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Old 06-07-2008, 08:07 PM   #1
juanita
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Location: indianapolis, indiana
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power

there are so many things i take for granted and having electricity is one of them. we were unlucky enough to be in the path of one of the severe storms to hit indiana yesterday and though we sustained no damage except to trees we were without power for just over 24 hours. i was so happy to see it come back on tonight. we also got 2 1/2" of rain in about 2 hours today. we are lucky though, my sister lives in the southern part of the state where she is completely flooded.
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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Old 06-07-2008, 11:50 PM   #2
sassy
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Glad you were not without power for a long time.

Good to "talk" to you.
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dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
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Old 06-08-2008, 11:11 AM   #3
Colleens_Husband
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Juanita:

I am glad you got your power back.

In Oregon City, we live on top of a cliff and the power lines get wrecked by falling trees every other year or two. Everyone in our neighborhood is prepared to deal with long term power outages. When outages hit all our neighbors band together to help each other out. We all complain about the lack of power but we also enjoy the spirit of giving that fills our neighborhood. There has been several times when I heard people say 'Awwwww!' when the power comes on.

The real trick is get that neighborhood fellowship when things are going well.

Lee
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This happened to Colleen:

Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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Old 06-08-2008, 10:26 PM   #4
Jackie07
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We had a very brief power outage in part of the town last week after a storm. It reminded me of the 'Typhoon' season when I was growing up in Taiwan. The power was always out during the storms. We would light candles and home-made oil lamp and gather around my Mother's full-size bed listen to her stories and learning old songs. One of my earliest childhood memory was escaping to the attic (just a space in between the ceiling and the roof) with my family and looking down at the muddy water filling up the house. Our pets were with us. At the age about 3-4, I did not remember anything that relates to 'danger', just a memorable event that we were all cramped up above the ceiling...
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
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H w x 4 MUGA 51 D, J 49 M
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Tamoxifen B. scan
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BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
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Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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