| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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07-19-2009, 11:17 PM
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#81
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Friend now on hospice
I have another friend from Montana who is in need of any prayers, warm thoughts for her peace and comfort. She has been brave and tried so heard to beat her breast cancer. She did visit this site and lasted a year stable on a heat shock therapy trial. She finally progressed and went to Tykerb/Zeloda, but has developed a similar problem as Joy.
She will be leaving a 13 year old daughter, and this is the hardest part.
Peace and love my friend.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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07-20-2009, 05:26 AM
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#82
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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God's Peace surround her and her family and friends.
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-21-2009, 05:45 AM
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#83
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Please continue to pray for Ruth........She started Carboplatin yesterday again (she's been on a couple month chemo holiday - she has peritoneal cancer) - cancer is growing and pushing on colon and she has a blockage now. She is on absolutely no solid foods - just a nutrional IV that she does at home 12 hours during the evening. That and now chemo again....Oh Lord, please help her....give her Your strength and cover her with peace. Amen
Thank you prayer warriors.....
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-21-2009, 08:37 AM
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#84
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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a friend has been in alot of pain through her abdominal area. they've checked her heart, gall bladder and pancreas. waiting on results from pancreas. she's 68 yrs old and this is really bothering her alot. please pray they find the cause and can fix what it is.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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08-07-2009, 09:32 PM
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#85
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Senior Member
Join Date: Aug 2009
Posts: 94
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Re: Prayer Room
prayer is good, i feel god gave me a healing.
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08-07-2009, 09:40 PM
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#86
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Senior Member
Join Date: Aug 2009
Posts: 94
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Re: Prayer Room
I found a lump 2008, had is removed all DCIS, some months later i had back pain. They found liver mets and i had 6 rounds of chemo. Still ned, but need tumor marker, liver enzymes and scans all over again. I am on
a vaccine trial in Washington - if anyone is on this trial - I look forward to your reply. love margie
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08-09-2009, 04:59 PM
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#87
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Re: Prayer Room
Stephanie,
Praying for your friend. I just came to this post after a long respite. I was goin g to ask for prayers for a new trial i am entering tomorrow, but decided instead to pray for all those here in need. Please let me know how your friend is doing.
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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08-09-2009, 09:32 PM
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#88
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Prayer Room
Prayers for all who need them !!!!!!! Prayers for peace on all levels. Prayers for healing. Prayers for comfort and strength. Prayers for guidance.
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08-09-2009, 11:13 PM
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#89
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Prayer Room
Having my silent moment for all those who are in need of prayer.
VickieH - thanks for asking. My frind Capi passed into the arms of her loving Father on July 23. Here is a link to the obit. She was the all-American, smart woman.
http://www.goodbye2u.com/dahls2/data...ow&photoId=287
And here is a special prayer for you Vickie, as you try yet another drug to get those mets under control. Please post and tell us more about this trial once you have the first treatment.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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08-10-2009, 06:11 PM
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#90
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Re: Prayer Room
So sorry to hear that Stephanie. She seems like a beautiful, hard working, fun loving, tough as nails woman. My blessings to her and her loved ones, like you.
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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08-11-2009, 10:11 AM
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#91
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Re: Prayer Room
Steph,
Sending love and empathy to her family today. Far too many young people like her are leaving us far too soon. Her picture shows a brave and beautiful mother, sister and wife. She lives on in each of us.
Much Love,
Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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08-14-2009, 09:56 PM
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#92
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Re: Prayer Room
I just said a prayer for the gentleman that raids our recycling bin each Friday. I realize that even with breast cancer in our lives that things are rough even without it. Today I ate, I had a place to live, my husband is still here....all with me being without a job.
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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08-15-2009, 05:41 AM
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#93
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: Prayer Room
As I begin my day I ask God to be with all my her2 sisters and brothers. Through all we go through in this life Lord, please remind us of what is truly important.
Also, Lord, I thank you for all the wonderful people who find the positive (like Marie above) in life and find ways to serve others even through the trials they are experiencing.
Amen.........
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-15-2009, 04:00 PM
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#94
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Prayer Room
I thank God for my survival -----------more than 10 1/2 years so far !!
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08-17-2009, 07:54 PM
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#95
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Re: Prayer Room
Hey Elaine, Did the rains hit you yet? thinking of you and wishing we had some of that rain out here.
Prayers for all the homeless children who will be starting school next week, living in vans, shelters and under bridges. My heart goes out to them as they struggle to get by in school, find places to study, and shelter to keep them warm. May God bless all the sweet children out there and keep them safe and loved as they face so many challenges at such a young age.
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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08-18-2009, 08:47 PM
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#96
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Prayer Room
YES !!! Prayers for the homeless children who are innocent victims of homelessness. They cannot get a good education without school supplies and a good place to do their homework. They also need stability, good healthy food and health care which some homeless folks don't have.
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09-03-2009, 05:33 PM
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#97
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Prayer Room
Please add my Aunt Dorothy and our family to your prayers. She is in ICU right now dealing with issues related to her treatments for bone cancer.
__________________
For Nicola
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09-03-2009, 09:27 PM
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#98
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Prayer Room
Prayers for Aunty Dorothy. I hope she feels better soon.
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09-03-2009, 11:02 PM
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#99
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Re: Prayer Room
Aunt Dorothy will remain in my prayers, please keep us updated, Wild Bill.>>Believe52
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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09-04-2009, 04:59 PM
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#100
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Re: Prayer Room
How's Margie? Any scan results? Hope you're well.
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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