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Old 08-03-2010, 05:55 AM   #1
pibikay
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Wink A better prognosis
After my wife's 6th herceptin on 20th July the Onc ordered a PET/&.CT which was done the 31st July and we got the report yesterday The Onc said his earlier prognosis of 1-2 yrs will now be 2-3 years.The concluding part of the report says "skletal lesions show sclerosis in the present scan which were lytic in the previous scan indicating active healing"
The Onc told me that he is satisfied and that after the 9th herceptin he will swirch over to tykerb
I have got Quillin's book after eading about that here and I am changing her diet regime and hoping fpr the best and I wanted to share thr news with all of you
PBK
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Metstatic Breast Cancer Stage 4
Left breast cauliflower 25x20cm
ossousmetstatis in vertbrae secondaries L4=L5secondary
nodules in both liver lobes secondary
Diagnosed 10th March 2010
ER/PR-ve
Her 2 neu +++
Taxotrne Zylotec started 16th March
Herceptin added 5th April.9th Herceptin over on 20th Sep '10.Started on Tykerb and Xeloda on 22nd Oct2010TYKERB 4 TAB A DAY XELODA 4 TAB A DAY ONE WEEK ON ONE WEEK OFFZoletrust infusion every 4 months.Lesion in Brain 3D CRT Radiation started on 1st Feb'12 for 20 days ,5 days a week for 4 weeks.Devloped a small lump in breast.Xeloda stopped from 11th April '12.On Taxol.After 3 cycles of Taxol Taxol stopped.Back to Xeloda regime from 3rd July
Herceptin started again on 27th Dec 2012.Xeloda stopped Navelbin added on 7th February 2013.Now on Tykerb Herceptin and Navelbin
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Old 08-03-2010, 09:25 AM   #2
Faith in Him
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Re: A better prognosis
Thanks for sharing your good news. Wishing you many more years with your wife.

Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 08-03-2010, 09:39 AM   #3
ElaineM
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Wink Re: A better prognosis
This is good news indeed !!!!!!! You, your wife and her oncologist are a great team !!
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Old 08-03-2010, 02:13 PM   #4
Jackie07
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Re: A better prognosis
What wonderful news! Thanks for sharing.

Tykerb is a much smaller molecule that will clean up whatever Herceptin did not 'catch'...
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Old 08-03-2010, 04:13 PM   #5
Sandra in GA
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Re: A better prognosis
I am so happy to hear your news. Jackie is right about Tykerb.
Sandra
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Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
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Old 08-03-2010, 04:18 PM   #6
Chelee
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Re: A better prognosis
That's very great news...your wife has a good team behind her...which also includes you. It's so sweet of you to research and help her through all this. There are so many that should, could, but don't. She is very blessed to have a wonderul husband by her side. Adding Tykerb seems like a great plan...keep us updated on how that goes.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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