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Old 12-11-2012, 03:26 PM   #61
mamacze
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Re: Sheila has earned her wings

Chrisy - that was not Woo Woo; that was Sheila - and all of our other shining stars...how lucky for you that you witnessed their arms wide open.
xoxo
Kim from CT
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
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Old 12-11-2012, 05:22 PM   #62
Jen
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Re: Sheila has earned her wings

http://www.ottawafuneralhome.com/sit...=841667Rawlins Here is her Obituary on the funeral homes website.

Ottawa Funeral Home
1111 Lasalle Street
Ottawa, IL 61350
(815) 433-0300
http://www.ottawafuneralhome.com/?page=directions
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Old 12-11-2012, 05:36 PM   #63
Jen
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Re: Sheila has earned her wings

If you need any additional information my phone # is 815-250-3136 or PM me on here.

Sincerely,
Jennifer Evans
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Old 12-11-2012, 06:03 PM   #64
Yorkiegirl
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Re: Sheila has earned her wings

Jen I am so very sorry for your loss of your Mom. Sending out many prayers for you and family during this most difficult time.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 12-11-2012, 06:19 PM   #65
chicagoetc
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Re: Sheila has earned her wings

Just wondering. Besides hopefully Donna and myself, are there other Her2support folk who are close enough to be there Sunday and/or Monday? Melanie
__________________
Diagnosed: 7/13/07 (or 7/7/07)
Surgery: 8/15/07 Modified Radical One Side with Lymph Node Dissection
Pathology Report: ER/PR-, HER2+ with FISH at 8.4 copies, Grade 3, Stage IIIa, 3.2 cm tumor plus 4/19 positive lymph nodes
Portacath: 9/7/07
Chemo: 9/14/07 with AC (every three weeks) for four rounds
Physical Therapy for ROM Loss / "Cording" (but not Lymphodema)
Taxol + Herceptin weekly (started 12/2007 with 8 of 12 Taxol)
Radiation: (28 rads from 3/07 to 4/07)
Reconstruction (silicone implant)
Herceptin done (10/08)
Cognitive Remediation (11/08 - 12/08)
Lymphedema Diagnosed 5/10/10 (almost 3 years post cancer diagnosis)
Lymphedema Rehab 9/10/10 - 11/10/10
Six years NED...7/7/2013!
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Old 12-11-2012, 10:11 PM   #66
caya
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Re: Sheila has earned her wings

Jen I am so sorry for your loss. I will never forget your mother, she was a pillar of strength and grace here.

May her memory be a blessing to you and your family.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 12-12-2012, 01:35 AM   #67
radiant
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Re: Sheila has earned her wings

What a great request to ask us to do in your mom's honor. No Problem. Hugs,

Kim
__________________
------------------------------
Dx Stage 3C 2005, triple +, tons of lymph nodes as well. FEC, surgery, TCH, rads, herceptin 1 year. And, Aromasin.
2007 - recurrence to medistinal lymph node, Abraxene and Herceptin - took it down 50%
2008 - on Arimidex/Herceptin - stable lymph node.
2009 - stable on Arimidex/Herceptin
2010 - lymph node progression and liver mets.
2010 - went on Gemzar, Navelbine, Herceptin - Navelbine and Herceptin took liver mets down. lymph node slightly progressed.
2010 - did Xeloda & Tykerb - MAJOR progression in liver in only 6 weeks.
Dec 2010 - present - Ixempra/Avastin/Herceptin/Fasoldex - regressing
June 2012 - chemo break
Sept 19, 2012 - start t-dm1. Chose this over going back on Ixempra.
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Old 12-12-2012, 05:42 AM   #68
Paula O
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Re: Sheila has earned her wings

I'm so sorry.

