HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 09-22-2018, 02:21 PM   #61
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 541
Re: Treatment after Kadcyla?

A step forward.

At long last!

Got telephone call from Doctor's Secretary yesterday. Doc wants to do ablation on 3rd Oct

Guess where I'm spending my "big" birthday!
Geez!
Juls
Juls is offline   Reply With Quote
Old 09-22-2018, 05:12 PM   #62
Carol Ann
Senior Member
 
Join Date: Dec 2013
Posts: 1,030
Re: Treatment after Kadcyla?

Progress, YAY!!


Carol Ann
__________________
July 24, 2013: "Infected" Right Nipple and benign cyst removed, pathology report revealed Paget's, DCIS, and ILC 1.25 cm, ER+/Pro+/HER2 equivocal, Grade 2 under benign cyst, previous diagnostic mammo/ultrasound said I was perfectly healthy in both breasts.

Aug 18, 2013: MRI report says Left breast is perfectly healthy "consistent with previous studies".

Sept 2013: I insist on a bilateral mastectomy anyway. Too nervewracking to let left breast remain with higher risk after 3 cancers in right, nipple in right is already gone anyhow.

Sept 18, 2013: Bilateral mastectomy, 11 right nodes removed, ALL negative BUT -- ER+/PRO+/HER2+ tumor, 1.0 cm, Grade 2 found in a piece of "grossly unremarkable" breast tissue from prophylactic mastectomy of left breast, no nodes removed.

Oct 25, 2013: 13 left side nodes removed, ALL negative, Stage 1 across the board, NO RADS needed, YAAAAY! Port also installed.

Nov 25, 2013 Begin 6 rounds TCH.

March 10, 2014 Just finished 6th and LAST Chemo today, YAAAAAY!

March 24, 2014 Echocardiogram to make sure I'm still good for Herceptin every 3 weeks.

March 31, 2014 Echo results NORMAL, first Herceptin all by itself. Now if only my eyes would stop streaming from the Taxotere ... :)

April 21, 2014 Started Arimidex and therapy for "mild" lymphedema in left hand and arm

May 2014 Therapy completed, I have sleeves and gloves for both arms, a Flexi touch lymph pump to hook up to for an hour every day, and I've become an arm bandaging expert. :)

June 2014 Begin Fosamax to prevent osteoporosis; bone scan revealed osteopenia

Nov 17, 2014 FINAL Herceptin!

Dec 4, 2014 My right thigh muscle has been extra achy for days ... I discover a blister rash cluster on the side of my right thigh while taking a shower. Port appointment cancelled until Dec 17, my doc is working me in tomorrow afternoon to see me and the rash. My muscle at least feels less achy.

Dec 5, 2014 Yep, I have shingles. Boo! I start acyclovir and also have a prescription for a painkiller just in case for over the weekend.

Dec 17, 2014 Port is OUT!

January 2016 Shingles again and this time it started where my left breast (where the hidden HER2+++ tumor was!) used to be. My onc nurse got me a same day appointment to see my doc when I called and told her I had a rash on the site. The antiviral meds are working once again, though, so that is good news. :)
Carol Ann is offline   Reply With Quote
Old 09-23-2018, 05:10 PM   #63
Laurel
Senior Member
 
Laurel's Avatar
 
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 1,925
Re: Treatment after Kadcyla?

Well, even having the ablation on your birthday is still a great thing! What a battle you have had. I am honestly in awe of your toughness! You may be reserved, but I think you may have a bit of the "iron fist in the velvet glove" in you! Good luck with the procedure and I hope the pain will be minimal even though on the liver surface.
__________________


Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

10 Years NED
I think I just might hang around awhile....

Laurel is offline   Reply With Quote
Old 09-24-2018, 03:27 PM   #64
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 541
Re: Treatment after Kadcyla?

Carol Ann -

Thanks! Slow progress but good!

Laurel -

Thanks for your kind words. I first asked for this procedure over 5 years ago. Been a long time coming!

Juls
Juls is offline   Reply With Quote
Old 10-04-2018, 02:36 PM   #65
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 541
Re: Treatment after Kadcyla?

Ablation done yesterday.
So far so good!

Juls
Juls is offline   Reply With Quote
Old 10-04-2018, 03:06 PM   #66
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,117
Re: Treatment after Kadcyla?

And Happy Birthday to you too
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 14 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 10-04-2018, 08:06 PM   #67
Carol Ann
Senior Member
 
Join Date: Dec 2013
Posts: 1,030
Re: Treatment after Kadcyla?

YAY!! And Happy Birthday!


Carol Ann
__________________
July 24, 2013: "Infected" Right Nipple and benign cyst removed, pathology report revealed Paget's, DCIS, and ILC 1.25 cm, ER+/Pro+/HER2 equivocal, Grade 2 under benign cyst, previous diagnostic mammo/ultrasound said I was perfectly healthy in both breasts.

Aug 18, 2013: MRI report says Left breast is perfectly healthy "consistent with previous studies".

