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12-23-2009, 11:18 AM
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#1
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Bone biopsy update
Hi everyone,
I had a call from my onc yesterday and it appears the one spot of concern is too small to biopsy.
They want me to have another MRI in a month and see if it has grown or changed and will go from there.
I'm hoping of course it won't have grown, but am thankful my onc takes my highly her2+ status serious enough to keep ordering these tests.
I just really hope I get some positive answers soon as this waiting is torture.
It's strange too that any aches I have are minimal but not at all where the area they're watching are. I had'nt realized getting an actual dx could be such hard work and so time consuming!
I'm trying to put it out of my mind and enjoy the holidays anyway and wish you all a very Happy Christmas 
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-23-2009, 12:36 PM
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#2
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: Bone biopsy update
Wishing you a merry and joyful christmas and a happy and healthy new year!
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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12-23-2009, 06:32 PM
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#3
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: Bone biopsy update
Tricia, I know the waiting is awful! But I'm believin' in a good result and continued good news! Much love, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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12-23-2009, 08:02 PM
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#4
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Bone biopsy update
Tricia,
I do not know, but I'm feelin' good vibes for you, Girlfriend. Seriously, I just think this is a no go and you are gonna be around, NED for a long time. Damn spooky stuff this cancer. Never get to relax though, do we? Never can brush off those aches and pains, can we? On the positive side, cancer causes us to live each moment and even treasure them as they are occurring because we want to be so "present" in each moment. The Christmas season really brings this to the forefront for all of us. That nagging question that lies just so shallowly beneath the surface of our seemingly normal lives. You know the one...will I be here?....to do this again?....next Christmas?....to see my next?....anniversary?....graduation?....birth?....
So what do we do? We live in our moments, because by living we matter, we make a difference, we touch lives, and we know we will be missed....if...
BUT that nagging, endless "if" is not for now. It may be for tomorrow, but not this day.....not this year....not this now.
Live in the now. Tomorrow is another day. Rest in the knowledge that all futures are uncertain, some of us just know that more acutely than others. We survivors know how fragile and tenuous live is. Believe until some one tells you not to and then tell 'em to go to hell and go on believing! Believe in your tomorrows.....
Wishing you a very Merry Christmas 2009, 2010, 2011, 2012, 2013, 2014, 2015, 2016 2017, 2018, 2019, 2020, 2021, 2022, 2023, 2024, 2025,2026,2027,2028,2029, 2030............!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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12-23-2009, 10:56 PM
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#5
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Senior Member
Join Date: Mar 2007
Posts: 33
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Re: Bone biopsy update
Right on Laurel. I agree with you. Tricia keep the faith girl. Good thoughts and prayers coming your way.
Ruth Ann
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12-23-2009, 11:37 PM
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#6
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Bone biopsy update
Tricia,
Merry Christmas ahd Happy New Year.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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12-24-2009, 03:09 AM
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#7
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Bone biopsy update
Thank you all, and to Laurel for such wise words we can all relate to
Thanks Laurel, sometimes we just need a kick up the backside as a reminder to not dwell on what if's??
Happy Christmas to all xx
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-24-2009, 04:44 AM
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#8
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Bone biopsy update
Yes, Tricia, we do, but it is so easier said than done! I wrote those fighting words as much for me as for you. Those endlessly haunting what ifs....! I tell myself that my future is no less certain than it was pre-cancer, meaning that none of us holds our futures in our hands. Those who have not yet survived a serious illness are no more assured of a tomorrow than the rest of us. It just seems as though our futures are more murky shrouded with the dread of a recurrence, but in truth the odds are in our favor that the loathsome cancer will not return to darken our lives yet again.
I find the mental game of staying positive tedious at times and very wearing on my resolve to live in the NOW. How I wish I could just be like the sparrows and not worry. It really is an utter waste of time when you think on it!
Ah well, I do so hope you have a peaceful and lovely Christmas and that God grants you freedom from the hounding what ifs. I wish that for all of us. May God Bless Us One And All!
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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12-24-2009, 05:00 AM
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#9
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Re: Bone biopsy update
Tricia, try to let it take the back burner and just enjoy the holidays. I know it's hard, but we can't let this invade our every moment.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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