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10 years later non BRCA ovarian cancer
Hi all;
I was told 3 years ago that I was likely "cured" of breast cancer at which time I groaned inside but it did keep a little light shining. Luckily for me I had a very few drops of vaginal bleeding in March which took me immediately to my MD. She did a cervical biopsy (negative) and ordered an internal ultrasound which lead to an MRI. May 6th I had a staging hysterectomy which visually looked good to the surgeon.... no sign of invasive cancer and as only one ovary was involved, no indication that this had anything to do with my former breast cancer. This was fantastic news (especially the idea that it was not a spread of the breast cancer but of course we had to wait for the pathology). I received those reports last Thursday and I do have ovarian cancer..... Stage 1c. I've never been a stage 1 before so that was fantastic news especially since I had absolutely no symptoms! And confirmation that this is a totally new cancer. I had my first chemo (carboplatin and taxol) yesterday and am just beginning my research. I am being referred for genetic testing. In Ontario if you have both breast and ovarian cancer they must do genetic testing when referred. They keep talking naturally about BRCA testing but years ago I did a 23andme test which said I was negative. All of this is new to me and I thought some of you here might be interested in this news or might have ideas for me. I will say ovarian cancer is a very scary disease as I repeat .... No symptoms in my experience at early stages. I got very lucky and have hope for a good outcome but it wasn't even on my radar as at that time my particular breast cancer didn't seem to spread there. Take care everyone.
Cathy
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Cathy
Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18
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