(((Hugs))),

Paula
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Old 12-12-2012, 09:20 AM   #69
Marlys
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Re: Sheila has earned her wings

Jen, I am so sorry to hear about Sheila. My mother died on December 10,1947. I was 9 years old. I have so often wished I could have known her as an adult. I want you to remember the wonderful opportunity you have had in having this beautiful woman for a mother. We were both nurses and I have always felt especially close to her. I will miss her wisdom and loving demeanor forever. I want you to know that a memorial page will not make her loved and remembered more.
Love & Hugs,
Marlys
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Old 12-12-2012, 10:57 AM   #70
Shobha
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Re: Sheila has earned her wings

Jen, so sorry for your loss. Sheila was full of grace and incredible fighting spirit - I will also remember her forever.

hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 12-12-2012, 12:11 PM   #71
Joan M
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Re: Sheila has earned her wings

To my warrior sister Sheila, RIP. Your perseverance and spirit are an example to all of us and gives me strength. Missed you this year at SABCS.

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 12-12-2012, 05:07 PM   #72
Bill
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Re: Sheila has earned her wings

I'm so sorry to hear this. Sheila was truly one of a kind. I remember how excited she was back when I was perfecting my cupcake bush. Jen, you and the rest of your family are in my prayers.
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For Nicola
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Old 12-12-2012, 09:21 PM   #73
Becky
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Re: Sheila has earned her wings

I have just returned from a business trip and came on only to find out this news. I knew it was coming but my heart is broken, broken in two.

Sheila was on this board before me and I joined in 2004. Sheila and I were roommates at SABCS many, many times. I got to know her very well in our travels and I truly love her as a sister. She was there for everybody on this board and I know she worried and cared for us more than herself but not more than her family. She was truly an amazing woman. I have not stopped crying for the last hour since I read that Sheila passed on and that she has been gone for two days and I didn't even know.

I have dreaded this day for your family and for us because Sheila was so incredible. She taught me to never give up and that something wonderful could be just around the corner if you would only look. I was so fortunate to have met Sheila and was able to really know her year after year. You were lucky to always have her and we (and I) were lucky to have her alittle bit.

I will never forget Sheila. Her spirit and tenacity. She never gave up and made everyone feel they could do anything. I loved her so much.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 12-13-2012, 08:35 AM   #74
Gaver
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Re: Sheila has earned her wings

I am so sorry for your loss,Jen...so sorry...just remember she will always be with you...ALWAYS....May God help you and your family through this terrible time....Your mom will be at peace now....
__________________
Warm regards,

Geetanjali,Gaver's daughter one of the strongest women I know n a cancer fighter
---------------------------------------------------
11/10/2012 mom was diagnosed with a 3 x1.5 cm malignant lump in upper quadrant left breast with a 1x1.5 swollen left axilla node
12/10/2012 confirmed carcinoma left breast lump through FNAC
15/10/2012 CT Scan clear Bone Scan clear no Mets anywhere (Thank God)
16/10/2012 Core Biopsy Results show Stage IIB Grade III ER + 95% PR + 5% N Her2NEU +++
23/10/2012 MRM done Entire breast along with level I n level II Axilla nodes removed.

31/10/2012 sample biopsy 01/13 nodes positive

TCH regime Taxotere(Docetaxel) Carboplatin Herceptin

T C & H for 6cycles n H alone for another 11cycles after that[/B]

6 Cycles TCH--done 12 cycles H done
05 cycles H to be done


~~Eowyn,The Return Of the King,LOTR : "Courage,Merry,courage for our friends "
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Old 12-13-2012, 10:32 AM   #75
MJo
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Re: Sheila has earned her wings

Sheila was a a very fine woman. She was loving and encouraging when I was crazy and miserable from treatment. I will join my sisters on this board in doing random acts of kindness in her honor.

I love what people have said about parent in spirit. My father passed in 2002 and I am certain that his spirit stuck around for a while to make sure we were ok.
__________________
MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 12-13-2012, 12:01 PM   #76
caroline96
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Re: Sheila has earned her wings

Sheila was always strong in spirit. She was also caring and supportive of everyone here. I am sure even in heaven, she will always be Sheila that we all knew and watch over us.

I will certainly do random acts of kindness in her honor.
__________________
Diagnosed 05/2003 as stage 1 IDC and stage 0 DCIS (2 tumors) through exicisional biopsy of right breast.
Tumor biology: ER +, PR +, HER2 --, grade 2. Ki67: 35% (high)
Lymph nodes involvement: 0/18 lymph nodes.
Treatments: Lumpectomy, 4 cycles of Adriamycin and Cytoxan, followed by 33x radiation. Tamoxifen for 5 years. 7 years NED.

