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Old 06-28-2011, 02:28 PM   #1
sept66blue
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Join Date: Jul 2010
Location: Southern New Jersey
Posts: 15
Re: Herceptin and leg and joint pains

Hi everyone,
I just had my ck up mammo and it looks clear. Thank God. I have had an issue perhaps I could have some feed back. I finished chemo 12/10 and radiation 3/11. I still have 3 more herceptin treatments. I've gained 20 lbs since I started herceptin last year. I've been going to the gym 3-4 x a wk since 2/11 w/ a personal trainer every 4 wks. I still do small portioned meals consisting of veggies, fruit, chicken and fish. No junk, processed, sugary foods. All the doctors deny herceptin as the reason. From the time I get up in the morning I'm active until bedtime. I'm feeling like a suma wrestler........Help
__________________
4/10 felt lump in left breast
5/10 mammogram & ultrasound
6/10 add'l views of mammo & ultrasound.
Consult surgeon did core biopsy on mass at that time. 1wk later needle bopsy on intramammary lymph node.
6/17/10 Dx w/ invasive ductal carcinoma, ER-/PR-,Her2/neu+
6/28 MRI, bone scan, chest xray, radiation oncologist,medical oncologist.
7/7/10 lumpectomy ( 1.2 cm tumor), dye sentinel nodes, portocath placed., 7/15/10 PETSCAN
7/16/10 No lymph nodes involved.
7/22/10 Path report suggest removal of scattered in situ, ecocardiogram, recons w/ med onco. 7/28/10 re-wide excision
8/19/10 1st chemo tx.-premed with Decadron 1 day before for 4 days along with Pepsid AC. Emend 1 hour before chemo. Given chairside by mouth Tylenol. Given by iv- saline, Benedryl, Pepsid AC, Taxotere, Carboplatin and Herceptin. Herceptin for 18 wks then every 3 wks x 12
Last chemo tx.12/02/10
2/11 eco, ekg, stress test all WNL
35 radiation treatments-completed 3/11/11

Last edited by sept66blue; 06-28-2011 at 02:30 PM.. Reason: misspell
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Old 07-11-2011, 08:02 PM   #2
Jean
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Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Re: Herceptin and leg and joint pains

Hi Diane,
Well the very ugly part of treatment TC is behind you.
As Brenda said those are powerful treatments.
It will take time for the drugs to get out of your system
and remember we are all different & special. So maybe your body will take a few extra weeks etc.

I have a question for you...when you were having treatment did you by any chance take yogurt? I would eat 2-3 a day to keep my insides running normal. Never had the problems with GI tract (at least it worked for me).
So maybe now you might want to try eating some yogurt even though you are eating healthy...but something in your diet is causing your GI tract to react the way it is and also the the drugs took their place also...remember all the good bacteria was destroyed also during treatment and this takes time to restore.

For the leg cramps this is what I did and it helped a lot.
I would eleavate my legs on pillows to help with the blood flow. Also - a good message on the calfs and foot would help me also. Warm soothing soaks in the tub at night before bed...along with a heating pad on my legs. It did help.

Ahhh the old runny nose...and the crusty nose.
That is from the herceptin. I had that the entire year of herceptin and long after. What helped the most for me
was neosporin cream - I would rub some inside my nose and the crusty stopped.

If you are not eating brown rice already maybe try that with some steamed veggies for a few days in a row and see results...red meat is a real cause for the runs while on treatment or when not on treatment way too rich.

It does get better and you are over the worst of it.
Herceptin is a cake walk compared to TC.
As far as hair growth...my hair took a while to grow back.
Like I said everyone is different. After TC it took a few months to see a good 2 to 3 in. but it does grow back.

Hope some of the above helps. Best Wishes on finishing the TC....
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006

Last edited by Jean; 07-11-2011 at 08:07 PM..
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Old 07-11-2011, 08:11 PM   #3
Jean
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Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Re: Herceptin and leg and joint pains

Sept66blue,
Yup those 20 pds...most of us had that too!
It will come off - I found until I was all done with herceptin the weight held on...when my last herceptin treatment then I dropped the 20 pds. It took a few months. Keep doing what your doing - you are so near the finish line.
I am sure once you finish herceptin and work out as you are doing you will see those 20 pd. drop.

Besides you look beautiful in your photo!!!

Best Wishes
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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