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Old 02-03-2011, 11:26 PM   #1
Angela
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Join Date: Apr 2006
Location: North Carolina
Posts: 45
Cool CyberKnife Help
Has anyone had cyberknife? Any side effects? How many brain tumors and size.

I have 5 and the only symptom I have is weakness in my left arm and leg. The dr. recommends cyberknife but said there is a 5% chance that the good cells around the tumor may be damaged or there may be swelling around the treated areas. This is a very hard decision to make. Any information anyone can provide is truly appreciated.
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Hugs and Smiles,
 Angela - NC

 Dx May 2003 at age 39
 Lt mastectomy, no nodes
 DCIS, PR- ER- Her+++
 4 rounds AC
 Recurrence Dec 2006 Rt lung
 2/07 - 3 Brain mets - Radiation
3/07 - Carboplatin and Herceptin
 8/07- mets stable. Finished Carboplatin-remain on Herceptin
 12/07 - Herceptin only
 5/08 - Lung mets grew - tykerb and Navilbene. Reaction to Tykerb -9/08 Herceptin again
 12/08 - Lung mets growing - xeloda.
8/09 - Given Zometa for precaution
10/09 - Lung mets back plus new ones. - Put back on Xeloda.
1/10 – Began short-term disability
 2/10 –Lung mets growing - Gemzar
9/2010 – Scan show tumors in lungs growing. Put on Ixempra (every 3 weeks). MRI of the brain showed a brain bleed but it had stopped bleeding.


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Old 02-04-2011, 01:54 AM   #2
Kavy
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Join Date: May 2006
Posts: 157
Re: CyberKnife Help
Hi, Angela,
I'm so sorry you are going through this, and I know how you must be feeling.
I do not have experience with Cyberknife, but I just had Xknife this Wednesday. You can read my thread.
I suggest you get different oppinions from different radiation oncologists and neurosurgeons. What is the size and location of the tumors?
I hope you find the right treatment for you. Count on me if I can help.
Hang in there.
Hugs,
karlav.
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Old 02-04-2011, 12:51 PM   #3
Darlene Denise
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Join Date: Aug 2008
Location: Virginia Beach, Virginia
Posts: 145
Re: CyberKnife Help
Angela: I have had Cyberknife at UNC in Chappel Hill. I had 8 treated in 09/08 and three more in 06/09. Cyberknife is focalized, laser guided radiation and does minimal damage to surrounding tissue. I am glad that such treatment is being offered to you instead of jumping into WBR.

What facility would be doing the treatment?

Darlene
__________________
12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY
01/14/08 2 AC TREATMENTS-NOT WORKING
02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS!
05/12/08 HERCEPTIN EVERY 3 WKS
08/22/08 BRAIN METS! 8 <5MM
09/17/08 CYBERKNIFED BRAIN METS
10/20/08 BRAIN METS SHRINKING
12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT
01/16/09 LIVER REOCUR-XELODA/HERCEPTIN
03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ?
3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN
06/08/09 STUPID BRAIN HAS 3 LESIONS
06/29/09 CYBERKNIFE
07/01/09 LIVER REGRESSION NO NEW METS
07/07/09 TYKERB XELODA HERCEPTIN
11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!!
03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE
05/21/10 NAVELBINE/HERCEPTIN WORKING!
07/19/10 GOOD BRAIN MRI
08/20/10 LIVER PROGRESSION
09/08/10 TDM1 - NASHVILLE TN
01/10/11 LIVER RESPONDING TO TDM1
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Old 02-04-2011, 03:32 PM   #4
krisvell
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Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
Re: CyberKnife Help
Angela,
I just had the Gamma Knife for one brain met this Thursday. It's usually one session but they are doing two with a lower dose to try to prevent radio necrosis and the fact that it's on my brain stem (high risk area). Did you check into Gamma Knife? I had to go to another location farther away. It seems like a lot of HER2 sisters recommended it. I'm sureCyberknife is close to the same.Hope this helps.
Sending good thoughts and prayers your way,
Kris....

Kris...
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06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found


Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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Old 02-04-2011, 03:43 PM   #5
Delaney
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Join Date: May 2010
Location: Ireland
Posts: 271
Re: CyberKnife Help
Angela, is the Ixempra working for the lung mets? I am just coming off xedoda for lung mets (stopped working) and going on Gemzar. I am also er-/pr- and seem to be working my way thru the different chemos rather quickly. Hope the treatments works well for your brain mets. I am getting scanned next week for those, am so hoping none are found.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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