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Old 07-18-2013, 06:05 AM   #1
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
A new day! Thanks for the support last night.

A new day and my son popped in with his friend for a bit. Then he said they were going to cruise around town (I went to bed).

But this morning I woke up to my favorite look him sprawled out sleeping soundly, and I wanted to go kiss him on the forehead before I walked out the door but I KNOW BETTER!! Just say he IS NOT a morning person.

Thank you to all my cyber friends for the continued encouragement it gets me through when I am having a hard time doing it on my own.

I noticed there are conventions that people on this board go to, and I am hoping to go to one of those in the future and maybe meet some of you all!!

Bucket List!!
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 07-18-2013, 07:44 AM   #2
'lizbeth
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Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: A new day! Thanks for the support last night.

Ahhh . . . a bit of rest and family and you are feeling better.

Breast cancer is like an emotional bomb, it helps to get rid of a lot of false perceptions about your life. Boom! Cancer.

It can become a time of intense reflection and disappointment when we see life with an expiration date. Ouch!
This is a painful time, but it is an opportunity too. You might be able to change negative patterns and have a much bigger, happier future.
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease

Last edited by 'lizbeth; 07-18-2013 at 08:03 AM.. Reason: deletion
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Old 07-18-2013, 08:40 AM   #3
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Re: A new day! Thanks for the support last night.

It can become a time of intense reflection and disappointment when we see life with an expiration date. Ouch!

OMG Lizabeth you HIT THE NAIL ON THE HEAD IN THE ABOVE SENTENCE!!!! Very intense reflection and disappointment when we see or could be a expiration date. I have said that exact thing through so many tears this year.

False perceptions of your life??? What do you mean by that? Example please.

I didn't ask for child support because first of all quilt of leaving him and 2nd he said he would ruin my credit and not pay bills. I buckled with bullying tactics. I never thought of the continued control he would have in my life....dumb, dumb, dumb. It made sense at the time because he does love our son very much just as I do. He had just turned 16 years old, and I knew he would do more then he would pay in support. However, I had to put up with 5 more years of the control, because he paid for everything for our son. It was the most STUPID THING I could have ever done, and I know that now. It haunts me in my "Intense Reflection" I have done this year. Now, with the new girlfriend he will say things like you don't offer to pay for anything, and I am sure his GF thinks wow what an unbelievable guy. He is very good with kids and doing with kids so she has a great nanny when she travels for her job. The retirement I didn't care about that and really still don't he has worked for it and he can keep it.

You are right about the "Value" analogy, and I feel he didn't value me enough to change for me, but he value's her enough too change. After 20 years of marriage and these last 5 years I have changed him for her and that hurts, and I don't know why it hurts so much now. But I guess because a possible expiration date which causes reflection and it hurts in a deep way inside my mind, body and spirit. I guess he has respect for her, value for her, affectionate with her (calls her honey) so after giving up the primetime of my life and now cancer with a possible expiration date and feeling like damaged goods. Who benefits from it all???? The two of them.

What did I get from it this year of reflection; At times I think I didn't try hard enough, I miss moments with my son because of divorce, I miss Holiday's I loved with his family and loved the holidays with them. I am deeply grieved that I broke up the family unit and because of that it will effect my son and if I am around still my grandchildren. It's a heavy, emotional grief and who does it hurt?? It just hurts me because no one else cares, and I know it so I have to move past it. Back to I need a lobotomy!!!

Lizabeth, I guess I don't know where to start.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 07-18-2013, 08:55 AM   #4
jaykay
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Join Date: Oct 2012
Posts: 645
Re: A new day! Thanks for the support last night.

You are definitely on an emotional roller coaster. My 2 non-professional cents:

I believe that we gear ourselves up for the cancer fight (both mentally and physically), get through each step and when the end is near, it's kind of "what's next". All that energy that has gone towards fighting the beast can now be diverted elsewhere and I think it's natural to start thinking about past experiences, both good and bad.

I also believe in a little anti-depressant assistance. Not Ativan, but something like Celexa or other SSRI's. It helps even you out emotionally. Talk to your doctor.

Now - for the really opinionated Janis: You need to go for half his retirement if it is more than your retirement. My best friend's ex took half of hers and my brother's significant other took half of her ex's 10 years after they were divorced - and they were friends! You should talk to a lawyer

He can't bully you anymore and you are a fighter - you've proven that by getting through the cancer fight. And you're worth it!

xoxoxo
Janis
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 07-18-2013, 11:07 AM   #5
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Re: A new day! Thanks for the support last night.

Janis,

It has been 5 years since the divorce, so I don't think I can get anything now. The only thing I did do if he sold the house than I get 1/2 the equity. But he isn't going to sell it he is adding on and making it bigger. I wish I could go back and make him sell the house now too, but I can't do that either. Before he had a GF which is this last year if I wanted I could stop by the house if Alexander was there anytime, but I can't now.

I take 75 mg of ventaflaxin which I think is effexor for the hot flashes, but it is a anti-depressant. I did take Lexapro which helped I thought however it isn't good to take with Tamox because it can make it work less effectively.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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Old 07-18-2013, 02:41 PM   #6
jaykay
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Join Date: Oct 2012
Posts: 645
Re: A new day! Thanks for the support last night.

Hi - wasn't aware of the interaction with Tamoxifen. I'm on an AI myself. Was on tamoxifen from 2000-2005 and didn't need the anti-depressant back then, lol!

I'd still talk to an attorney. What do you have to lose?
__________________
March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 07-18-2013, 03:50 PM   #7
starwishn2
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Join Date: Jul 2012
Location: Utah
Posts: 124
Re: A new day! Thanks for the support last night.

Dear Linn~
I'm late on this post.. sorry. I have had the "pleasure?" of a divorce after 25 years. Dealing with an ex and the kids along with everything cancer throws at you is not easy. You are doing amazing! Don't think you haven't done enough - there is only so much you can do. Your picture is awesome - you're a beautiful woman. My husband decided at 22 years to start "dating". There are so many emotions that ride with that and then you get thrown this curve ball. And, YES, check with an attorney. My ex and I had businesses together and he took all the money and ran. I found out later I actually could have filed against him on the divorce decree up to 7 years post divorce. All states are different but you should check that out (my 2 cents worth).

And conventions... I would like to do that as well. How do we find out about these??
Jeri
__________________
Diagnosed 16Dec1993 ITP (auto immune disease - low platelets)
Splenectomy 11Nov2009
Rituxen May2011
ITP playing nice
Diagnosed 3Jul2012 BC

2 cm - Grade 2 - Stage IIB
HER2+++

ER+/PR+
bilateral mastectomy 20Jul2012
Metastasized cancer found 1 lymph node
expanders placed during surgery
TCH chemo "cocktail" started 24Aug2012
every 3 weeks - 6 treatments
Herceptin - 18 treatments
LAST treatment Taxotere & Carboplatin 7Dec2012 -yay!
Continue with Herceptin 26Dec2012

Started Arimidex 01Jan2013 (for 5 years)
Surgery to remove expanders/reconstruction 18Jan2013
Infection in left breast from reconstruction/infection in most nails - SO many meds! 22Feb2013
Left implant not playing nice.... might need to remove and try again - blah! 04Apr2013
3Jul2013 - one year since diagnosis - booo cancer!

15Aug2013 LAST chemo infusion!! YIPPPEEE!!!
13Sep2013 2nd reconstructive surgery.. the FOOBs are looking good!



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