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Old 05-14-2007, 04:06 AM   #1
Mary Jo
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Location: Sheboygan, WI
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Remember when?

Good Morning everyone,
Remember when I had my pet/ct scan at the end of Dec.? Body was clear but a lymph node lit up in my left armpit. (breast cancer was right) - Onc. thought it was nothing and advised me doing nothing BUT I did not follow her advice. Went in and had an ultra sound of that armpit - surgeon looked at pic and both radiologist and surgeon stood there looking at it heeing and hawing around. We opted for no biopsy as it was inconclusive and I really didn't want a needle stuck in my arm pit. Now, 4 months later (this Wed. the 16th) I am having the pit ultrasounded again. To see if there was any change. The thinking from my surgeon was that I had a prophylactic mastectomy on left side 10 months prior to Pet/Ct. They think possibly the node/s were still reactive but not sure. They are confident it was a false positive as was I HOWEVER now that Wednesday is fast approaching I am nervous.

So, please pray for Peace and Strength for me from our Lord and a good result.

Thanks friends,

Mary Jo

P.S. Brief summary - had PET/CT at dx (June 2005) - other than right breast clean - did the chemo rad. etc. Onc. doesn't do scans - (for this reason she said) - rad dr. here in my city said I could have one (wish I wouldn't have) and everything fine but the question of lit up node. Now need to follow through.
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 05-14-2007, 06:16 AM   #2
Andi
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Location: IOWA
Posts: 243
My prayers are with you that this will prove to be nothing. (I'm sure it will).
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Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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Old 05-14-2007, 07:56 AM   #3
Erin
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I will be thinking of you and hoping for the most positive outcome. Big hugs from SoCal :-)
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Age 50, premenopausal
Dx 1/2/07 DCIS/IDC
Lumpectomy 1/4/07 1.1cm tumor
SNB 3 nodes clear
Stage 1, Grade 2, HER2+++ (FISH 6.8)
ER + / PR +
TCH, 6 rounds, finished 6/1/07!!!
Herceptin to continue for 1 year
36 rads finished 8/22/07
Port out 8/27/07
Switched to Herceptin weekly for joint pain
Ooph 11/13/07
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Old 05-14-2007, 08:31 AM   #4
Odette
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Location: Shaker Heights, Ohio
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Dear Mary Jo,

yes, yes, we pray and hope that it is nothing especially in the opposite armpit.
It was proactive on your part to do the ultrasound and have the surgeon look at it. Should it light up this time, I would definitely have it biopsied. It really hardly hurts at all and you would feel relieved either way, if neg - great, if pos - get it treated immediately.

I had biopsies of the axilla and the neck and even those were worth it so I'm not wondering what it is.

Hugs and prayers,

Odette
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May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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Old 05-14-2007, 09:35 AM   #5
Leslie's sister
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Prayers for you

Marejo:

I am praying for peace, strength and good news on the 16th!

Lisa
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Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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Old 05-14-2007, 06:37 PM   #6
Becky
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Location: Stockton, NJ
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You're going to be just fine. You heard it here first!!!!!! The node only lit up alittle because it was missing your boob and wanted alittle attention.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 05-14-2007, 06:55 PM   #7
Mary Jo
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Hahahahahahaha! Thanks Becky. I'll be holding you too that statement. J/K! I know it will all be fine - WELL - at least I'm hoping it will. Will be happy when Wednesday morning is over.

:-)

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 05-14-2007, 07:18 PM   #8
TriciaK
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Posts: 582
I'll be watching for your post after Wednesday, as I'm sure we all will. Sending you prayers and positive vibes and hugs! Tricia
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Old 05-16-2007, 05:28 AM   #9
Sheila
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Posts: 3,507
Mary Jo

I am thinking of you today and hoping all is good news...you will be in my thoughts and prayers that the node is just an attention getter....like Becky said, missing your boob.!
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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