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03-05-2007, 11:23 PM
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#1
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Curly Hair
My last chemo was 8/23/06 (but who is counting?). Anyway, I have a silly question. My hair came back in gray and curly. It is now about an inch and a half long...have not cut it at all... I had it colored red with blonde highlights and I get a lot of compliments. It was never curly before. Will it stay curly? I am having a lot of fun with my new look. I may dye it purple next time, it is just too much fun and I do not feel like being traditional anymore.
Catherine
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Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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03-05-2007, 11:46 PM
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#2
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Senior Member
Join Date: May 2006
Posts: 143
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Hi Catherine!
Mine came in super super curly, too. I finished chemo 16 months ago and it's now very wavy. One hairdresser told me that the curl usually lasts about 2 years after chemo and that seems to be about what I'm heading for. Actually, I love the amount of curl I have now, but figure it will probably straigten out eventually.
Isn't it great just to have hair!
linda
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03-06-2007, 06:30 AM
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#3
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Isn't it great. I finished chemo in May 06 and my hair came back salt & pepper and curly. I've had it cut four times since then and while it's not as curly as at first, I still get good waves.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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03-06-2007, 07:25 AM
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#4
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Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
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When I lost my hair in 2002 while on A/C it came back really curley. I LOVED it...However, after a few cuts it is now straight as a board. I use to have naturally wavey hair and I would love to have that back. I even tried getting a perm but it would not hold.
So, at this point I am just glad that the other treatments did not cause hair loss. Have fun with it!!! I sure did...
Betty
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
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03-06-2007, 08:14 AM
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#5
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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Mine came back curly and stayed that way for a year, until I started with Navelbine, now I would say it is wavy to semi-straight, but it still has the body (which I needed).
__________________
Andi
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Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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03-06-2007, 08:32 AM
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#6
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Senior Member
Join Date: Aug 2006
Location: Rowlett, TX
Posts: 138
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Oh I WANT curly hair!!! My last chemo was Dec 27, and my head is now showing a shadowing of dark..... so my hair is finally growing again. Guess I'm going to have to do a 'curly hair' dance each morning to promote this for me (*smile*).
Janet
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Janet in Rowlett Texas
Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007: Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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03-06-2007, 08:42 AM
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#7
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Senior Member
Join Date: Feb 2007
Location: Suwanee, Georgia.
Posts: 56
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Janet, I will keep my fingers crossed for you 
__________________
1/2002 DX stage IIa IDC er/pr+ her2 3+ positive: insitu ductal carcinoma right breast, 3cm 8 node removal all neg;lumpectomy;4 rounds A/C; 33 rads
tamoxifen
4/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; nodes 9 of 12 positive largest 1.5 cm; 28 rads;stopped tamoxifen;went on Femara/lupron
8/2004 DX Local Reacurrance; er/pr+ her2 3+ positive; dbl mas reconstructive surgery w/tran flap; no chemo or drugs
11/2005 DX Local Reacurrance; er/pr+ her2 3+ positive; Taxol/Herceptin 1x weekly for 12 weeks; Herceptin for 9 months 1x 21 days
12/2006 DX Local Reacurrance; er/pr- her2 3+ positive; Her 2 rechecked with FISH her2+++ er/pr-
3/9/07 Started Tykerb (Lapatinib) 1250 mg/once daily
Xeloda (Capecitabine 2000 mg/m2/daily 1-14 every 21 days
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03-06-2007, 09:37 AM
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#8
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hi Catherine! I've had lots of smiles thinking of you in first red and then purple hair. Then as I let my imagination run wild, I saw a group picture of many on the board "decked out" in multi color hair and huge smiles!
My hair came back curly and grey/brown too! I'll just enjoy whatever it is at the moment. It seems to change colors every now and then! Weird, but fun! I'm just glad to have hair and not need to wear my hats!
