe xeloda/tykerb for me because it ceased to work on me before.
However, a stage IV breast cancer specialist/researcher in another state whom I respect much more and whose advice I have been following, thinks xeloda/tykerb are worth another look for me especially because I'm so near death (I am nearly maxed out on the amount of oxygen I'm taking in, will suffocate soon). These two drugs are the only two that ever produced a response in my cancer and xeloda is known to be helpful for lungs especially.
Problem is, my expert onc is not licensed to prescribe in my state. Is there any way to get around this in a legal way? Could she prescribe it to me in her state, as her patient, and then order it through a pharmacy network like procare pharmacies that could ship it to me in my state? Would that solve the licensing problem?
Thanks for any and all advice,
Theresa
PS I actually had a lot of xeloda/tykerb left over when I stopped using it before, and I gave it all away for free to other needy patients! Who would have thought I'd need it again for myself? : )
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07-21-2007, 07:50 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Mail order could work. What would work better is having your onc in Oregon call the Hawaiian onc and confer with him. That doctor might be able to convince the Hawaiian onc to prescibe asap there. It is the quickest way considering I am not even sure the mail order route would work.
Just a thought - if you can get the drugs, you might feel good enough to change treatment to Abraxane (which the Hawaiian doc wants) and it might do the trick.
I hope this helps. I am thinking about you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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07-22-2007, 12:43 AM
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#3
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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I think Becky is right. Get the two docs talking to each other and have the closest one prescribe it. It is mail ordered anyway no matter who precribes it, it has to be sent from a mail order pharmacy. (well, the Tykerb does, not necessarily the Xeloda)
I am thinking of you and praying for you.
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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07-22-2007, 12:44 PM
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#4
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Member
Join Date: Feb 2007
Posts: 23
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thanks, think it will work out
Thanks all for your suggestions. I know my onc here is unlikely to take call from the out of state doc. He does't return calls, even my urgent ones to get a CT read, for example. I know my out of state doc's assistant already tried by email but no response.
My out of state doc has asked me for the pharm. tel nr. she will have her office register me tomorrow officially as her patient (she's been consulting me by phone for free) then prescribe the drugs thru the local mailorder phar. who will mail to me. keep ur fingers crossed it all works out and most importantly, the drugs help at least for a while cuz Ican hardly breathe today.
T
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07-22-2007, 01:44 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Hang on and try to imagine the cancer making room for air NOW until those drugs come in the mail. I am routing and cheering for you.
We will all pray for you and that time is on your side on this one.
Love and hugs
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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07-22-2007, 02:03 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Stay strong as it won't be long before you have the drugs. I'm praying that the combo will again help you.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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07-22-2007, 07:45 PM
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#7
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Senior Member
Join Date: Jan 2007
Posts: 138
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I am keeping my fingers crossed and praying for you.
Karen
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07-23-2007, 01:15 PM
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#8
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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You are in my thoughts and prayers, also.
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07-23-2007, 07:35 PM
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#9
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Me too..praying for you,Theresa..
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07-23-2007, 07:43 PM
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#10
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Been thinking about often today, Theresa, and hope things are working out for you.
God Bless,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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