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05-11-2007, 08:09 AM
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#21
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Sheila,
My heart goes out to you. I too have gone through losing a good friend to cancer just last year (Dec). She had been diagnosed with cervical cancer and within a matter of months she had mets to lungs. Within 3 months of that she passed away. I was extremely upset about it as I had been diagnosed before her. I don't think we have cancer because we did something wrong is our past. We just happened to get dealt a bad gene. Hang in there. Be there for your friend as I'm sure she sure needs your comfort now. I will keep her and you in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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05-11-2007, 12:16 PM
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#22
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Senior Member
Join Date: Jan 2006
Location: ALEXANDRIA, VA
Posts: 40
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Sheila, So sorry to hear about your friend ....It must be so very hard for you at this time also .... I will keep both you and her in my prayers.... I pray that she knows Jesus as her saviour and will be in Heaven soon....
God Bless,
Debbie
__________________
dx stage 4 ... 11/04
3.2 cm mass breast & liver mets..
her2 +++ ; er- ; pr -;
11/04 treated with hercp, taxol & carboplatin - every 3 wks
3/05 ned - stopped chemo; hercp only
5/05 reoccurence left breast
6/05 added navelbiene w/ hercp every other wk
7/05 mascetomy
12/05 ned ; same regiment- every 3 wks
3/06 & 7/06 ned
9/06 stopped navelbiene.. hercp only.. every 3 wks;
10/06 pet scan shows positive lymph node in pec
12/06 PET no change;
4/07 scan showed 4 abnormal nodes in right pec area ... these have increased in activity since last scan... will start back on weekly navelbeine & hercp
7/07 PET done ..this time it showed new nodules in both right & left lung area as well as increased activity in pec area..
8/07 started Taxol & Carboplatin with Hercp every 3 wks
10/07 PET done ...Great Report ... NED ....
11/07 continue with Hercp every 3 wks & do Taxol & Carboplatin every 6 wks
4/09 still on same regiment; 1 positive node in left lung and right pec area
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05-11-2007, 12:31 PM
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#23
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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Sheila I am so sorry
You have to know that you are so lucky to have each other at a time like this.
Your being there for each other through your cancer fight , and you for your friend right now, must mean the world to her. I know this does not ease your pain of preparing to lose her any easier.
Keep your memories of her strong in your heart and know you made a difference to her.
You take care of yourself and I will keep your friend in my prayers.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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05-11-2007, 01:14 PM
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#24
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I'm sorry. I know your friend is thankful to have you.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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05-11-2007, 01:59 PM
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#25
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Sheila
My prayers are with you and your friend. Such sad days we go through.
Take care
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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05-11-2007, 02:35 PM
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#26
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Sheila,
I am so sad to read your post. My heart breaks for both of you.
I will keep both of you in my prayers. It is so difficult to understand
and accept this loss. We are after all so fragle.
Fondly,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-11-2007, 06:03 PM
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#27
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Oh Sheila,
What can I say that hasn't already been said. All I can say is I'm so so sorry your friend and you have to go through this. I too pray that she doesn't have to suffer and I also say a prayer of thanks that your friend has a friend like you to stand beside her on her journey.
God Bless you and her with His peace!!!!
Hugs,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-11-2007, 06:36 PM
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#28
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Senior Member
Join Date: Dec 2005
Posts: 274
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Dear Sheila,
My prayers and thoughts go out to you and your friend. May God be with you both through this heartbreaking time.
Sincerely,
Liz J.
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05-11-2007, 07:17 PM
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#29
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Senior Member
Join Date: Feb 2007
Location: Live in New York Monday through Thursday.Friday,Saturday,&Sunday Live in Cape May,New Jersey.
Posts: 36
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Dear Shelia,
I am so sorry that you have to go through this I wish I was there to hold you and your friend. I will say a prayer for your friend that she does not suffer and one for you to stay strong.
God Bless you BOTH,
LindaC
__________________
DX October 18,2006
Changed doctor for second opion
Dx November 2,2006
three tumors left breast,lymph nodes involed don't
know how many.Kidney failure postponed my surgery
which gave the doctors the opportunity to run test.
FishTest showed that I have her2 positive, mets to liver and bones.
Dx December 14,2006
one dose carboplatin
now once a week herceptin,taxol
once a month zometa
February 5,2007 pet scan showed everything good except bones
5-16-07 muga scan
5-17-07 pet scan
Everythig was clear taken off of zometa,chemo
herceptin every three weeks
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05-11-2007, 07:45 PM
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#30
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Darn Cancer! It has taken so many of our loved ones. I feel your pain and hurt and I will pray for your friend...that at least she be spared suffering. My heart goes out to you.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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05-11-2007, 07:46 PM
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#31
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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Sheila - You have shared a kind of special relationship with each other that is very special, my prayers are with you and your friend.
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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05-11-2007, 09:43 PM
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#32
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I am so sorry to hear that Sheila. I am praying for both you and your friend. My heart goes out to you and her family.
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05-11-2007, 10:52 PM
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#33
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Senior Member
Join Date: Jan 2007
Location: Adelaide, South Australia, Australia
Posts: 144
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Sheila - I just don't know what to say - I am so sorry for both you and your friend. Warm hugs to you, and know you will both be in my thoughts - Belinda
__________________
Belinda
- Diagnosed 3 Jan 2007, Stage IIb, Mastectomy and axillary clearance 10 Jan 07, 6 of 19 nodes affected, multi-focal cancer, HER2 positive. Second mastectomy (prophylactic). Chemo - AC 3 months, Taxol 3 months - then radiation 5 weeks.
- Aug 2011 - Diagnosed with Stage IV mets to lung, sternum and 12 or so thoracic nodes - Rads to Sternum, then weekly abraxane and herceptin for 12 weeks.
- May 2012- good scans - all nodes still about normal size, hole in sternum repairing, lung tumour 'obliterated'.
Ongoing herceptin every 3 weeks. Bloods still all good! Life good!
- March 2013 - recurrence - tumours in lungs and mediastinum (coughing up blood) - immediate radiation treatment to right lung and mediastinum, still on Herceptin, and 3 months of Vinoralbine - stable for a little while!
- Coughing and breathlessness started again September 2013, treated as radiation-induced fibrosis (which can be seen on scans - albeit stable). ie puffers, steroids
- January 2014 - cough becomes bloody again, scans show big mediastinal tumour wrapped around and choking the life out of my right main bronchus, radiation deemed off limits as my lungs are hypersensitive to radiation (measured by existing damage from 2013) .....................- ie I am in the 5% of people likely to suffer severe radiation damage to the lungs that they warn you about before starting treatment! (so special! :) )
- Started chemo Feb 2014 - continuing Herceptin (continuous since Aug 2011), with Carboplatin and Gemcitabine. Discontinued Gemcitabine because of se's. Starting cycle 5 Herc/Carbo 5 May 2014.
- Meantime.....coughing and breathlessness increased to SCARY levels with racing heartbeat that won't slow down, breath that won't come back, even just walking to the bathroom or up 3 or 4 steps.
- ICU from May 5 2014, collapsed right lung due to tumour, small pulmonary embolism (left), tumours growing in mediastinum left and right, dvt lower right leg
- Plan seems to be bronchoscope next week to see if tumour can be lasered and stent inserted in right bronchus to reopen air access to lower parts of right lung. If that is successful might be able to have brachytherapy to worst tumour, otherwise no more options for external radiotherapy.
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05-12-2007, 05:09 AM
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#34
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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I'm so sorry-
Oh Sheila I can hear the pain you're feeling and am so sorry for you and your friend. My own friend whom I met here is also going though a tough time fighting this so I do understand your sadness. Please know both of you will be in my thoughts and prayers and I hope your friend will be free from pain and at rest soon.
huge hugs
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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05-12-2007, 06:56 AM
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#35
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Senior Member
Join Date: Nov 2006
Location: London, England
Posts: 96
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Oh Sheila, I feel for you so much and am so very sorry to hear of what you and your dear friend are going through. I am sending you hugs from over the ocean, and hope that you both find some peace and loving moments together in the next few days.
__________________
Caroline
Diag. March 10th 2006, aged 46.
Invasive ductal carcinoma, 2cm + multifocal. Stage 2, Grade 3
HER2+++, ER+/PR+
Right mast. May 2006. 6 of 20 nodes positive
FEC x 4, taxotere x 4; port implanted after 6 cycles
Rads x 25
1 year of Herceptin ended Nov 07.
Arimidex 5 years
Considering reconstruction, maybe soon...
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05-12-2007, 10:13 AM
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#36
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Senior Member
Join Date: Jan 2007
Posts: 144
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Shelia,
My mom passed away 26 years ago from lung cancer and I know how hard it is to see their pain. Remember that you are one of the best things in her life and I will pray for you and her that there is no more pain and she passes to a better place in peace. I know it is hard to be strong through all this, but we are all here for you.
Peace be with you and her,
Emelie
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05-12-2007, 10:56 AM
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#37
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Oh, Sheila, can any pain be as bad as that which comes to us when those we love so much are in pain and we can't help them. Only love them more. I can't imagine what it must be like to lose such a special friend as yours. What a treasure to have had each other for all this time and to have been there for each other as you fight the dreaded cancer battle. I hope you can find a way to have peace as your friend prepares for her "new" life. Much love and hope for a better tomorrow to you and to your special friend. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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05-21-2007, 09:27 AM
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#38
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Sheila Dear, I am so sorry to hear about your friend, I, too have lost 3 close friends to cancer and it is becoming a bit overwhelming. My love and prayers go out to you at this sad time. May God hold you warmly in his arms as he cradles your friend today. Love, Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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