| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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03-21-2009, 09:01 AM
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#1
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Just wanted to let you all know the kids have arrived safely. They are just in time to go with us to the Big Brother, Big Sister charity bowling event today that Jen's bank is sponsoring. I'm sure they'll have fun!
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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03-27-2009, 08:29 PM
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#2
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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So, who will get the kids next? Just pm me the name and address and as soon as the kids are ready I will send them off on their next adventure.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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03-27-2009, 09:34 PM
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#3
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Maybe Marlys in Boise, Idaho.
She skipper her turn so Laurie could get them for Ryder's birth.
Yes, Marlys??
We need some other people to appreciate what we have going with our Mascots!
Send us some photos, WOS, OK?
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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04-08-2009, 02:18 PM
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#4
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Hey WOS
Do you still have the kids???? Gonna post some pics for us to see????
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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03-28-2009, 09:13 AM
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#5
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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I am looking forward to their visit.
I will send WOS my address.
Love & hugs,
Marlys
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03-28-2009, 10:12 PM
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#6
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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It made me and my son so happy to see the gang having fun in their new home. It made my son giggle, especially since they spent some time playing with his stuffed puppy and now they're with yours. Send them our love.
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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04-08-2009, 08:22 PM
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#7
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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Yes, Steph, they are going for a spin with the Sober Riders. Gosh, it is great to see pictures of them. I can hardly wait til they get here. I will send them on to whoever wants them.
Love & hugs,
Marlys
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06-14-2009, 07:42 AM
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#8
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Senior Member
Join Date: Apr 2007
Posts: 292
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We would love to have them visit us in Georgia again! We are going to the beach again the second week of July, and they were such good companions there last year! However, any time is fine with us!
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
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06-15-2009, 05:46 PM
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#9
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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The big(literally!), bad(not really!), but kinda sick(really!), Marlys has had them in captivity for forever because she was just not feeling well enough to entertain them in the manner to which they have become accustomed. So she is sending them on to Jackie07 without any additions to the journal or no new pictures. Please forgive me!!!!
Love & hugs,
Marlys
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06-15-2009, 06:18 PM
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#10
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Guess that answers it. But so sorry to know that the "ickies" have made life for Marlys so miserable lately.
Marlys can have a turn whenever she feel like it.
Meantime they can go from Jackie on to Krista for a bask at the beach. You do have special sunscreen for them??
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-15-2009, 07:50 PM
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#11
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Of course we forgive you Marlys ... hope you're feeling better
and thanks for letting us know their whereabouts ...
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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