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Old 03-20-2012, 04:03 PM   #1
Jackie07
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Sheilas posting about Christine - UPDATED

Our Founder of this site, Christine Druther has had a major setback. Seems she suffered a stroke in the past week, and the doctors found a small tumor in her brain that's affecting her ability to walk. She has been taken to a skilled nursing facility for rehab. All of this is very hard on her 2 daughters, Danielle and Debra, and they would appreciate any one in the area that can visit to do so, and the rest of us to send cards to let Chris know how much she means to all of us. Danielle sent me this message before Chris was moved to the skilled care facility.

I haven't had a chance to really sit down with any of her doctors yet but I talked to one last night that said the mass of scar tissue that's been in her cerebellum for some time now has grown and is probably responsible for why she's unable to walk (what I took her in for) and it's surrounded by inflammation, which they want to treat with decadron. The only thing that makes me nervous about that is the effects that particular steroid has on blood sugar, considering my mom has taken it before and now has diabetes because of it. The stroke showed up in her MRI but as far as i can tell, she's at her base level behaviorally and there's no particular weakness on either side specifically that I've seen. I'm just not sure if she will walk again or if the anti inflammatory properties of the steroid will help restore better function to that area of the brain.

Lets send her all our love and prayers with an avalanch of cards! She has done so much for all of us!
To send a card to let her know we are thinking of her:

Christine Druther
Emeritus of Carmel Valley Room 185
13101 Hartfield Avenue
San Diego , CA 92130

http://her2support.org/vbulletin/showthread.php?t=53406
__________________
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by StephN; 10-22-2012 at 02:19 PM..
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Old 06-14-2012, 10:06 PM   #2
calisa71
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Re: Sheilas posting about Christine

How I wish I saw this before. I am praying for her recovery. Lord, if you can help ldees. Finally ts to it, hy








Mm
__________________
Dx in 1998 - 27 yrs old
Triple positive
1.1 cm tumor with DCIS. Mastectomy ACT followed by Tamoxifen
Recurred 2000 to lymph nodes in axilla and bones
Rads- more chemo plus one year of Herceptin
Recurred to more bones- lots of rads to bones
32 or more different chemo combos since 2001
Found to be ER-/PR-
Brain met 2007- 5 more to follow all treated with gamma knife latest one 3 cm on brain stem treated April 25
5/1/12 irinotecan,tykerb,Herceptin,xgeva
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Old 06-29-2012, 09:16 PM   #3
radiant
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Re: Sheilas posting about Christine

Holy Cow - I never come to this thread and
I just accidentally clicked this on.

Any updates on Christine?

Thanks - Kim
__________________
------------------------------
Dx Stage 3C 2005, triple +, tons of lymph nodes as well. FEC, surgery, TCH, rads, herceptin 1 year. And, Aromasin.
2007 - recurrence to medistinal lymph node, Abraxene and Herceptin - took it down 50%
2008 - on Arimidex/Herceptin - stable lymph node.
2009 - stable on Arimidex/Herceptin
2010 - lymph node progression and liver mets.
2010 - went on Gemzar, Navelbine, Herceptin - Navelbine and Herceptin took liver mets down. lymph node slightly progressed.
2010 - did Xeloda & Tykerb - MAJOR progression in liver in only 6 weeks.
Dec 2010 - present - Ixempra/Avastin/Herceptin/Fasoldex - regressing
June 2012 - chemo break
Sept 19, 2012 - start t-dm1. Chose this over going back on Ixempra.
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Old 06-30-2012, 05:30 PM   #4
StephN
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Re: Sheilas posting about Christine

Hello Kim -
I was looking for an update myself. Last I heard Christine still needed to use a wheelchair and was getting physical therapy in the rehab center.

Is she still there?

Shall we still send cards to the above address??
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 08-16-2012, 09:38 PM   #5
KymAustralia
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Re: Sheilas posting about Christine

Hi Jackie... so upsetting to read this, is there an update on Christine?

