HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Closed Thread
 
Thread Tools Display Modes
Old 12-06-2014, 08:32 PM   #1
'lizbeth
Senior Member
 
'lizbeth's Avatar
 
Join Date: Apr 2008
Location: Sunny San Diego
Posts: 2,214
Re: What is measurement date for 5 yr mark?

ThinkPositive,

So sorry that your thread was hijacked. Thanks for the wonderful walk and talk today. It was a great pleasure to meet you. I look forward to many more hikes and discussions. I'll let you know my next time I can make it!

Tricia, I don't know why you would make the assumption that I did not know Christine or Joe. We lived in the same area, and so of course I have met and spent time with them. I don't really think this is about Joe or Christine and their wishes. It is more about you and Sassy and your wishes.

Those stats that I shared were the ones that existed in 2005 and that Herceptin was approved on. The information that your oncologist gave could have been prior to ACT perhaps? I think it is important for senior members to give accurate information. I don't believe we should post what we perceive to be true, we should do our best to double check the information and source it. I hold you more accountable then most because you are also a moderator for Her2 on Susan G. Komen.

You feel my "attitude" deters people from posting. The truth is that they stop posting when other senior members start criticizing my posts and message or email me directly. When I take a break from posting I start getting messages from others, including many newbies to keep posting.

Joe and Christine started this board to bring together those that were dealing with a Her2 breast cancer diagnosis. Many of the same issues exist, progression, recurrence. Yes - Herceptin was the beginning of a cure for Her2 breast cancer. There is just so much more to be accomplished.

Yes I did come down on you for the posting about a 1 year prognosis for early stage. You should have sourced this comment to your oncologist. I don't think it is fair to new members of the board to think that before Herceptin they would have lived only 1 year.

Tricia I would prefer it we all could post together in harmony on the board. We should all share the same goal, to support those who have been diagnosed with breast cancer and to share information.
'lizbeth is offline  
Old 12-06-2014, 08:57 PM   #2
sassy
Senior Member
 
sassy's Avatar
 
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
Images: 4
Re: What is measurement date for 5 yr mark?

'Lizbeth,

As a moderator for this site, it is not only my wish, but my responsibility as prescribed by Joe to continue to monitor and maintain the boards in the manner established and desired by he and Christine.

I shall do so.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
sassy is offline  
Closed Thread


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 07:08 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter