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Old 05-24-2009, 08:26 AM   #1
'lizbeth
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Breast cancer legislation

http://www.snopes.com/politics/medical/mastectomy.asp

My husband brought this to my attention.
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Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 05-24-2009, 11:37 AM   #2
ElaineM
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Wink Breast cancer legislation

http://www.govtrack.us/congress/bill.xpd?bill=h110-758

Unfortunately this never became law. It was passed by the House, but the Senate never took action on it and of course the president never signed the bill into law.
The bill also included lumpectomies and lymph node surgeries.
It would have been nice to have the option of staying in the hospital overnight after breast surgery to make sure everything is okay. I for one have developed infections, hematomas and seromas after almost every breast surgery, except the first one even though I followed all post surgical instructions. It was also not fun to come home hung over from drugs and have to take care of myself.
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12 years and counting
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Lucky 13 !! I hope so !!!!!!
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14 Year Survivor
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Old 05-24-2009, 11:52 AM   #3
Jackie07
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I think I stayed overnight at the hospital after both lumpectomy and mastectomy. I got edema after the lumpectomy and had to go back to the hospital to squeeze out the fluid. We live just 10 minutes away, so it was not bad. But it could really be hard for patients who have to deal with the stuff all by themselves.
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Old 05-27-2009, 06:50 PM   #4
'lizbeth
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Elaine,

That was for 2008, there is a new bill H.R. 1691 in the house and S. 688 in the Senate for 2009. They were introduced in March. I'm not that savy on the workings of the House and Senate. When will we know if they have passed or not?
__________________
Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 05-27-2009, 09:10 PM   #5
ElaineM
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Wink Breast cancer legislation

'lizbeth,
That is great news !! Anyone have any info on this? If so please share it with us.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 05-27-2009, 11:49 PM   #6
hutchibk
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Breast Cancer Patient Protection Act of 2009 (HR 1691/S 688)

This bill requires a group health plan or a health issuer offering group health insurance coverage that provides medical and surgical benefits to ensure that inpatient (and in the case of a lumpectomy, outpatient) coverage and radiation therapy are provided for breast cancer treatment. This bill prohibits such a plan or issuer from restricting benefits for any hospital length of stay to less than 48 hours in connection with a mastectomy or breast conserving surgery or 24 hours in connection with a lymph node dissection.

This bill ensures that after breast cancer surgery, a woman will have 48 hours to recuperate in the hospital, no matter which State she lives in or what insurance coverage she has. The patient is not mandated to stay in the hospital for 48 hours, but the decision should be made by the patient and doctor and not by an insurance company.

The bill also ensures that coverage is provided for secondary consultations (on terms and conditions that are no more restrictive than those applicable to the initial consultations) by specialists in the appropriate medical fields to confirm or refute a diagnosis of cancer.

S.688 was introduced by Sen. Olympia Snowe (R-ME) on 3/24/09 and has 11 cosponsors. The bill was referred to the Senate Committee on Health, Education, Labor, & Pensions.

H.R.1691 was introduced by Rep. Rosa DeLauro on 3/24/09 and has 208 original cosponsors. It was referred to the Committees on Energy & Commerce, Ways & Means, and Education & Labor.

Rep. Delauro introduced a similar bill in the previous Congress that overwhelmingly passed this House last year by a vote of 421-2 and it had 223 cosponsors.
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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