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06-05-2007, 02:05 PM
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#1
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Asco
I have just returned from an incredible weekend at ASCO with Joe and Christine and I wanted to let everyone know what an incredible experience this was for me. To see Joe and Christine in action and hard at work on behalf of the entire Her2 population, brought to mind an entirely new meaning to the word dedication. They are constantly striving to become more educated, establish excellent relationships with those involved in Her2, whether it be doctors, researchers or pharmaceutical people, and to act as representatives for all of the Her2 community on our behalf. It would be very easy for them to only worry about themselves and concentrate on only their circumstances but they chose a different path, one much more noble and commendable. How do you ever thank people like this enough? Joe and Christine, my heartfelt thanks to both of you for allowing me to be a part of this weekend and above all thank you, thank you, thank you for everything you've done and continue to do for all of us.
Warmly,
Rina
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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06-05-2007, 02:59 PM
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#2
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Senior Member
Join Date: Apr 2006
Location: Boston
Posts: 66
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I heartily second that - continuing Thanks to Joe and Christine!
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06-05-2007, 03:01 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Eternal thanks to Joe and Christine!
You are a blessing to us all! There are no words to express our eternal gratitude! May that positive energy come right back at you! ANDI
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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06-05-2007, 05:25 PM
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#4
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I chime in as well. This site is the best thing to ever come my way. I so enjoy being able to encourage others - gain knowledge and ask questions. I truly love you all and think the people that come to this site are really truly the best of the best. If it weren't for Joe and Christine the awesome benefits of this site would not be possible for each of us. So a heartfelt thanks I send.
God Bless you both,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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06-05-2007, 06:14 PM
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#5
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Senior Member
Join Date: Sep 2005
Posts: 589
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ECHO, ECHO, ECHO. Many of us talk but they DO. They're amazing!!!! Eric
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06-05-2007, 06:15 PM
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#6
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Joe and Christine,
Thank you so very much from the bottom of my heart!
Love, Hope, and Peace,
Carolyn
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06-05-2007, 09:14 PM
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#7
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Rina,
So happy that you had such a great experience at ASCO and meeting Joe and
Christine must have been like meeting royalty! They are special angels to us
and we are so very luck to have them.
Big Appreciative Hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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06-06-2007, 04:12 AM
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#8
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Member
Join Date: Apr 2007
Posts: 7
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On behalf of the many of us who read here and gain invaluable information and support but seldom post, I would like to add our deepest gratitude to Joe and Christine and everyone else on the board who give so generously of their time and of themselves.
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06-06-2007, 09:10 AM
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#9
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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Joe & Christine, I say ditto to all that has been said above. One of my greatest disappointments was not being able to make the ASCO meeting. I was really looking forward to it. It sounds like it was a big success. God Bless you and this web site.
__________________
Andi
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Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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06-06-2007, 09:36 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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update
Hi Rinaina,
I don't know anyone yet who has attended with Joe and Christine at one time or another who hasn't had a great experience, and I'm glad you did too. Can you give us a report about some of what you learned there?
A.A.
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06-09-2007, 08:22 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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Thank you Joe and Christine for being our ears and then our voices.
God bless
Maira Singer
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