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Lani appreciation
I sometimes lurk at night but don't always post. with current treatments, thank Goodness for spell check! The symptoms I have, the time limits of my family and sleep, what is that? are kinda limited to lurking, not always being able to reply. Lani you are an amazing person and to know what it takes for you to put the research, the posts and the caring into helping others with factual information , You shared before only once that I am aware of. I know that you told me of the Syrinx, I called them the next day.and the neuro surgeon said for right now just continue with treatment. Last MRI all fluid is gone and top tumor almost gone lower shrunk edema /syrinx was gone.
There has been so many times things you have posted I have shared with my oncology staff, I was working as a nurse, so the first few years after DX I spent tons of time here. now not so much, posting as reviewing or lurking. As our family has recently lost loved ones, as well as our Angels here I don't go here as much to reply or aknowlegde posts. I wind up in too many tears for those who have earned their wings. And in my current battle of what is going on in my Journey, other than to pray, share and advocate as best as I can for others.
Blessings and Gratitude to you and you r family
darita
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dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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