Recurrence: diagnosed on 12/2/2010 as stage 4 BC. No breast involvement.
Mets: lung (one tumor and 12 intrapulmonary nodes), bones.
Tumor biology: ER+, PR ?, HER2 + through FISH ratio.
Treatments:
12/2010: Xeloda.

12/2010: Changed Dr (he refused to retest for HER2)
01/2011: Added Zometa, crashed @ ER due to severe reactions to Zometa but continue on Zometa. Informed of HER2+ status when in hospital.
02/2011: Added Herceptin.
06/2011: Bones clear! But progression in lung....Changed tx to Taxol. Now on Taxol, Herceptin, Zometa combo.
02/2012: Stopped Taxol due to lymphedema.
06/2012: Oopherectomy, started Femara.
02/2013: NED.




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Old 12-14-2012, 04:19 AM   #77
KsGal
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Re: Sheila has earned her wings

Many prayers to you and your family for peace and strength during this difficult time. Chrisy, I loved your story about the shooting star, and what a wonderful gift that was.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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Old 12-14-2012, 03:50 PM   #78
jml
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Re: Sheila has earned her wings

Dearest Jen~
I have no words to begin to express my sadness at the loss of your beautiful Mom and the heartbreak I know your family is enduring right now.
So instead I'll share with you beautiful words that I clung to when I lost my dad in April, and bring tears to my eyes and a smile to lips whenever I read them again.

"A luminous light remains, Where a beautiful soul has passed."
Antoine Boveau

"Death is nothing at all..."
Henry Scott Holland
http://www.wowzone.com/death.htm

God bless you Shiela and may comfort come quickly to the hearts of your family, friends and all who love you so dearly, including your sisters here.

