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Old 11-28-2011, 03:11 PM   #1
pilgrim37
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Unhappy blood in urine?

Hi all:

I'm a year out from my last herceptin treatment (had stage III her2+, 3 months taxol/herceptin, bilateral mastectomy, 3 months A/C, 6 weeks radiation, balance of year on herceptin). Had complete response and was ecstatic.
Just returned from what was supposed to be routine annual obgyn appt & urine test showed microscopic blood in the urine. She said it could be caused by bladder cancer (& also many other things) -- tests pending. I'm scared. Looked up her2+ bladder cancer, & it's not good. Of course, if it's a recurrence, I'd be stage IV. Anyone had mets to the bladder? I'm ahead of myself b/c haven't been diagnosed with anything other than microscopic blood in urine, but just thought I would ask...
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Old 11-28-2011, 03:17 PM   #2
snolan
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Re: blood in urine?

Blood in urine can also be an infection, hope for that.
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dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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Old 11-28-2011, 04:50 PM   #3
NEDenise
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Re: blood in urine?

Sheesh! I can't believe your doc let you leave the office worried about that! You poor thing!

Suzanne's absolutely right! It could be nothing more than a simple UTI!! Would you feel comfortable calling your GP or Onc for reassurance?

Try not to worry yourself sick. I know...easier said than done.
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
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7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
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Old 11-28-2011, 05:26 PM   #4
whatz
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Re: blood in urine?

Ditto to what everybody else said. Most probably would be UTI. Also...some people have normally a trace of blood in their urine (i.e. me). I had that come back one time with the same finding (prior to my cancer diagnosis) and was put through the whole shabang of tests just to come out with the finding...nothing wrong to be found anywhere...sometimes people just have this in their urine (and I too had spent all my time worrying about bladder cancer etc.)
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4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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Old 11-28-2011, 05:38 PM   #5
chekmark
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Re: blood in urine?

I can duplicate what Whatz said. I had traces of blood in my urine also. Went thru some tests ( all very easy and painless) and was told that I had a perfectly healthy bladder and there is no reason why I had blood in my urine but that some people just do. Try not to read to much into it. I know someone with bladder cancer and she had alot of blood in her urine, basically peed total red. Hope this sheds some light for you. Stay positive. God Bless. Darlene
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DX Sept 30 2010 at the age of 49. Oh crap! 1.5 cm idc, stage 1 grade 3 er/pr+, her2+ no lymph nodes, mastectomy Oct/10. Started 6 rounds of TCH Dec/10 and will continue herceptin until Nov /11 and just started femara.
Stray kitten found my lump while I was playing with it. It is now my pet and my dog is not real happy about that.
Mammo good
last herceptin 11/21/11 YAY
reconstruction 12/09/11
Chapter closed 12/10/11, hopefully, fingers crossed
Bone scan, chest xray, clear
04/27/12 Expander removed, implant put in, ahh sigh of relief, much more comfortable
Sept 30, 2014, 4 years NED
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Old 11-28-2011, 05:51 PM   #6
pilgrim37
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Re: blood in urine?

oh, that helps so much, thank you guys!! I also found something saying that arimidex can sometimes be associated with this (which I'm on).... Thank you for helping me stop worrying! I'll get the work-up done, but I feel so much better.
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Old 11-28-2011, 06:11 PM   #7
Jackie07
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Re: blood in urine?

Hi,

Chemotherapy often puts women into menopause prematurely. One of the side effects of menopause is frequent UTIs (Urinary tract infection) A non-estrogen vaginal lubrication, 'Replense', has been recommended by a couple of our members and I've found it quite effective.

Naturally your doctor wanted to take precaution because of your medical history. One of my neurosurgeons had told me back in 2003: "People who have one type of cancer are more likely to have another type of cancer." Once we have experienced cancer, it's hard to follow the advice: "When you hear hoof beats, think of horses - not zebras."

Take a deep breath whenever you feel the anxiety. In the meanwhile, drink a lot of fluid and keep some cranberry tablets/capsules on hand.

Sending you good vibes.
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NICU 4.4 LB
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Last edited by Jackie07; 11-28-2011 at 06:18 PM..
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Old 11-28-2011, 07:19 PM   #8
BonnieR
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Re: blood in urine?

Concentrate on the "many other things"! All you heard was "cancer". Which we all can identify with, believe me!
Even though we have had cancer, we are still eligible for all sorts of other common ailments. (which I think is unfair!)
Try not to worry until given concrete reason to. It's a shame the doctor did not offer more reassurance.
Keep the faith.
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 11-29-2011, 08:50 AM   #9
norkdo
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Re: blood in urine?

Pilgrim, pls will you update this thread when u find out what the blood was? thinking of you.
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fall 2008: mammo of rt breast worrisome so am asked to redo mammo and have ultrasound of rt breast.I delay it til january 2009 and the results are "no cancer in rt breast. phew."
found plum sized lump in right breast the day before my dad died: April 17th 2011. saw it in mirror, while i was wearing a top, examining my figure after losing 10 lbs on dr. bernstein diet.
diagnosed may 10 2011

mast/lymphectomy: june 7 2011, 5/20 cancerous nodes. stage 3a before radiation oncologist during our first mtg on july 15th says he found cancer on the lymph node of my breast bone. Now stage 3b.
her2+++, EN-, PN-. Rt brst tumors:3 at onset, 4.5 cm was the big one
chemos: 3fec's followed by 3 taxotere, total of 18 wks chemo. sept: halfway thru chemo the mastectomy scar decides to open and ooze pus. (not healed before chemo) eventually with canasten powder sent by friend in ny (illegal in canada) it heals.
radiations:although scheduled to begin 25 january 2012, I am so terrified by it (rads cause other cancers) I don't start til february, miss a bunch, reschedule them all and finally finish 35 rads mid april. reason for 7 extra atop the 28 scheduled is that when i first met my rads oncologist he said he saw a tumor on the lymph node of my breastbone. extra 7 are special kind of beam used for that lymphnode. rads onc tells me nobody ever took so long to do rads so he cannot speak for effectiveness. trials had been done only on consecutive days so......we'll see.....
10 mos of herceptin started 6 wks into chemo. canadian onc says 10 mos is just as effective as the full yr recommended by dr. slamon......so we'll see..completed july 2012.
Sept 18 2012: reconstruction and 3 drains. fails. i wear antibiotic pouch on my job for two months and have 60 consecutive days visiting a nursing centre where they apply burn victims' silver paper and clean the oozing infection daily. silicone leaks out daily. plastic surgeon in caribbean. emergency dept wont remove "his" work. He finally appears and orders me in into an emergency removal of implant. I make him promise no drains and I get my way. No infection as a result. Chest looks like a map of Brazil. Had a perfectly good left breast on Sept 17th but surgeon wanted to "save another woman an operation" ? so he had crashed two operations together on my left breast, foregoing the intermediary operation where you install an expander. the first surgeon a year earlier had flat out refused to waste five hours on his feet taking both boobs. flat out refusal. between the canadian health system saving money and both these asses, I got screwed. who knows when i can next get enough time off work (i work for myself and have no substitute when my husband is on contract) to get boobs again. arrrgh.


I have a blog where I document this trip and vent.
www.nora'scancerblog.blogspot.com . I stopped the blog before radiation. I think the steroids made me more angry and depressed and i just hated reading it anymore
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