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05-09-2007, 10:30 PM
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#1
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Just got results to PET/CT scans...
Its been 15 months since DX and I just had my 6 month PET/CT scan. I had to see my pulmonary for another reason so I was sneaky and asked him how my lungs looked on my scans I JUST had the day before? (He had no idea no one told me the results yet.) hahaha Or I would of HAD to WAIT another week to find out. My onc likes to stress me out.
So my pulmonary has them in his hot little hands and says, "Well he says to start off it says there is NO evidence of metastatic disease". (Oh what a RELIEF that was to hear.) I am so glad I had an appt with my pulmonary because I would of HAD to wait for the results another week. Now I can relax and enjoy some.  I even asked for copies of the PET/CT. So now my onc WON'T have any idea I already have the reports. I will PLAY DUMB when I go in and act like she is telling me for the first time. lol (Not to bore anyone...I am just happy about a little good news for a change.)
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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05-10-2007, 03:59 AM
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#2
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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That's wonderful Chelee. Relax and enjoy this bright spot on your journey.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-10-2007, 05:14 AM
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#3
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Senior Member
Join Date: Jan 2007
Posts: 72
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Fantabulous news, Chelee!
__________________
12/01/2006 Initial Dx via stereotactic biopsy - DCIS, grade 3
12/27/2006 Lumpectomy w/ SNB: 2 foci of IDC (largest .3 cm, Grade 2, Notthingham score 6) amid large area of DCIS: No clear margins on the DCIS; re-excision recommended
ER+(55%)/PR+(60+)/HER2+ (2.8+ via IHC?)
01/23/2007 Re-excision Lumpectomy: No clear margins on the DCIS; mastectomy recommended
03/02/2007 Bilateral mastectomy w/ expander implant insertion
03/19/2007 Emergency surgery to fix broken blood vessel in left breast
03/30/2007 Met w/ oncologist; oncologist checking on HER2 status with pathologist and doing some consulting on my case - no treatments for now!
05/02/2007 Next appointment w/ oncologist
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05-10-2007, 05:32 AM
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#4
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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congratulations !!!
__________________
Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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05-10-2007, 05:58 AM
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#5
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Senior Member
Join Date: Mar 2007
Location: State Motto='HOPE'
Rhode Island
Posts: 28
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Good Day Chelee
I am so happy to hear about your good news. I just posted a ? yesterday about how scared we are to get my husband's petscan on Friday. Again, bad or good we cannot wait to find out. He will read postings today and even before I tell him your scans were good, he will have already told me the news. We love visiting here with all you special people and get happy with the good news and say extra prayers when they are bad. Hang in there Girl, we'll be right here for ya!! Lots of Love>>>Waiting For A Miracle>>Marie G
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05-10-2007, 08:02 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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That is great news indeed!!! You have a wonderful weekend!!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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05-10-2007, 08:10 AM
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#7
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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It has been a long wait to hear such good news...good for you!
Now do something nice for yourself and enjoy!
So Happy for you.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-10-2007, 08:43 AM
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#8
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Senior Member
Join Date: Aug 2006
Posts: 492
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Chelee- so happy for you! We are two peas in a pod. Last year I had a brain MRI (no symptoms, but wanted to know) and a PET the next day. When they went to go get something at the PET appointment, I saw my chart just sitting there with the MRI results- so I peaked and found out my brain was unremarkable!! Phew.
Anyway, my diagnostic center always gets the results to my onc the morning after the PET and he calls me right away. I can't imagine waiting a week- one day I was a mess. I just had one last week (19 months since dx) and it was also clear!
I hope you get your drain out soon- did it say anything about that on the scan?
Like he left a pair of hemostats in there?
And Marie, I hope your hubby gets some good, timely results too. Can you guys do something distracting this weekend? Hugs to you both.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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05-10-2007, 09:53 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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Great news, Chelee! We all know the feeling; a huge burdon has been lifted!
Congrats!!!
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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05-10-2007, 10:24 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Great news Chelee!!!!!
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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05-10-2007, 12:39 PM
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#11
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Always glad to hear good news.
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05-10-2007, 12:56 PM
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#12
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Senior Member
Join Date: Jan 2007
Posts: 144
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I'll second that..
Good new is always the best kind to share.
Thanks
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05-10-2007, 01:01 PM
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#13
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Great news Chelee! I feel bad for you that you just couldn't call up your oncologist and get the results. But, at any reat you do have the results so go celebrate
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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05-11-2007, 06:14 PM
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#14
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Thanks to each and everyone of you for the kind words. Its such a relief to get the all clear as you all know.
Margerie I see your as bad as I am. I mean WHY wait when you can find out right now if you are QUICK enough. That's pretty good that you had a chance to grab your chart when the doc walked away. I know I sure would have...after all...it is YOUR chart techically. Way to go Margerie! Congratulations on your clean scans last week. Fantastic!
