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Old 12-11-2009, 09:45 PM   #21
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Re: Had my 1st infusion...

Yes Ellie and MJO...that wonderful red face. (Fun...not!) I really thought it was the Taxotere the first time around...but now I wonder? My face doesn't just get red...it actually gets hot to touch. (Hurts!)

I see many of you didn't get pre-meds for Navy Beans...I'm pretty sure my onc gave them to me because of my severe reactions my first go around with TCH. (Compromised lungs and all.) As much as I hate the decadron...I'd rather be safe then sorry. I don't take any steroids before the infusion or after...just in the IV right before the Navy beans...so it's not too bad.

ElaineM, That's good to know your hip healed up even after starting the chemo. I'm sure hoping mine does. The incision looks pretty good but that darned hole from the JP drain is still there and looks a little concerning? But I'm keeping a close eye on it. So far the side affects this week haven't been too bad...mainly as mentioned the constipation, mouth seems a bit sensitive...and more tired then normal...but nothing close to what TCH was like. But I only had a one wk dose to start...lets see what happens next week?

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-12-2009, 03:04 AM   #22
michka
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Location: Paris, France
Posts: 858
Post Re: Had my 1st infusion...

Hi Chelee. I am sending you cyber hugs. I am so happy you could start the new treatment. Waiting during the surgery was so difficult. Well, you did it. You are courageous. I am now hoping you will not have too many side effects and that this treatment will work fast. Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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