Is anyone aware of this Moffitt Oncology Center and their supported clinical trials? I am so excited to read this news...it sounds to me like my hospital will now have access to better clinical trials! I am praying for a vaccine trial and already emailed my nurse navigator to put me on the list!!
http://www.nccn.org/about/news/newsinfo.aspx?NewsID=350
Affiliate Research Project
The NCCN Oncology Research Program has qualified Lehigh Valley Health Network, Lehigh Valley, PA, as the latest addition to its Affiliate Research Project. Lehigh Valley Health Network is a community-based affiliate of Moffitt Cancer Center—one of the 23 NCCN Member Institutions.
FORT WASHINGTON, PA – The
National Comprehensive Cancer Network® (
NCCN®)
Affiliate Research Project (
ARP), developed by the
NCCN Oncology Research Program (
ORP), has qualified
Lehigh Valley Health Network (
LVHN), a member of the Moffitt Oncology Network (MON) of
Moffitt Cancer Center in Tampa, Florida, as a community-based research affiliate for the project. Moffitt Cancer Center is one of the 23
NCCN Member Institutions.
Located in Lehigh Valley, Pennsylvania, LVHN is operating as an ARP site under the leadership of Suresh G. Nair, MD, Medical Director for Research and Principal Investigator, LVHN, and is the ninth community-based NCCN Member Institution affiliate to qualify for the NCCN ARP, increasing the scope of potential patients for the actively accruing ORP clinical trials. LVHN joins another Moffitt Cancer Center MON member,
Norton Cancer Institute in Louisville, Kentucky, as an approved research site for NCCN ORP-supported trials.
Lehigh Valley Health Network will have access to new and innovative cancer drugs for patients in collaboration with NCCN Member Institutions, and Principal Investigators of NCCN-funded studies will have access to LVHN as an NCCN-qualified community site.
"NCCN is excited to collaborate with Lehigh Valley Health Network as the newest research affiliate to be approved for the NCCN ARP," said Diane Paul, MS, RN, Vice President, Oncology Research Program, NCCN. "Patients and investigators alike will benefit as we continue to add highly qualified, community-based research sites to the project."
The mission of the NCCN ARP is to improve patient outcomes and advance medical science through clinical research conducted collaboratively among the 23 NCCN Member Institutions and their community-based affiliate members.
In addition to LVHN and Norton Cancer Institute, affiliates within the project include AtlantiCare Cancer Care Institute, South Jersey Healthcare, and Virtua, affiliates of
Fox Chase Cancer Center; Bozeman Deaconess Hospital, MultiCare Health System, and Wenatchee Valley Medical Center, affiliates of
Fred Hutchinson Cancer Research Center/
Seattle Cancer Care Alliance; and Medical Center of Central Georgia, affiliate of the
University of Alabama at Birmingham Comprehensive Cancer Center.
__________________
39 year old wife, mother of one and nurse.
April 20, 2012: Dx Invasive Ductal Carcinoma
April 25, 2012: ER+(5%), PR-, HER2+++
May 10, 2012: BRCA 1,2 Negative
May 23, 2012: MUGA Scan EF 70%
May 31, 2012: B/L Mastectomy. 2/2 nodes removed and CLEAR!! Power Port placed. 2 Drains. 2 Expanders placed
June 5, 2012: Drains OUT! Ahhhh..
June 12, 2012: Final Pathology Report, .8x.3cm tumor. Micromets to 1 node .35mm under cytokeratin staining. Stage 2A. Onc says "you are lucky to have found this early"
July 10, 2012: Started 6 rounds of TCH with weekly H
Sept 5, 2012: MUGA 65%
Sept 20, 2012: CAT scan of brain clear!
Oct 23, 2012: LAST TC! AMEN! Continue Herceptin every three weeks until July 2013.
Nov 19, 2012: Port out!
Dec 5, 2012: Started radiation
Dec. 10, 2012: MUGA 65%
Dec. 13, 2012: Turned 40. BEST BIRTHDAY EVER!
Jan 23, 2013: Last radiation. Told I am NED. Continue Herceptin every three weeks till July 2013.
Jan 29, 2013: Begin 5 years of Tamoxifen.
Feb 28, 2013: CT Scan with Contrast of lungs. 5mm and 4mm nodules of unknown origin. Rescan in 3 months.
Mar 6, 2013: EF 60%
May 8, 2013: Exanders out, implants implanted...abd. lipo and fat moved up. Girls are looking good!
June 3, 2013: CT Scan with Contrast of lungs. Previous nodules gone. New nodules (2mm and 3mm) found. Rescan in 3 months. So sorry I opened this can of worms...
June 11, 2013: EF 60%
June 25, 2013: Last Herceptin. wow...
Aug 20, 2013: Tumor markers within normal limits. Xray to sore left ribs shows no disease or fractures.
Sept 9, 2013: CT of lungs shows no disease. Closing this can of worms and moving on.
Nov 20, 2013: Tumor markers within normal limits. Severe Vit D deficiency, started on prescription Vit. D. Blaming chemo for this.
Feb 2014: Tumor markers within normal limits.
May 2014: Tumor markers within normal limits. Graduated to twice yearly onc appts.
Oct 2014: Tumor markers within normal limits.
May 2015: Tumor markers WNL. Bone density scan fine. Bone scan and xray of ribs shows "something" 4th right rib. Could be healed fracture but if it is healed why does it hurt?
Nov 2015: Tumor markers WNL. Follow up bone scan clear.
Feb 2016: Syncope! WTF? Dizzy too. Brain scan clear, ECHO EF 60%, Halter Monitor shows heart is fine. Viral? I will never know.
June 2016: Tumor markers WNL.
Oct 2016: Stabbing pain right eye. Long story short, trigeminal neuralgia.
Nov 2016 Brain MRI clear.
Jan 2017: Tumor markers WNL, still getting weird pain right rib area, and sometimes right upper chest. Xray x2, Bone Scan, Breast MRI all clear. Scar tissue? Rads. I may never know.
www.onmywaytosurvivorhood.blogspot.com
www.thechemobag.com
www.facebook.com/thechemobag
Linear Mode
