HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 03-27-2007, 07:07 AM   #1
Emelie
Senior Member
 
Emelie's Avatar
 
Join Date: Jan 2007
Posts: 144
Unhappy Sad about mastectomy..

I just wanted to hear from someone who has actually had a mastectomy and if they felt sad too. The medical staff keep telling me this is the easiest part of the treatment. I am going in for surgery on Thurs. and I am feeling so sad all of a sudden. I know it has to go, but I am so scared of how I will look and feel afterward. Any thoughts, comments or suggestions are appreciated from you wonderful survivors.
Emelie
Emelie is offline   Reply With Quote
Old 03-27-2007, 07:17 AM   #2
Sheila
Senior Member
 
Sheila's Avatar
 
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Emelie

It is common to feel sad...you are losing a body part, with fear of losing femininity. I believe most of us have had those feelings. It has been 5 years since I had mine. But on the other side, I felt that although I was "losing" part of myself, it was diseased, and I didn't want it there to ruin the rest of my body. So while you are losing a part of yourself, you are gaining your health and your life in return. Depression and a sense of loss is very natural at this point....but the outcome you will have is much more important than the loss. Breasts don't make us women, its what is underneath in your heart that makes you an attractive person. Plus there are many alternatives, reconstruction can make you feel and look whole again. It is a personal decision. I hope you will try to look beyond the loss, you are still a woman, with or without breasts. I remember a point where I would get so irritated when I heard comments about women's breasts, I felt degraded as I no longer had both. But that has faded and a new life begins...without the cancer. Hope this helps...we have all been there.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
Sheila is offline   Reply With Quote
Old 03-27-2007, 07:59 AM   #3
Mary Anne in TX
Senior Member
 
Mary Anne in TX's Avatar
 
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
Hi Emelie!

It is a sad occasion any way you look at it! I tried everything I could to talk my surgeon into just doing a lumpectomy, even at the last minute when the anesthesiologist(sp) was getting ready to send me "night-night"! Even though I knew there was no chance (cancer too many places and in the nipple), I gave it my best so that I wouldn't be questioning my decision later. But the surgery went well, little or no pain, and I got clean margins. Most of all, I was so very grateful for being alive. The first three months after surgery, I felt like I was always doing the cover-up act, not wanting people to see me. But as time went on, I have learned to wear my prosthesis and clothes that make me feel "pretty" again. I'm still sad about having to go thru it all, but much, much happier that I did it and have a shot at more life! Take time to be sad and grieve. Then as you can, get back up and go again. You are still all you, with or without that breast. Even cancer can't take that "special who we are" out of us! Best wishes for a smooth ride on Thursday and the days ahead. I'll be thinking good thoughts for you! Life will still deliver some magnificent opportunities for you. mary anne
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
Mary Anne in TX is offline   Reply With Quote
Old 03-27-2007, 08:07 AM   #4
suzan w
Senior Member
 
suzan w's Avatar
 
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Smile

I experienced a great deal of sadness, from the moment I received the first call that my mammogram was suspicious. My emotions were, and sometimes still are, on such a roller coaster! I am so thankful that my treatment is going well and that brings me great joy. Then I think how weird to get great joy from such a devastating event! I have absolutely no regrets that I had a bilateral mastectomy... with no reconstruction. It still feels like a powerful decision to have chosen agressive treatment. I also think that the sadness comes from the loss of innocence that a cancer diagnosis brings. I used to think that cancer might be about the worst news I could get yet, it has given me a fierce drive to make every day the best that it can be.
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
suzan w is offline   Reply With Quote
Old 03-27-2007, 11:31 AM   #5
Audrey
Senior Member
 
