HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 05-21-2007, 07:01 PM   #21
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Jean,

Congratulations on completing your year of Herceptin. I just finished mine April 22nd.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 05-31-2007, 03:54 PM   #22
Susan McQ
Senior Member
 
Susan McQ's Avatar
 
Join Date: Dec 2006
Location: Columbus, Ohio
Posts: 33
Congratulations

Congratulation!!

I'll be joining your status in 2 weeks.

Susan
__________________
dx IDC @ age 39 Feb '06
stage 2 er/pr-, her2+
neoadjuvant chemo 4 A/C completed April '06, 12 weekly taxol/herceptin completed 8/06, lumpectomy 8/15/06 NED!
33 rads completed 10/06
weekly herceptin thru May 2007 --Stopped herceptin 4/07 due to drop in LVEF. Started Herceptin again 5/07
Final Herceptin 6/12/07
Port Removed -8/13/07
Susan McQ is offline   Reply With Quote
Old 05-31-2007, 11:55 PM   #23
harrie
Senior Member
 
harrie's Avatar
 
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
All the BEST to you....

Jean,

A huge congratulations, hugs, and kisses to you. I am so happy for you that you did it all!! I didn't realize you had this thread going until tonight. I absolutely LOVE that story about the balloon. Thank you for being there for me too. You have made a huge difference in my ability to hang in the positively.

Harrie
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
harrie is offline   Reply With Quote
Old 06-01-2007, 08:32 AM   #24
LAURIE
Senior Member
 
LAURIE's Avatar
 
Join Date: Dec 2006
Location: Massillon, Ohio
Posts: 247
Yahoo to you!! I am excited for the day when I can post a message like that!!! CONGRATULATIONS!!!
__________________

Laurie
Diagonsed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagonsed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David Kessel Hunter born feb.6th 2009

LAURIE is offline   Reply With Quote
Old 06-01-2007, 09:52 PM   #25
RobinP
Senior Member
 
RobinP's Avatar
 
Join Date: Nov 2005
Posts: 943
Good going and yipee.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
RobinP is offline   Reply With Quote
Old 06-02-2007, 12:01 AM   #26
Adriana Mangus
Senior Member
 
Join Date: May 2006
Location: California
Posts: 668
I read your story

Dear Robin:

It's unvelievable that nothing could detect your cancer. A friend of mine has had for about 8 months nipple discharge and a bump on the nipple area, she had an ultrasound and the needle biopsy, (I believe you had the needle biopsy done, right?); she was diagnosed as having fibrosis of the breast, but I doubt it very much, I have read and have witnessed so many cases that I do not trust these diagnostic tools anymore. I'm not sure if I should say something to my friend; who in the first place went to the doctor at me insisting, she's the type that believes that the less one knows, nothing bad can happen.

She' sbeen scheduled to go back for a check up in three months; she has about 1 1/2 months until the appointment, so maybe I will wait, I really do not want to intrude in her affairs. Again, she does not want to know anything; if is going to be bad news. SHe's very apprehensive even about small things.

I'm honestly very happy for you. What a shock this must have been for you and your husband, considering you both are in the medical field.

I'm also glad you continue being a member of this site, even though you now are considered "cancer free". CONGRATULATIONS on your 5th year mark!

With much love,
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
Adriana Mangus is offline   Reply With Quote
Old 06-02-2007, 04:44 PM   #27
sdhaem
Member
 
Join Date: Apr 2007
Posts: 16
What does coQ10 do for you...??
sdhaem is offline   Reply With Quote
Old 06-07-2007, 07:30 AM   #28
Believe51
Senior Member
 
Believe51's Avatar
 
Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Oh Goodie Goodie

Great Job Sweetness, we will have you in our prayers as always.>>Waiting For A Miracle>>Believe51..(Marie G)

9-06 Hubby dx w/Stage IV inflammatory Breast Cancer w/bone mets
Believe51 is offline   Reply With Quote
Old 06-07-2007, 04:36 PM   #29
RobinP
Senior Member
 
RobinP's Avatar
 
Join Date: Nov 2005
Posts: 943
Adriana Mangus, thank you for your post above about my story. I'm so glad that God has protected me and given me the precious time he has on earth, despite my delayed diagnosis. You see, I had a negative ultrasound, mammogram, so called negative breast exam and so called benign needle biopsy. After my misdiagnosis, I learned that my needle biopsy was misread as benign when it was cancerous. Additionally, probably my breast ultrasound and physical breast exam were misread as normal when they were suspicous and positive for cancer too. My surgeon made horrible mistakes and should have done a core or excisional biopsy, as they are more reliable than a fine needle aspirate biopsy.

I would tell your friend to get a second surgical opinion and at least two pathology opinions on any biopsies as soon as possible. You may want to let her know that core and excisional biopsies are much more reliable than fine needle aspirate biopies. However, no biopsy is reliable if the person getting the specimen does not get tissue from the lump and the pathologist is unable to examine tissue taken from the lump itself. Furthermore, not only do sampling errors occur, but pathologists can and do misread properly sampled breast biopsy slides.

While it MAY not be wrong for a doctor to suggest that a lump be followed for a short time to see if it resolves, if a lump persists, it should be removed, or at the very least have a repeat biopsy. Needle biopsies are good, but one always has the option to demand that the mass be removed, which in my opinion ,after being screwed, is the safest path.

You may also referr your friend to this website:
http://www.2minutebreastexam.com/true-stories/

Give my story too to your friend:



<o></o>
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
RobinP is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:53 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter