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Question on internal mammary nodal chain- minus A scan result
So I got my scan result today which I scored A-. Thankfully the cancer is still confined regionally and no brain involvement!! The less positive news is that now it's also in the non cancerous breast! A BIG surprise!!!
The mystery is that i had a prophylactic (thank u google spelling check ) mastectomy on the left breast 2.5 yrs ago. How in the world did cancer spread to my axillary and mammary nodes on the non cancer side that had no cancer? Is it even possible? The whole purpose of a prophylactic mastectomy is to reduce breast cancer to a single digit? I seem to be the ones in the low percentage that had a local recurrence after mastectomy and now mets to other side. Or could it be a misreading?
The findings read: new focus of increased metabolic activity SUV 2.5 is visualized in the left axilla which corresponds to a 1.0 cm in maximal ap dimension left axillary lymph node on the ct scan ( previously measured 8.0 mm and did not show increased metabolic activity). Findings worrisome of neoplastic involvement.
New small focus of increased metabolic activity SUV of 1.9 is visualized in the left internal mammary nodal chain. There is a possible tiny lymph node noted on the corresponding ct images....worrisome of blah.....blah....
The 3rd new finding is no surprise as I know about my progression in the cancerous breast. Only there is now identified sub pectoral nodal station that correlates with a new lymph node involvement.
My conclusion is more progression in lymph nodes but I am not sure about the left side. Has anyone had anything similar happened before? My treatment plan I am sure will still by kadcyla. We will finish the 3 cycles and this time it will be for sure reirradition .
My skin mets seem to be regressing now I am on day 6 round 1. The redness is still there for sure but swelling seem to have gone down. I am hoping to see more improvements. Palates must be very low now as a little bit external force can give me red spots.
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1/11 age 36 DX
ER/PR-, Her2 +
TCH*6, Herceptin
BMX with immediate recontruction 5/2011 Lattismus Flap- Dx stage 3c 10/23 nodes
9/11 Radiation
3/12 Local recurrence to skin stage IV
Whole body scan CLEAR
4/12 Tykerb & Xeolda Skin mets slowly regressing
8/12 PET & Brain CT Clear
5/13 Skin mets progressing
6/13 PET scan chestwall recurrence in contralateral anxillary,internal mammary and ipsilateral subpectoral nodes
6/13 kadcyla
10/13 whole body scan -clear NED. previously resolved skin rash gone but 3 new lesions. Biopsy confirmed for skin recurrence
11/13 to 02/14 tykerb & herceptin
02/14 add abraxane/gemzar, 2 weeks on 1 week off at reduced dose
05/14 whole body PET clear/ brain CT clear but skin mets are getting worse, ready for new chemo
05/14 navelbine perjeta herceptin
07/14 skin mets progressing red rash worse
08/14 wide local excision with diep flap to close wound. Final path shows 2 positive margins showing inflammatory carcinoma Going back to surgery in 2 weeks
09/01/14 resection- clear margins
3 weeks after 2nd surgery, a new nodular rash found near drain incision with 2 small red spots behind the chest wall biopsy on 10/1. Positive for breast cancer
Radiation 11/2014 with xeloda then weekly cisplatin
11/14 brain MRI clean
12/14 finished 33 radiations burnt and very painful. Bedridden for 1 week
12/14 t current Herceptin and perjeta only
02/15 rash on upper back right side skin mets radiation planned
02/15 staring electron radiation *35
Stopped at 30 due to severe skin burn, resumed 10 days later
05/15 red patches appeared in between previously radiated area, skin mets. Ct and brain Mri clear. Simulation planned, radiation to start after trip to Alaska.
05/24 new spot identified in scar line on previously radiated reconstructed breast- electron on both side chest wall area and scar line
07/15 multiple skin and lung recurrence begin halaven
11/15 cough much better but very tired on halaven and starting to see some new red skin blotches-suspicious
11/15 heading to China for immune therapy
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