Jessica

Dx-5/17/02 - 33 yo; Stage IV - L IDC w/single liver met
1) Herceptin + Navelbine x 8 weeks - No response; progress to innumerable,immeasureable liver mets
2) ISIS 2504 + Herceptin - 6 mos, partial response
3) Taxol + Herceptin x 13 weeks to NED!
NED for 1 year
9/04 - Single liver lesion recurrence
Taxol + Herceptin - on/off to beat back lesion
12/05 - R Hepatectomy; Liver NED until 2009
3/06- Local recurrence - Left breast, IDC & DCIS, but holding treatment while continue to heal from Hepatectomy.
12/06 - L mastectomy + reconstruction through 8/07
10/07 - Recurrence - supraclav nodes
4) Gemzar + Herceptin - on/off controlling nodes thru
9/08 - 7wks Rads to supraclav nodes
10/08 - Acute Renal Failure - nodes in belly stricturing kidneys. placed permanent ureteral stents
Back on Gemzar + Herceptin, but no longer responding.
5) 05/09 - Tykerb + Xeloda - partial response x 5 mos
6) 10/09 - Xeloda + Herceptin - no response, disease progresses
7) 2/10- Ixempra + Herceptin - partial response x 12 wks.
Discovered single brain lesion x 4mm & liver lesions growing while screening for TDM1 + PI3Kinase study.
6/10 - Novalis to treat brain met - SUCCESSFUL!
8) 6/10 - Chemo-embo w/Adriamyacin to de-bulk liver lesion.
9) 8/10 - Screened & Started TDM1 EAP
Immediate response, disease in belly responds dramatically.
2/11- questionable progression of lung nodules
Discontinue TDM1
10) 3/11 - PI3Kinase + Herceptin - intial good response in 1st 6 weeks but LFT's elevated.
11) 7/11-Discontinue PI3Kinase + Herceptin study;
Disease progression - 2 small lesions in colon – docs have never seen this before in BC
11) 8/11 –Start new combo Halaven+Herceptin
10/14/11 -Completed 3 cycles (9 wks)Halaven+Herceptin...
10/18/11 - Scanxiety time -1st scans since starting this regimen
Good interval response, continue on H+H!
10/25/11 – new 2mm questionable spot in brain? Due to Novalis or new disease?
Re-scan in 8 weeks.
1/3/12- Disease progression; 50%increase size & SUV-R lung, middle lobe 6cm lesion.
R supraclav node multiple, miscellaneous nodes in belly. Colon lesions fired up.
12)Herceptin+ metronomic Cytoxan + Methotrexate.
…on a hope & a prayer. Only chemo I haven’t been on is Taxotere.
Hurry up Pertuzumab & TDM1!
Follow Up Brain Scan on 1/18/12…pleasepleaseplease be okay. I can’t take much more.
1/18/2012- 8 new spots in 8 weeks since last Brain MRI
one 2cm spot in brain stem, one 2cm spot in R temporal lobe.
No symptoms, THANK GOD!
1/25/12 – Start WBR x 15 rounds
2/10/12 – Oral Cytoxan WORKING! Melted supraclav node & undetectable by US!
2/14/12 – FINISH 15 rounds WBR
6/12/12- Continuing on oral Methotrexate BID & Cytoxan qpm, but on chemo break
for 3rd week due to low counts.
6/15/12 – Yay! Resume chemoJ
6/25/12 – Chemo break again due to low counts L
6/28/12 – PET Scan & Brain MRI this week…
NED IS BACK!!! NED in the HEAD, NED in the BODY!
10/26/12 – Still NED in the HEAD, but single troublesome node in chest, precariously close
to superior vena cava/heart. Not a perfect scan, but pretty darn good.
Maintain current treatment and
Echocardiogram on 11/1 to keep an eye on node.
11/1/12 –echo shows normal cardiac function J & node non-threating,
but experiencing symptoms of Superior Vena Cava Syndrome (obstruction/compression)
12/3 - hold cytoxan & methotrexate bc counts too low.
12/13-moved up PET scan due to increased SVC symptoms
12/14 –No more NEDL node progression causing increased SVC symptoms
12/17 – repeat echo & new chest mri for closer look…
Sad, scared, heartbroken
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Old 12-16-2012, 11:40 PM   #79
Pray
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Posts: 1,173
Re: Sheila has earned her wings

Melanie, I had the honor and the pleasure of meeting Shiela's family today at the funeral home. Jennifer's heart is obviously broken as is the rest of her family. Shiela is so loved! What a wonderful large family she has. What good people they are. She had such a full and beautiful life. I will be thinking and praying for Shiela, her daughter Jennifer and all of her loving family as she is taken to her final resting place this morning. Gods blessings to the whole family this day. May the peace of the Lord be with them always. Your friend, Nancy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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Old 12-17-2012, 05:20 AM   #80
chicagoetc
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Posts: 196
Re: Sheila has earned her wings

Nancy, Thanks and glad you were able to go yesterday for the visitation and prayers. My apologies for not getting back to you earlier. Donna and I plan to be there this morning. I don't know that/if anyone else from HER2support can go (almost everyone being a very long distance from Morris/IL). But we can hopefully represent in small part how important she has been here and to so many others. Peace, Melanie
__________________
Diagnosed: 7/13/07 (or 7/7/07)
Surgery: 8/15/07 Modified Radical One Side with Lymph Node Dissection
Pathology Report: ER/PR-, HER2+ with FISH at 8.4 copies, Grade 3, Stage IIIa, 3.2 cm tumor plus 4/19 positive lymph nodes
Portacath: 9/7/07
Chemo: 9/14/07 with AC (every three weeks) for four rounds
Physical Therapy for ROM Loss / "Cording" (but not Lymphodema)
Taxol + Herceptin weekly (started 12/2007 with 8 of 12 Taxol)
Radiation: (28 rads from 3/07 to 4/07)
Reconstruction (silicone implant)
Herceptin done (10/08)
Cognitive Remediation (11/08 - 12/08)
Lymphedema Diagnosed 5/10/10 (almost 3 years post cancer diagnosis)
Lymphedema Rehab 9/10/10 - 11/10/10
Six years NED...7/7/2013!
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