 |
12-20-2008, 10:08 AM
|
#1
|
|
Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
|
Christmas Miracle
I Haven't Posted In Long Time. Last December Thru April I Finished Ixempra Which Cleared My Problems Up, But A Few Short Months Later In July, I Was In Trouble Again. I Had Enlarged Lymph Nodes In My Abdomen & Pelvis And A 4 Cm Tumor In My Colon. I Was So Depressed About Recurring So Quickly That I Had No Words To Post. This Past Sept. Thru Dec. I Have Been Doing 6 A/C Treatments. I Just Went For Pet & Ct Scans And Believe It Or No---Once Again My Scans Are Clear. I Will See My Doc Next Week And He Has Been Talking About Femara. I Don't Know How Long This Will Last But For Now I Am Just Going To Enjoy It And Breath A Little Easier.
__________________
SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
Last edited by LOPSIDED; 12-20-2008 at 10:10 AM..
|
|
|
|
12-20-2008, 10:23 AM
|
#2
|
|
Senior Member
Join Date: Jan 2008
Location: Evergreen, Colorado
Posts: 454
|
Dear lopsided,
I fully appreciate the mental challenge and focus require to continue to fight back the cancer.
You are an inspiration to us all that IT IS POSSIBLE.
I am so pleased that you are once again NED for the holiday season.
Celebrate!!!
Lori
__________________
2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
|
|
|
|
|
12-20-2008, 10:29 AM
|
#3
|
|
Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
|
Thank you
Your post is so exciting and I am so happy for you. In addition, and this speaks to the nature of this website, you gave me hope today. I needed that. So for what it is worth, your news is a great gift for someone. Most importantly it is such great and wonderful news for you and I am so very happy for you!!! Celebrate!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
|
|
|
|
|
12-20-2008, 10:55 AM
|
#4
|
|
Senior Member
Join Date: Feb 2006
Location: Watkinsville, Georgia
Posts: 356
|
Great news and a wonderful Holiday gift!
Hugs ~ Ruth
__________________
[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~
Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
|
|
|
|
|
12-20-2008, 11:51 AM
|
#5
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Hi Sheila,
What wonderful news for you. Praise God. As Joy said, "you gave her hope today!" I'm sure you gave many hope here today......and HOPE, LOVE, SUPPORT AND ENCOURAGEMENT is why we all gather here. Thank you Sheila for taking the time to share this wonderful news with each us.
I thank God for this gift you've been given today. One day at a time Sheila.....it's MORE THAN ENOUGH for each of us. Grab a hold of today's gift and rejoice and celebrate.
Love to you and MERRY CHRISTmas,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
12-20-2008, 11:54 AM
|
#6
|
|
Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
|
Merry Christmas, Sheila
And a great New Year ahead! What thrilling news for you and all of us. Your message brings hope to all of your sisters here and I will walk out my door today feeling blessed and filled with hope and well being. I'm taking food, left over from my grandson's 13th birthday party and distributing it to the "Houseless". My grandson doesn't use the word or term Homeless because he believes that the Earth is all of our home and only some have no House.
Again, What great news for you and at the perfect time! Much love, Vickie
__________________
Love and Hugs, Vickie
Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.
Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
|
|
|
|
|
12-20-2008, 12:35 PM
|
#7
|
|
Senior Member
Join Date: May 2006
Posts: 3,142
|
Christmas Miracle
Wow !! That is fantastic news !! Congratulations !!
Mele Kalikimaka (Merry Christmas)
|
|
|
|
|
12-20-2008, 03:23 PM
|
#8
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Oh, Sheila, it's so good to hear from you....and such wonderful news too! I'm so grateful that you posted to let us hear from you.
I am beginning my first 2 months all alone (no onc and no herceptin)! I have decided to rejoice and just love every minute. I didn't stop herceptin willingly, but know it's going to work out just as it should. I've lived a three week schedule for so long, I hardly know what to think.
But I've had so many wonderful sisters who walked before me to show the way to live with treatment and without.
Joy, I hope this holiday season brings you good news and peace and love in abundance.
And Vickie, I'm praying for good information on Monday for you.
We're all hither and fro this time of year, but I so hope we'll each be blessed with all our hearts true desire.
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
12-20-2008, 05:58 PM
|
#9
|
|
Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
|
Thank you for sharing your wonderful news with us!
I hope you relax and enjoy the holidays---celebrate!!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
|
|
|
|
|
12-20-2008, 06:03 PM
|
#10
|
|
Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
|
sheila - I was wondering how you were doing. I am so VERY happy to read your post and hear of your great news!!! Merry Christmas,
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
|
|
|
|
|
12-20-2008, 08:29 PM
|
#11
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Sheila, I am so sorry to hear you went through such a rough time of it. I can't even imagine how tough that was for you. Your a true fighter, survivor and inspriation to us all.
This is wonderful news. What a perfect time to get clean scans...just in time for the holidays. I can't even begin to tell you how happy I am for you! I will be keeping you in my prayers for continued good health. 
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
|
12-20-2008, 11:26 PM
|
#12
|
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
GREAT news Sheila! Merry Christmas....
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
|
|
|
|
|
12-21-2008, 12:33 AM
|
#13
|
|
Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
|
Sheila,
I was so happy to read your post of clear scans! Now this is a true gift for the holidays. The last few months have been difficult now it is your time to rejoice and enjoy! Sending you all good wishes and prayers.
Kind Regards,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
|
|
|
|
|
12-21-2008, 10:42 AM
|
#14
|
|
Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
|
This is great news and now you can celebrate the
holidays and plan for a great new year. You deserve
it. Where are you in Florida? Take care
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 04:57 AM.
|
Linear Mode
