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Old 08-05-2006, 09:15 AM   #1
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Her2 Serum Test

I just read Christine's birthday news post and am interested in info about the her2 serum test.
My onc does not do routine scans or tumor markers. I'll be finishing with herceptin in 12/06 (hopefully), my muga last week was at 50% down 6%.
Was dx at age 46 (premeno) stage 1 with 1.5cm and .4cm masses, er-pr-, her 2+++.
Had lumpectomy along with 4 cycles of A/C, taxol with herceptin, then 26 rads, continue with herceptin to equal 1 year.
Am taking COQ10, multivitamin, calcium as supplements.
Very fearful to recurrance and proceeding to stage 4. There appears to be many people moving from stage 1 to stage 4. Would like to do everything in my power to avoid mets and if mets are inevilable then want them caught early.
How do I get the test? Is it expensive and that is why my onc hasn't mentioned it? I have insurance that has been paying for my treatment so far without problems.
Also has anyone maxed out their insurance? Is this another worry I should be thinking about?
Thanks for your help.
Rocky
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Old 08-05-2006, 11:32 AM   #2
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Hi Rocky -

Here is a thread link to a long list of queastions and answers on this test. It should tell you everything you want to know about it. There is the added bonus that the developer of this test personally answered these questions.

http://www.her2support.org/vbulletin...yer+serum+test

You probably have a long ways to go before maxing out your insurance. Initial treatment eats into it, but if you stay stable, your coverage should hold out. You can always talk to your provider and see what they suggest for those nearing their cap.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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