Hugs

Kym
__________________
Dx Nov 2002 Her2 +++ Er+ 44 years of age (Pre menopausal)
Lumpectomy 1st Dec '02
Stage II 2cm tumor.. Clean margins
Her2 +++ Er pos
1 x Pos Node of 14
Entered BCIRG 006 Trial Jan '03
4 x AC 4 x Taxotere 30 Rads
1 year Herceptin
5 years Arimadex
Total hysterectomy (came out of chemopause) March '04
2012 - Still NED
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Old 08-22-2012, 07:10 AM   #6
Barbara2
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Re: Sheilas posting about Christine

I am so sorry to learn of this and Christine will be in my prayers. If anyone has a current address where we could send a card and well wishes, please pass it along. Thank you.
__________________
Blessings and Peace,
Barbara

DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.

Accepting the gift of life, I give thanks for it and live it in fullness.
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Old 08-22-2012, 12:09 PM   #7
Sheila
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Re: Sheilas posting about Christine

Barbara, this address is the same as it is I. jackies posting at the top of Ris thread....,she is still in the same place in rehab.
Sheila
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-21-2012, 10:02 AM   #8
Danielle
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Post Re: Sheilas posting about Christine

I figured after a few months now, I owed you all an update on Christine, and I apologize for the delay. As I'm sure many of you know, sometimes you just want to make it to a stable place before giving all friends and family a status. But I just wanted to thank every single one of you who has sent Christine all of the cards, letters, pictures, and gifts for your thoughts and consideration. You motivate not only Mom, but both my sister and me, and whatever strength we can get from those around us is undoubtedly helpful during this time.

The physical therapists at her skilled nursing facility have decided there is nothing more to be done as far as rehabilitation. Mom is in a wheelchair now, having lost a noticeable amount of motor skills, and on a soft foods diet as her ability to chew and swallow properly has been affected not only by the stroke earlier this year, but the late stages of her dementia. She doesn't talk too often, but I do know her memory is still there. She can still recall me, my sister, the people she has known throughout her life (including all of you!), even if she can only really string together so many words at a time. Some days she's too tired to speak at all, while on other days I'm able to tell her all about my week to a response of 'That's wonderful!' 'How terrible!' 'I'm so happy to see you!' As those of you who have had a family member with dementia or Alzheimers know, there's definitely cognitive good days and bad days, but she is stable.

Her prognosis is in a pretty vague and uncertain place. The doctors feel like they can't really put her on blood thinners or change her medical regimen. Yet at the same time, they aren't entirely certain she'd be able to survive another stroke if/when it happens again. It's something that, of course, makes both my sister and me very nervous, but we try to remain optimistic and take each day with her as a blessing.

She's still at the same facility, so if any of you would like to continue to send her words of hope or anything else you'd see fit, she certainly loves to hear from all of you. I'm sure in her state, it gets a little frustrating not being able to do much physically when you want to prove to all of the other people around you that you're someone who really accomplished something with your time here. Having cards from all of you hung up all over her room has been her favorite way to show all of the nurses and physicians that come to visit her just how much she was able to achieve in the way of breast health advocacy, and there's no doubt she loves all of you HER2 ladies very much.

I hope this wasn't too lengthy. Apparently I'm really chatty on AND OFF caffeine! But I just wanted to give all of you an update on her. She's still smiling, just trying to adjust to new changes.

Hugs to all,
Danielle
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Old 10-21-2012, 11:06 AM   #9
chrisy
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Re: Sheilas posting about Christine

Thanks for the update, Danielle. One thing I remember ovER the years from meeting your mom was she loved to sing old show tunes. Growing up my family would play (and sing along with) broadway sound tracks all say long every Sunday. I still have boxes of old scratched vinyl LPs that I can't bear to toss because of those memories! Made me wonder, does your mom ever sing?
__________________
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 10-21-2012, 11:06 AM   #10
karen z
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Re: Sheilas posting about Christine

Danielle,
Thank you so much for the update and it certainly was not too lengthy. All of us love your mom and loved your dad and we appreciate any and all information about Christine. Please also know that we think of you and your sister all the time and that you are in our hearts and minds.
Love,
karen z
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Old 10-22-2012, 02:18 PM   #11
StephN
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Re: Sheilas posting about Christine

Dear Danielle -
This report is one that makes it clear how your mother is doing.
You and your sister are learning such strength after having to deal with Joe's illness and passing, and your mother's declining health.

No one should have to endure all that at such a young age. Wish I could give you REAL hugs instead of cyberhugs!

Now that we know Christine is still at Emeritus of Carmel Valley, I hope another round of cards will arrive there.

Take good care of yourself and post again.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 10-22-2012 at 04:59 PM..
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Old 10-31-2012, 10:17 PM   #12
Joanne S
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Re: Sheilas posting about Christine - UPDATED

Thanks for the update Danielle. Super huge hugs to you, your mom and family! In my thoughts and prayers. <3
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 11-04-2012, 05:01 AM   #13
Gaver
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Re: Sheilas posting about Christine - UPDATED

Any updates on Christine...........sending all my best wishes for this wonderful woman !!!!!!

Will be sending her a card from Mumbai,India where we live but am sure she wont get it as am confident she will be back home and out of the hospital by the card makes it halfway across the globe to California !!!

Geetanjali,daughter of Gaver
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Old 11-23-2012, 03:33 PM   #14
fauxgypsy
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Re: Sheilas posting about Christine - UPDATED

I have not been on the forum recently and hadn't heard about Christine's illness. I enjoyed the time I was able to send with them in Denver a few years ago. I was very sorry to hear this. She is a very inspiring woman.
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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Old 11-27-2012, 07:28 PM   #15
Yorkiegirl
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Re: Sheilas posting about Christine - UPDATED

Is the mailing address still the same? I want to send Christine a Christmas Card.

Prayers do still continue for her.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 11-27-2012, 07:57 PM   #16
StephN
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Re: Sheilas posting about Christine - UPDATED

I think it is safe to use the address for a card. I plan to do that as well.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 01-20-2013, 01:10 PM   #17
Danielle
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Re: Sheilas posting about Christine - UPDATED

Thanks for all of the cards and letters, everybody. It's been nice reading them to Mom during our visits, and she's very proud to be reminded of all of the people she reached out to and touched by making this organization with my father so many years ago. Plus, it shows all of the nursing staff there that Christine is not 'just another patient' -- she's achieved and accomplished so much in her time, namely in breast cancer advocacy, and although her dementia has made it hard for her to communicate that, she certainly gets a kick out of being able to show her CNAs just how involved in advocacy she was.

Cognitively, she's become much more engaged in conversation. Granted she can only say so much at a time before she's somewhat lost focus on what she was saying, but her memory is good and her reactions are appropriate to the subject, and she can still finish the lines of all of her favorite songs.

The only problem I have is that she's lost a tremendous amount of weight. She was traditionally a size 12 or so, and now I bought her something from Target in a small size and it still seemed a little bigger. The nursing home's social worker asked me if I would want to put her in hospice, saying that because of how much weight she's been losing, many nurses working with her feel like 'it's time'. However, when talking to Mom about it (as, of course, I want this to be HER decision while she's still capable), she said that she still has an appetite, still wants to eat, and doesn't feel like she's ready for hospice at all. Some days when I bring in soup (or sneak in dessert for my 27th birthday last week), she will eat the entire thing, so I know an appetite is still there and this isn't one of those moments where she's 'given up' on eating.

So my question for all of you is: What do you recommend as far as weight gain in patients? I know as cancer patients, I'm sure you've come across circumstances where someone needed to gain weight (unless you've ever been stuck on Decadron -- that stuff is a nightmare!!), and if any of you are currently or have been caregivers in the past, you might know a thing or two about encouraging appetite and weight gain in someone who needs it. Mom's brain has been slowly bettering itself since her strokes this summer, and I don't want weight to be such a scary factor in her recovery. Hopefully, some of you have some helpful advice.

Again, THANK YOU SO MUCH FOR THE CARDS AND LETTERS!! Seeing them coming in from all over the world has been giving both Mom (and me!) a lot of confidence and good warmth.
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Old 01-21-2013, 11:01 PM   #18
StephN
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Re: Sheilas posting about Christine - UPDATED

Danielle -
I reposted this on the HER2 Group forum.
http://her2support.org/vbulletin/showthread.php?t=57103

Many members have answered there. Please have a look and maybe you can answer some of the questions.

Would your Mom be on Hospice where she is, rather than having to move to another location? Normally that is how it is done, and the person does not move, just goes on staying where they are under a new program.
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Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 10-01-2013, 12:34 AM
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