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-06-2007, 09:45 AM
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#9
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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I finished chemo in July and my hair came in extremely curly, about an inch and a half now, very dark, almost black and a lot of grey. I have had one cut and they tried to color it a beigy blonde but my hair wouldn't take up the color properly so it is more of a mousey brown still with some grey. I am not fond of it at all. The curls are so tight, I can't do a thing with it. When I wake up in the morning I look like Don King! I have tried every hair product they make to try and style and the best I came up with is this Phyto Gel but it doesn't do much except add some shine and tame the "fro". I don't mean to sound ungrateful as I am thrilled to have hair back, but I miss my hair from before chemo which I loved. I really miss my color from before too.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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03-06-2007, 10:06 AM
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#10
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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my hair came back curly too..same color...dirty blonde...and it was thicker than before. the curl did not last...which was OK, it was fun while it lasted! I am so glad to have hair!!! I have a short haircut now...and last month I had it bleached at the hairdressers. Have fun with your 'new' hair!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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03-06-2007, 05:58 PM
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#11
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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My hair came back poker straight! It always had a nice natural wave to it and was auburn in color. When it first started growing it was all gray and now as it has grown it is brown with just a slight bit of gray. Guess chemo affects hair growth in many different ways.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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03-06-2007, 06:17 PM
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#12
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Senior Member
Join Date: Dec 2006
Location: Columbus, Ohio
Posts: 33
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Mine came back straight also. With quite a bit of gray.
Susan
__________________
dx IDC @ age 39 Feb '06
stage 2 er/pr-, her2+
neoadjuvant chemo 4 A/C completed April '06, 12 weekly taxol/herceptin completed 8/06, lumpectomy 8/15/06 NED!
33 rads completed 10/06
weekly herceptin thru May 2007 --Stopped herceptin 4/07 due to drop in LVEF. Started Herceptin again 5/07
Final Herceptin 6/12/07
Port Removed -8/13/07
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03-06-2007, 09:00 PM
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#13
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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curly hair
Janet11,
I am excited for you and the shadowing that you are now seeing. That is a great start. The curly is really fun. Congratulations on being done with chemo.
All the best, Catherine in Oregon
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
Last edited by Catherine; 03-06-2007 at 09:02 PM..
Reason: forgot to add reply to name
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03-06-2007, 09:06 PM
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#14
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Love the hair!
I had what I referred to as naturally "frizzy", auburn hair before. It came back curly and darker, with only a little grey at the temples which I had before. I love my new hair, wear it much shorter than before when I mostly wore it long.
Here's to hair of any kind!
________
VOLCANO VAPORIZER
Last edited by sassy; 08-22-2011 at 09:10 AM..
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03-07-2007, 03:38 PM
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#15
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Mine came back in very curly. But now after 2 years it is now back to the way it was before. At least for the curls it is. My hair is darker with more patches of gray.
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03-07-2007, 03:48 PM
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#16
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Senior Member
Join Date: Sep 2005
Posts: 312
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My hair came back curly and after I was thru with Herceptin, it really started to grow. Maybe a little more gray, but basically the same color. I have always had naturally wavy thin, blah, hair. I always envied men who just washed their hair and left for work while I had to waste time fixing it.
Well, now, I can just let it dry, brush or finger lift it, and go! I love it and will miss these curls when they go.
__________________
Janet
Endometrial Cancer 2002
Mammogram 11/2004
Lumpectomy 12/2004
Stage 1, 9mm DCIS, grade 2, Her2+++, ER/PR negative
Refused A/C as recommened by two oncs.
35 treatments of radiation that ended March 4, 2005
Changed oncologists and began
Taxotere/Herceptin August 2005. Finished Herceptin July 2006
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03-07-2007, 05:51 PM
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#17
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Senior Member
Join Date: Dec 2005
Location: virginia
Posts: 99
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Straight !!!!
So glad to hear from some others that did not have those nice curls. I was really looking forward to that....always had very straight hair. It came back in straight and gum metal grey with a wonderful fuzzy feel !! What a hoot !! Now out of chemo for a bit over 2 years and hair is back to natural color...straight...... but do have one wild patch.....never mind !!
Hugs, Bonnie
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03-08-2007, 01:34 AM
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#18
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Senior Member
Join Date: Jan 2007
Posts: 368
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I will be happy just have hair again. 
Right now I have "burnt stubble" that's driving me crazy and I'm fixing to shave as soon as I feel up to it.
__________________
12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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03-08-2007, 09:18 AM
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#19
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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My hair also came back curly with a lot of gray. I was able to get highlights to hide the gray. Before chemo, my hair had just a little bit of wave to it, which I used to use a straightening iron to get it straight.
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03-08-2007, 11:04 AM
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#20
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Vanessa
I see NO gray hair in that picture girl!
Lisa lost her hair 3x from chemo (Andromyacine/Cytoxin/Taxol then Navelbine then Gemsar) and once from WBR. Came back different EACH time! Kind like having a super expensive hair dresser but you have no say on the final style! Love it and go with the flow!
Love and Light
Mel
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Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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