As to my drain, it will be 61 DAYS as of this coming Monday. (Ridiculous.) I see my surgeon then and I fully expect it to be pulled. Although I am almost at 30cc's already today and its just a bit after 6:00 PM. As a matter of fact my scans DID mention my drain in there. I had to laugh when you asked if it showed a pair of hemostats in there. haha Had I NOT had the scans...I would of started to think of something like that. lol (Too funny.)
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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05-12-2007, 07:40 AM
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#15
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Senior Member
Join Date: Oct 2005
Location: TN
Posts: 84
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The PET center used to fax my PET/CT results to me, because I argued that they were mine...but, due to their new interpretation of HIPPA, I can't get them anymore, unless I get them from my doc's office.....and you know what that means 
__________________
3/2003-Dx'd Stage 4 Her 2+++
"Life is not measured by the number of breaths we take, but by the moments that take our breath away."
Dum spiro spero (Latin: while I breathe I hope)
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05-14-2007, 11:42 AM
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#16
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Senior Member
Join Date: Feb 2007
Location: Live in New York Monday through Thursday.Friday,Saturday,&Sunday Live in Cape May,New Jersey.
Posts: 36
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Congraulations!!!Keep the good work up,And enjoy life.
LindaC
__________________
DX October 18,2006
Changed doctor for second opion
Dx November 2,2006
three tumors left breast,lymph nodes involed don't
know how many.Kidney failure postponed my surgery
which gave the doctors the opportunity to run test.
FishTest showed that I have her2 positive, mets to liver and bones.
Dx December 14,2006
one dose carboplatin
now once a week herceptin,taxol
once a month zometa
February 5,2007 pet scan showed everything good except bones
5-16-07 muga scan
5-17-07 pet scan
Everythig was clear taken off of zometa,chemo
herceptin every three weeks
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05-14-2007, 12:14 PM
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#17
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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SHARING GOOD NEWS IS A "MITZVAH" (Hebrew)
A Mitzvah is a truly virtuous, kind, considerate, ethical deed. Sharing is so beautiful. I am so happy to hear good news. But, I must wonder out loud, if I may. I cannot tolerate waiting for results. My husband is even worse when it comes to me. I INSIST ON GETTING SAME DAY RESULTS. I schedule all tests -- 1st appt, to facilitate this. I call the docs office as soon as I return home to remind them my husband and I are waiting by the phone w/bated breath. I have befriended the docs' Assistant. She understands this is the only time I am out of my mind. If I don't hear by 4PM, I call again, because I know the Imaging Center closes at the stroke of 5PM and you cannot contact them until the next day. If my husband goes out to run errands he hangs by his cell. He calls me, Did they call yet? No, I always say. I promise I will call you the minute they call me. When they call and tell me I am STABLE, I just blurt out. THANK YOU. I LOVE YOU... Then my finger clicks off and I start dialing Paul. He answers on the first ring, anxiously, I tell him STABLE right off. No time for fun and games. He starts to cry w/relief. Thank God. Good. Call the kids. When he comes home he emails every one he knows and loves. I get copies of every single test ever taken and every report written. If no report is issued, I request one. I compare, w/a layman's eye for details.
IT WAS ME WHO PICKED UP MY METAST INTO THE LIVER, USING THIS METHOD. The doc told me on the phone, just after my every 3 mnth comprehensive bld workup that my liver enzymes were "slightly elevated, but very slightly". What does that mean? "I wouldn't worry about it." 3 mnths ltr exact same conversation. I was starting to worry. #s should be consistent, or they indicate an issue. 3 mnths later when I had the absolutely same conversation, I asked for a "liver sonogram". I don't even know where that came from! Well, I guess I could substantiate that. I'll write a scrip... The rest is history. The radiol at the sono apologized but had to send me for a CT because he couldn't be certain what he was looking at. The CT saw multiple tumors in the liver. Then I returned for a liver biop and was virtually pronounced a dead woman walking. 4th stage invasive lobular carcinoma + 2 nodes ( Age 50 -- '95 mastec, tram flap reconst Adria + CMF). Now HER2+ 80% as they put it in '98. WHAT YOU HAVE IS INOPERABLE, INCURABLE AND YOU WILL BE ON LONG TERM CHEMOTHERAPY FOR THE REST OF YOUR LIFE. I was devastated. But I got it together. Oversaw every step of my care. Did Taxotere for 9 mnths, till I dropped. Started Herceptin in Nov. '98 and have been on ever since. And I'm proud and grateful with every single day.
My point -- don't wait. Get answers as soon as is humanly possible. Don't go on a Fri. I did that once and due to mixups had to wait the entire wknd. Paul and I were besides ourselves. Be good to yourself. Get copies of everything. Micromanage the hell out of your story. No one cares more about you than you. Sending you LOVE and CONGRATULATIONS and THANKS for sharing your good news! ANDI
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05-14-2007, 09:04 PM
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#18
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Great news, Chelee!!!!!!!!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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