Sept 2013: I insist on a bilateral mastectomy anyway. Too nervewracking to let left breast remain with higher risk after 3 cancers in right, nipple in right is already gone anyhow.

Sept 18, 2013: Bilateral mastectomy, 11 right nodes removed, ALL negative BUT -- ER+/PRO+/HER2+ tumor, 1.0 cm, Grade 2 found in a piece of "grossly unremarkable" breast tissue from prophylactic mastectomy of left breast, no nodes removed.

Oct 25, 2013: 13 left side nodes removed, ALL negative, Stage 1 across the board, NO RADS needed, YAAAAY! Port also installed.

Nov 25, 2013 Begin 6 rounds TCH.

March 10, 2014 Just finished 6th and LAST Chemo today, YAAAAAY!

March 24, 2014 Echocardiogram to make sure I'm still good for Herceptin every 3 weeks.

March 31, 2014 Echo results NORMAL, first Herceptin all by itself. Now if only my eyes would stop streaming from the Taxotere ... :)

April 21, 2014 Started Arimidex and therapy for "mild" lymphedema in left hand and arm

May 2014 Therapy completed, I have sleeves and gloves for both arms, a Flexi touch lymph pump to hook up to for an hour every day, and I've become an arm bandaging expert. :)

June 2014 Begin Fosamax to prevent osteoporosis; bone scan revealed osteopenia

Nov 17, 2014 FINAL Herceptin!

Dec 4, 2014 My right thigh muscle has been extra achy for days ... I discover a blister rash cluster on the side of my right thigh while taking a shower. Port appointment cancelled until Dec 17, my doc is working me in tomorrow afternoon to see me and the rash. My muscle at least feels less achy.

Dec 5, 2014 Yep, I have shingles. Boo! I start acyclovir and also have a prescription for a painkiller just in case for over the weekend.

Dec 17, 2014 Port is OUT!

January 2016 Shingles again and this time it started where my left breast (where the hidden HER2+++ tumor was!) used to be. My onc nurse got me a same day appointment to see my doc when I called and told her I had a rash on the site. The antiviral meds are working once again, though, so that is good news. :)
Carol Ann is offline   Reply With Quote
Old 10-05-2018, 11:45 AM   #68
Melissa
Senior Member
 
Melissa's Avatar
 
Join Date: Jan 2008
Location: Virginia
Posts: 110
Re: Treatment after Kadcyla?

Juls,
Happy Birthday!
Sending healthy vibes your way!
hugs,
Melissa
__________________
Melissa

04/06, (42), 2cm tumor, 7/13 nodes, one positive node under clavicle
mastectomy/reconstruction
grade 3, stage lllb, er-65+, pr-90+, her2+++(80%)
4/AC, 12wks TH then 6wks rads
40 wks herceptin, and tamoxifen.
onc test tamoxifen resistance = poor metabilizer
04/07 ooph & on arimidex
08/07 completed herceptin

04/2018 - 12 years!
Melissa is offline   Reply With Quote
Old 10-05-2018, 12:13 PM   #69
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 541
Re: Treatment after Kadcyla?

Thanks Becky, Carol Ann & Melissa,


Feel like I've been run over by a truck today!!


Juls

Last edited by Juls; 10-05-2018 at 12:14 PM.. Reason: addition
Juls is offline   Reply With Quote
Old 10-05-2018, 02:27 PM   #70
nancy dip
Senior Member
 
Join Date: Jun 2007
Posts: 41
Re: Treatment after Kadcyla?

best wishes for everything!! nancy
__________________
Found lump myself 8 months after routine mammogram.
29/11/06-WLE and then re-excision to get clear margins.
Tumour was 1.2cms; Grade3; Er+ Pr+ HER2 3+++; SNB negative out of 9 nodes.
Chemo was Epirubicin every 3wks x4 then Xeloda (2wks on, 1wk off) for 4 cycles. ( I am part of the TACT2 trial.)
Rads x25
Arimidex for 5 yrs.
Hoping to start Herceptin within the next 2 weeks (we have to follow the HERA protocol to qualify for Herceptin in the U.K.) I worry about the delay in starting Herceptin!! Started 8/10/07
nancy dip is offline   Reply With Quote
Old 10-10-2018, 08:25 AM   #71
Donna H
Senior Member
 
Join Date: May 2014
Posts: 215
Re: Treatment after Kadcyla?

Sending hugs and strength your way (and belated Happy Birthday!)
Donna H is offline   Reply With Quote
Old 10-12-2018, 10:09 AM   #72
Juls
Senior Member
 
Join Date: Mar 2014
Location: UK
Posts: 541
Re: Treatment after Kadcyla?

Thanks Nancy & Donna.


At hospital yesterday & all good after ablation.
My Bilirubin level has been an issue for months but in 1 week bilirubin level has gone down from 47 to 22.
Don't need to go back for 12 weeks!! Yeah!!

I asked again for Herceptin to be reinstated but told "no", to stay on aromasin with zometa. Going to continue stating I think I should still be on Herceptin.


Otherwise taking this as a win!

Juls
Juls is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 02:35 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2018, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter