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Old 03-25-2007, 05:42 PM   #1
Cathy1
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Don't buy into the negative crap!

If anyone starts in with the "Terminal" stuff, tune them right out!
There is no one on the face of the earth who is not terminal. Since being diagnosed in 1999, I have known people who died from diabetes, heart trouble, and accidents. I have lived more in the past eight years than in all the years since my birth. Until I was diagnosed in '99, I had never really lived- not like I do now, savoring every precious second and changing the things in my life that needed to be fixed; making peace with God and learning to be kind to all of His children. Cancer has ultimately been the blessing that has allowed me to pour out my true loving feelings for my family and friends, so they will never doubt how much they were loved.
I never noticed the miraculous wonders of creation until lately- the miracle of each human person, the gorgeous colors and types of flowers and trees. the sparkles in the snow, the magnificence of water (I'm so grateful to be able to take a bath every day)
Live every second of this special life you have been given and appreciate your life for the beautiful and spectacular gift bestowed upon you by your awsome and loving Heavenly Father. He alone is the author of all life and He alone knows how many seconds each person has left before He takes us out of here.
Focus on all things uplifting and positive, stay away from negative people, and replace every negative thought with a positive one.I beleive God is using each one of you for a special purpose and I beleive you are all Saints.
God Bless and Keep You All- Cathy
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Old 03-25-2007, 06:15 PM   #2
juanita
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Amen to what you said! My first onc was into the negative side of the numbers and not the positives. And when I quit him and that chemo he made feel like I was going to die because I was quitting. Here I am 2 1/2 years later still fighting and kicking!
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Old 03-25-2007, 06:30 PM   #3
Sandy H
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Cathy, I agree with everything you said. I fit into that whole new life. I have done things I never dreamed I would ever do. I even dressed different like the bright green lime shoes I purchased in Florida. Everyone is special to me each in a different way. Everything here on earth I see in a whole new light. I have become closer to God through this journey. I am more free to reach out to people therefore, have many more friends. I took up oil painting and really surprised myself at what I am painting for pictures. There are 3 bc people taking the class-all new at it and maybe more but haven't said they are bc. We are all beginners. I don't have any negative friends around me if I do I can change them real quick or stay away from them. Wishing you well, sounds like you are living life to the fullest and so am I. People don't bother me anymore if I want to do it I do it!! God Bless you Cathy, hugs Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 03-25-2007, 08:30 PM   #4
TriciaK
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Cathy, I couldn't agree more! I am convinced that staying positive is one of the main reasons I have made it through 21 years of fighting cancer, and especially since June 2004 when I was fighting a heart attack, BC mets to my lungs and phuemonia, then open heart surgery last May! I learned self hynosis and put it into daily practice. I never say "I have cancer" but "I am fighting cancer". When my oncologist told me I might have another year to live, I told him, "No, I have at least 5 years to live!" That was almost three years ago. I couldn't have done it without a wonderful supportive husband and a large loving family. I also give much credit to this wonderful website and all you Amazon warriors who keep fighting. You are absolutely right on, Cathy, and so are all the others who have and will agree with you about avoiding the negative. Only God knows when our time will be up, and I understand it may possibly be negotiated with Him, too! Keep on a'keepin' on! Thank you for your post. We need to be reminded to "accentuate the positive and eliminate the negative"! Hugs, Tricia
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Old 03-26-2007, 05:58 AM   #5
bobbiw
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It truly is a life altering diagnosis-at least for me. I am now more positive than I have ever been, about everything. More at peace, more laid back.

Thank you for your post.

Bobbi
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Diagnosed 10-18-05 found during annual mamogram
Left mastectomy 10-27-05.
Sentinal node biopsy-node negative
IDC Grade 3 of 3
Tumor 2 cm margins clear
HER-2/neu 3+++
Er Pr +
Began chemo/AC every 3 weeks 12-6-05 followed by Taxol and weekly Hercpetin (Herceptin through June 2007)
Right prophlyactic mastectomy June 2006 with expanders. Due to have exchange surgery sometime end of May 2007.
Exchange surgery completed June 2007 with saline implants and nipples. Darned left implant is lopsided to the left due to the wrongly formed pocket and my wrongly formed chest wall!
Switched from Tamoxifen to Armidex in May due to menopause.
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Old 03-26-2007, 06:11 AM   #6
MJo
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While I can't call cancer a blessing, I know that it has definitely changed me and I am not the person I was. I am better in many ways. And while taking life one day, one hour at a time is very difficult for me, I am surely savoring my life more than before.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
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Old 03-26-2007, 06:20 AM   #7
heblaj01
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Years ago I listened on TV to the interview of a well known French oncologist on a tour of lectures in North America. He said (& this was before many of the new treatments were discovered):I treat & save 30% of the "terminal" patients refered to me after they have been given up by their caregiver.

His motto was never to give up hope.
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Old 03-26-2007, 09:52 AM   #8
Sherryg683
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OK, I'm going to be the wet noodle here. I do not in any way believe that cancer has been a "blessing" to me. And honestly say that it is hard for me to find one positive thing about it. This saying, I was diagnosed at stage IV. Maybe if I was diagnosed at stage I and felt there was a cure, I would be a little more positive. I have young children and it hurts like crazy knowing what the prognosis is...so sorry if I'm not doing a happy dance lately. But I have not given up on life or living. I do travel more, take more time to spend with my kids and do appreciate the beauty of nature. There's just always this sadness in me that I can't seem to shake. I will fight this with all I have, I have just had too many people that I love and care for die of cancer, so I know what i'm facing. My brother is in the last stages of melanoma at the moment, it's in his liver. He was a big strong guy, who was a body builder..now he's just weak and half his self. It's just been a hard year for me and hopefully I can shake what I've been feeling lately so that I can enjoy things more...sherryg683
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Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 03-26-2007, 10:07 AM   #9
Gerri
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Sherry,

I totally agree with you that cancer has not been a "blessing" nor is it the "best thing that has ever happened to me". Feeling your mortality is certainly not being negative - just realistic. But in reading your message I still see that you have HOPE and a strong will to live! I admit it is easier for those of us diagnosed at an early stage to have a more positive outlook. I apologize if at times I/we seem insensitive to those of you diagnosed at a later stage.

I am so sorry to hear about your brother. My heart breaks for you.

Keep fighting the fight!!

Gerri
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Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
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Enjoy the little things, for one day you may look
back and realize they were the big things.
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Old 03-26-2007, 01:24 PM   #10
Barbara H.
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Sherry,
First of all I am sorry to hear about your brother. I also agree with you, that at least for me, cancer has not been a blessing. I have grown from the experience, but would never choose to travel this road. I also have a daughter with autism. Yes, I have also grown from that experience as well, and it has made me a better teacher, but again, I would not choose this path in life. Unforturnately, there are many choices in life we do not make.

On the other hand, we do have the opportunity to make some decisions and choices when our lives are interrupted with adversity, and it is not appropriate for others to question our choices. That's why I feel the Edward's family should be supported for the decision they have made.

My thoughts are with you!

Barbara H.
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Old 03-26-2007, 01:45 PM   #11
jag
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Amen Cathy...couldnt Have Said It Better Myself....
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Old 03-26-2007, 10:19 PM   #12
Jean
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Dear Sherry,
I don't think your a wet noodle, we all hate this disease thats for certain.
I am very sorry that your brother is sick, life is so fragile. It is difficult
enough just to raise our children without the concerns of staying healthy
for them. Prior to dx. I think it is only natural for many to take for granted
how easy life really is as long as you are well. Then after dx. it hits like
a hammer - and the daily things in life become even more precious.

I believe that all the ladies of all stages feel the same bond, we hate the
disease and have realized that now everything else seems rather small,
and have a greater appreciation of life.

We all have bad days...and thats okay. By he way I know some very
nice wet noodles....I will keep you and your brother in my prayers.


Hugs,
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
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Old 03-29-2007, 06:04 PM   #13
chrisy
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Boy am I torn on this thread!

First of all, I don't watch ANY daytime TV as I work (more than) full time. So I don't really know what I'm talking about on this thread, but the discussion has been great!

And EVERYONE who has commented on this thread is absolutely right. We're angry, sad, focused, positive, hopeful, all of it at different times.

I agree, you have to focus on the postive and as StephN said, be forward looking. And keep living your life.

The reality is, at this time metastatic disease is "not curable" but is treatable. This was Mrs. Edwards initial statement about her prognosis, and is exactly what I was told by my rockstar oncologist. At that point, hearing that they were beginning to look at Stage IV bc as a chronic condition that could be managed for a long time was the first HOPE we got. My other hope is that major breakthroughs are just around the corner.

On the other hand, although Rosie or whoever quoted stats was probably quoting accurate stats, they are historical and thus (hopefully!) improving every day. Furthermore, statistics are just that and not a specific prognosis for any individual. There are so many factors influencing this.

That said, I think that the media loves to use words like "terminal" because that makes it so much more dramatic. Like we NEED more drama in our lives! That does a disservice to those who are trying to maintain positive energy in the face of a difficult situation.

Anyway, I'm ramblin on aimlessly, you are all so awesome I thought maybe if I posted on this thread I could be awesome by association!

Chris
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 04-11-2007, 10:10 PM   #14
Adriana Mangus
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Thumbs up Right on!

I agree with everything you say Cathy. I do stay away from negativity and concentrate on the positiveness that Life has to offer.

People do not understand what a BLESSING this disease has been to me.
I appreciate every single moment of my life doing what really inspires me, taking time away from work, enjoying vacation time with my husband and my daughter, cooking -experimenting - for my family, etc.etc....(kinda of like to see the look on their faces - they think am crazy, ja ja ja).

I have always been close to my family, but this disease makes it so much more special when I get to visit them. I enjoy every single moment of my life.

I'm not happy...

I AM CONTENT. CONTENT WITH MY LIFE, CONTENT WITH MYSELF.

Thank you for your inspirational note..it's going to stay with me for a long long time...
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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