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10-09-2007, 12:17 AM
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#1
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Senior Member
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
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I am pretty concerned, help!
I am pretty concerned and trying to stay calm. About 48 hours ago,I started with some mild pain (but consistant) under my ribs on the right side (not my ribs) and was very sore to the touch. I am also having some back pain and pain in my side. It has got prgressively worse and right now I am pretty nauseated and running a low grade fever (99.9). It's 3:00am and I am awake because I rolled over and almost went through the roof. It hurts to even sit up for more than a minute.
Please tell me that liver mets don't come on like this. Could it be gallbladder or appendix or something? If it wasn't so far over on the side, I might think it was my stomach. I am actually thinking about calling the doctor (I've never done that in the middle of the night). Definitely a little worried...
Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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10-09-2007, 12:35 AM
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#2
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Call whoever you need to call and take care of yourself!
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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10-09-2007, 12:44 AM
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#3
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Senior Member
Join Date: May 2006
Posts: 157
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Kelly,
I am sorry you are going through so much pain, but it can be from anything, not necessarily liver mets. I had several small liver mets and I never had any pain, nausea or fever. But if you are in pain, call your doctor right now, do not worry about how late it is.
I hope that you will feel much better soon.
Hugs,
KarlaV.
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10-09-2007, 12:46 AM
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#4
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Senior Member
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
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CR_P!! This is my luck- hubby is away in Switzerland and I have all three boys and they start school in a few hours. My onc is gonna love this wake up call.
Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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10-09-2007, 01:16 AM
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#5
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Senior Member
Join Date: May 2006
Posts: 157
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Kelly,
If you do not want to call your oncologist that late, take some pain medication ( I like Motrin), and see how you feel. This will help you to get some sleep. And call him in the morning and let him know about your pain, he probably will order some tests like an ultrasound to find out what is going on.
I do not think you have liver mets, just my opinion.
Take care,
KarlaV.
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10-09-2007, 02:52 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Kelly...
Honestly, I'm thinking it's your gall bladder, but if it's THAT bad, you should definately get it checked out as pain is not comfortable AND the anxiety of the unknown is more painful than the known....I know, I'm waiting for the results of a breast mri I had on Sun...AND I'm feeling some aches in the area you are describing also. ALSO, radiation can cause these aches too. Take care and God bless. Let us know what you find out.
Rhonda
Here are past posts on the discussion...might help ease your mind.
http://her2support.org/vbulletin/sea...earchid=140192
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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10-09-2007, 03:04 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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This sounds like a bad case of the stomach virus, appendix or gallbladder. Mets do not cause such pain in the beginning - not through the roof pain. Go to the emergency room for that kind of pain now. Call a relative or neighbor for the boys (and for you - maybe you should not drive)
I wish I was there to help you - business traveling spouse replacement service.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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10-09-2007, 03:15 AM
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#8
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Senior Member
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
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Just checking in- Karla, I took some pain meds as you suggested and rested for a while. Not as bad, but still there. It's six or so and I'm gonna get the kids off to school (On top of everything, it's my middle son's b-day) and call in to the doctor. I'm really hoping that its my gallbladder or something (never thought I'd hear the day that I'd say that!) I find it hard to believe that pain would just start like that with the liver. Concerned though as it is exactly located there and wraps around my side.
Will let you know what happens. Thanks Becky, that would be a great service...
Love, Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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10-09-2007, 04:44 AM
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#9
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Kelly
I have to agree with Becky, sudden intense pain does not sound like mets...it sounds like appendix, gallbladder or kidney stone....you do need to get it checked out at the E.R. These things never occur when its convenient...as if it ever is! Sending you my prayers that this episode gets resolved quickly and is over.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-09-2007, 05:52 AM
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#10
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Guest
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Kelly,
Hopefully, you've called a doctor by now and your pain is resolved. I've had both gallbladder and appendix and was in severe pain with both. I didn't have nausea with gallbladder but did with appendix. Both can come on slowly over time, or very quickly, although I believe when the pain comes that quickly it's more likely appendix. My appendix started about 8:00 in the evening and by ten the next day I was on the operating table. Gallbladder took months of intermittent pain before it got that bad. Don't walk, run to the doctor. And please let us know how you're doing.
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10-09-2007, 06:25 AM
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#11
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Oh Kelly, by now I hope you are getting some help. Husband out of town, first day of school for three little boys and birthday for one of them-- it sounds like the perfect set up for mjommy having a gall bladder attack or appendicitis. Life goes on. Please let us know what happens.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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10-09-2007, 06:31 AM
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#12
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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geez...
Geez Kelly A, what a bummer. This sounds like Murphy's Law - all this pain in the middle of the night, husband is out of town, and it's your son's birthday.
I will keep all my fingers and toes crossed for you that this is NOT
mets. It sure sounds like something acute like appendix or gallbladder.
Careful you don't sprain your ankle or crack a tooth - that's how "Murphy's Law" days seem to end. Keep us posted - we're all worried for you.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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10-09-2007, 09:59 AM
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#13
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Senior Member
Join Date: May 2006
Posts: 157
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Kelly,
I hope you are pain free by now, and that your doctor found the source of your pain so that you can celebrate your son's birthday without pain and worry. Happy birthday to your son.
Please, keep us posted.
Hugs,
KarlaV.
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10-09-2007, 10:59 AM
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#14
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Kelly,
I hope you will keep us informed. Many are concerned, thinking and praying for you.
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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10-09-2007, 11:06 AM
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#15
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Kelly,
Do get it checked out, but don't panic. I had basically no symptoms - certainly no pain - when I was diagnosed with extensive liver mets.
That was meant to make you feel better - your pain is not necessarily anything cancer related at all!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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10-09-2007, 11:07 AM
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#16
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Hope You're At The Doctor Now!!!!
KELLY -- I CONCUR WITH THE MEDICAL PROFESSIONALS ABOVE! No time for humor, I know. Sounds like APPENDIX -- which must be attended to IMMEDIATELY! I really mean that. It can be a benign matter of life and death. Not to scare you, but to get you MOVING...
Or, it could be gall bladder. Both very painful, inconvenient and unwanted to be sure. Call a friend/family to cover. Where are husbands when you need them? Not in Switzerland...
I do *not* think liver mets. I had multiple tumors in liver and NONE of your symptoms. No pain. No nausea. I felt fine! Just a little metastatic bc is all.
Our thoughts and prayers are with you -- no matter what the source of your urgent pain! Anxiously waiting to hear from you, Kelly...
With love,
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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10-09-2007, 12:21 PM
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#17
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Kelly,
I'm assuming by now you have seen the doctor and know what is causing you to feel so badly. I can't wait to hear from you.
Sending love and peace your way.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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10-09-2007, 01:47 PM
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#18
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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kelly I hope you've seen the Dr by now and are feeling better. This definatly sounds like what I went through with gall stones before dx with bc...I used to go to the ER about once a week for a pain relieving injection before they finally removed the whole thing!
Please keep us posted
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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10-09-2007, 01:51 PM
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#19
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Senior Member
Join Date: Aug 2006
Posts: 492
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Kelly I am betting on gall stones because the same sudden symptoms happened to me. It was like a labor contraction under my ribs that wouldn't subside. Did you anything fatty a few hours beforehand? I took some pain meds and that helped- but uugghh it was not pleasant! Had the gall bladder out with the ovaires.
Hope you are feeling better this afternoon.
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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10-09-2007, 02:07 PM
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#20
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hoping you feel better
Hi Kelly,
I'm thinking of you. If it is your appendix, I don't think you are supposed to take pain meds. I'm sure by now you are in treatment. I hope all goes well. Your son will never forget this birthday. I'm sure you will find a way to celebrate later in the week if necessary. We are all thinking of you.
Barbara H.
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