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Old 02-25-2009, 09:46 AM   #41
Joe
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To Val and others.

I have no objection to opening up a facebook account.
Please keep in mind that we value the privacy of our members and discourage Spam postings on our website.

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Old 02-25-2009, 03:40 PM   #42
ElaineM
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Wink ????Joe....Facebook anyone????

Maybe our members who have Facebook pages, websites and blogs would like to put a link to our her2support.org website on those things.
Maybe our members who have those things would like to post their site address in their profile on this site. Then everybody can visit everybody if they choose to do that.
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ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 02-26-2009, 12:20 PM   #43
atdec05
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I do wordgrid on Facebook. You can also do it on the net (wordsplay.net). It's like boggle and you compete against other people. My brain needs all the workout it can get!
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- Anna

Stage I - DX 9/2005
ER/PR-, HER2+, grade 3, DCIS, IDC multi-focal (1.05cm)
DD 4 A/C finished Jan 31, 2006
Herceptin weekly finished Jan 31, 2007
recurrence to chest wall on last month of Herceptin
Stage 3B - 3/15/07 - 2 carcinomas in dermal lymphatic
Rads finished 6/5/07
12x TH finished 9/10/07
12/07 - Clear scan!
3/08 - 4 month Melatonin trial
1/09 - osteoperosis -
start Alendronate
2/09 - 4-month Simivastin trial
3/13 - take drug holiday after 5 years of Alendronate
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Old 02-26-2009, 08:31 PM   #44
Jackie07
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It took me quite a while to figure out everything on this board. Call it chemo brain or cancer fatigue, I just think it is important for us to 'focus'.

For those who use Facebook to connect with family and friends, go ahead enjoy it. If you want to invite your Her-2 support Group friends, please put it in your signature so those who are interested can connect with you that way.

I remember using our 'Chat' function a couple of times and didn't really get anything 'solid' out of it. But it was exciting to have received a message from one of the members asking "Do you want to chat?" I think our private message can be a good conduit for one-on-one chat. And our regular postings can really be a good chat - one of our new comers did it in her Thread. She asked a question and gave her feedback whenever a member posted a reply. She became a moderator of her own thread. And everyone had a meaningful, personal 'chat' with her.

Whatever Joe decides to do is completely fine with me. We've got warnings about Facebook from a member who is a practising attorney. I guess if there's any problem in the future, she will be able to explain to us the legal aspect of it.
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NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
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GI - > yogurt
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Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 02-26-2009 at 08:57 PM..
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