Audrey's Avatar
 
Join Date: Sep 2005
Location: Ohio
Posts: 212
You're not alone in your feelings of sadness about the mastectomy...It's been almost six years since mine (and three years since I had the remaining breast removed as a precaution) and while I understood that it needed to be done, it's definitely a loss. I don't look the same or feel the same--I'm not the same at all since my cancer and in many ways I've changed for the better (more compassionate, closer to God, etc) but I will always bear these scars... I remember my someone asking my mother-in-law how I was doing these days and she replied, "Audrey's doing so GREAT, it's like it never even happened!" --I just shook my head, she'll never understand how much I've changed and how my mastectomy (even with reconstruction) is always a daily reminder...Hope I didn't just make you feel sadder! I'm actually very grateful to be alive, don't get me wrong, but there is always a bit of sadness with me, too, like I'll never feel carefree again.
__________________
Audrey

diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
Audrey is offline   Reply With Quote
Old 03-27-2007, 01:40 PM   #6
Emelie
Senior Member
 
Emelie's Avatar
 
Join Date: Jan 2007
Posts: 144
Thank you all for taking the time to share your experiences and emotions with me. As always, your words of wisdom and encourgement help sooo much. I too, share the joy of knowing that this step will hopefully allow me a long, full life ahead, but I also think you are all right when you say that cancer has changed you. I also have to agree with Susan, that I totally feel a "loss of innocence" since my dx. Thank you again ladies, and I'll be checking in after surgery.
Emelie is offline   Reply With Quote
Old 03-27-2007, 01:41 PM   #7
Malena
Senior Member
 
Malena's Avatar
 
Join Date: Mar 2007
Location: Italy
Posts: 32
You reaction is normal, dear Emelie! I was 35 when I had the mastectomy. At a first time the idea terrify me, but I was thinking a lot about the idea of femminility and about my body: at the end I was sure that I was not going to loose my appeal! I was going to fight for my life!
Two months ago I had the reconstruction and now I'm very happy. Ok, my breast has a lot of scars, but I feel good!
__________________
September 2005: Diagnosed of breast cancer at age of 35
October 2006: port a cath
4 chemos (epirubicin + taxotere) before surgery
February 2006: mastectomy + 10 nodes

4 cm tumor
, 1 node micromets , ER-PR-, Her2 3+
June 2006: started Herceptin
July 2006: stopped Herceptin for high heart toxicity
January 2007: reconstruction


Malena is offline   Reply With Quote
Old 03-27-2007, 02:12 PM   #8
Belinda
Senior Member
 
Join Date: Jan 2007
Location: Adelaide, South Australia, Australia
Posts: 144
Smile

Emelie - I've had both breasts off since Xmas, and feel mixtures of sadness and relief. I felt sad the last time I saw each one of them, then when I woke up in hospital, the sadness was there but also huge relief when the surgeon visited and reassured me he'd 'got it all' (first one) or 'couldn't see much of interest' (second one). It's normal to feel grief, but look forward as well to a sense of moving forward as well. And good luck - I didn't find either or my surgeries too hard on a physical level. In fact, I was grateful for the sleep, albeit anaesthetically-induced!Bx
__________________
Belinda
  • Diagnosed 3 Jan 2007, Stage IIb, Mastectomy and axillary clearance 10 Jan 07, 6 of 19 nodes affected, multi-focal cancer, HER2 positive. Second mastectomy (prophylactic). Chemo - AC 3 months, Taxol 3 months - then radiation 5 weeks.
  • Aug 2011 - Diagnosed with Stage IV mets to lung, sternum and 12 or so thoracic nodes - Rads to Sternum, then weekly abraxane and herceptin for 12 weeks.
  • May 2012- good scans - all nodes still about normal size, hole in sternum repairing, lung tumour 'obliterated'.
    Ongoing herceptin every 3 weeks. Bloods still all good! Life good!
  • March 2013 - recurrence - tumours in lungs and mediastinum (coughing up blood) - immediate radiation treatment to right lung and mediastinum, still on Herceptin, and 3 months of Vinoralbine - stable for a little while!
  • Coughing and breathlessness started again September 2013, treated as radiation-induced fibrosis (which can be seen on scans - albeit stable). ie puffers, steroids
  • January 2014 - cough becomes bloody again, scans show big mediastinal tumour wrapped around and choking the life out of my right main bronchus, radiation deemed off limits as my lungs are hypersensitive to radiation (measured by existing damage from 2013) .....................- ie I am in the 5% of people likely to suffer severe radiation damage to the lungs that they warn you about before starting treatment! (so special! :) )
  • Started chemo Feb 2014 - continuing Herceptin (continuous since Aug 2011), with Carboplatin and Gemcitabine. Discontinued Gemcitabine because of se's. Starting cycle 5 Herc/Carbo 5 May 2014.
  • Meantime.....coughing and breathlessness increased to SCARY levels with racing heartbeat that won't slow down, breath that won't come back, even just walking to the bathroom or up 3 or 4 steps.
  • ICU from May 5 2014, collapsed right lung due to tumour, small pulmonary embolism (left), tumours growing in mediastinum left and right, dvt lower right leg
  • Plan seems to be bronchoscope next week to see if tumour can be lasered and stent inserted in right bronchus to reopen air access to lower parts of right lung. If that is successful might be able to have brachytherapy to worst tumour, otherwise no more options for external radiotherapy.
Belinda is offline   Reply With Quote
Old 03-27-2007, 05:25 PM   #9
cafe1084
Senior Member
 
Join Date: Nov 2006
Location: West Virginia
Posts: 105
Emelie
You know, I was, I thought, fine with my mastectomy decision until the morning of. My sis, mom, and a friend all piled into the car with me and I drove, crying all the way. I remember feeling the weight of the world on my shoulders that morning. My car full of people seemed so carefree about the whole day, or maybe it was just me feeling overwhelmed. They felt the decision was a no-brainer. Then again, it wasn't their breasts being taken. I knew it to be the right decision to hopefully save my life, but for someone who never gave much thought about her breasts, I surely do miss them. Because of the tumor location, I had barely enough skin to sew back together and the left becomes very irritated and sore, rubbing across my top ribs. I have a hard time feeling feminine with the hair loss to go along with the breast loss and finding attractive shirts is difficult, but the upside is, when you are healed and you put on "the girls" and your wig for the first time together, you feel really good about yourself. Life is never the same after this diagnosis, but everyone on the planet has a burden to bear. I try to believe I escaped with a very tolerable burden.
cafe1084 is offline   Reply With Quote
Old 03-27-2007, 05:49 PM   #10
Mary Jo
Senior Member
 
Mary Jo's Avatar
 
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
I agree with Audrey. Cancer - mastectomy scars - it's all ours forever. I also ditto what she said about how it changes you for the better also. It really does but no one but someone who has been where we've been will ever understand the sadness, uncertainties, vulnerablity and fear we face on a regular basis also.

Your feelings are all very normal. You'll get through this too. Prayers and love I send.

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
Mary Jo is offline   Reply With Quote
Old 03-27-2007, 07:54 PM   #11
caya
Senior Member
 
caya's Avatar
 
Join Date: Jan 2007
Location: Thornhill, Ontario Canada
Posts: 2,320
Emelie,


I can honestly say I never felt a sense of real loss - for me it was get this off and get rid of the cancer - Because mine was found during a breast reduction, for me it was more of - too bad I have to cut the breast off, now that it finally looks and feels so nice ... Both the breast surgeon and the oncologist tried to see if they could save my breast - but I asked the surgeon - if I was your wife, what would you do? - he looked me straight in the eye and said - it would be coming off - so I just said - well, that's it for me -
Like Mary Anne, I got a great prosthesis, and have started to wear pretty clothes again ( my mastectomy was recent - Dec. 18,2006). I am having the BRCA testing, and may take the other one off even it's negative - the mammogram and breast ultrasound I had 3 months before my reduction surgery missed the cancer - so I am worried about the "good" side - even though now I have MRIs...

All the best
Caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
caya is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 05:36 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter