HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 02-10-2017, 08:18 AM   #1
Melissa
Senior Member
 
Melissa's Avatar
 
Join Date: Jan 2008
Location: Virginia
Posts: 116
10 + years of Aromatase inhibitor

Hello all,


I have just changed oncologist due to location.

My prior oncologist was planning to keep me on an
Aromatase inhibitor for a few more Years. I'm at 10.9 years so probably until 13 years out.
Well my new oncologist says there are no
Studies to continue treatment , which is true, and she wants me to immediately stop the inhibitor.
My question - are any of you taking it longer
Than 10 years?
Thanks and hope all is going well for everyone!!!
__________________
Melissa

04/06, (42), 2cm tumor, 7/13 nodes, one positive node under clavicle
mastectomy/reconstruction
grade 3, stage lllb, er-65+, pr-90+, her2+++(80%)
4/AC, 12wks TH then 6wks rads
40 wks herceptin, and tamoxifen.
onc test tamoxifen resistance = poor metabilizer
04/07 ooph & on arimidex
08/07 completed herceptin

04/2022 - 16 year survivor!
Melissa is offline   Reply With Quote
Old 02-10-2017, 11:33 AM   #2
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: 10 + years of Aromatase inhibitor

I have been on Armidex for 11 years. There are ongoing studies comparing 10 years to 15 years but they won't have results for quite some time. My onc has me staying on HOWEVER, my bone density just started to decline and I was given a shot of Prolia. My onc said it's either the bone hardeners or no AI. So I took the shot. Have to get it every 6 months. I might weigh things in a couple of months and see
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"

Last edited by Becky; 02-10-2017 at 11:36 AM..
Becky is offline   Reply With Quote
Old 02-13-2017, 01:48 PM   #3
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: 10 + years of Aromatase inhibitor

My Onc had me stop at eight years but then re start two years later when the results showed ten years better than five. I'm twelve years out this summer when I'm due to see her so not sure as yet if she'll want me to continue on or stop.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
Old 01-11-2018, 03:37 PM   #4
nancy dip
Senior Member
 
Join Date: Jun 2007
Posts: 49
Re: 10 + years of Aromatase inhibitor

Hi All,

I stopped Anastrozole in November (after 10years) as the NHS in the UK will not fund longer use as it says there is no proof of further benefits. I am uncomfortable with this and am considering trying to buy anastrozole myself.

How many of you have taken 10+ years?

Have you noticed or been tested for side effects of prolonged use?

Is there any proof that really long term use is beneficial or is it all in the mind (as has been suggested to me!)

Thanks for any replies. Nancy
__________________
Found lump myself 8 months after routine mammogram.
29/11/06-WLE and then re-excision to get clear margins.
Tumour was 1.2cms; Grade3; Er+ Pr+ HER2 3+++; SNB negative out of 9 nodes.
Chemo was Epirubicin every 3wks x4 then Xeloda (2wks on, 1wk off) for 4 cycles. ( I am part of the TACT2 trial.)
Rads x25
Arimidex for 5 yrs.
Hoping to start Herceptin within the next 2 weeks (we have to follow the HERA protocol to qualify for Herceptin in the U.K.) I worry about the delay in starting Herceptin!! Started 8/10/07
nancy dip is offline   Reply With Quote
Old 02-14-2018, 08:09 PM   #5
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Re: 10 + years of Aromatase inhibitor

Hi All,
I am now on 11 years.
I am see my onc. in March. I am sure he will advise to stop AI since during my last visit he advised to stop.

My gut is telling me NOT to stop. I am going to follow my gut as i did back in 2005 when they said I could not have herceptin due to being stage 1.
Took it off label.

Will update after dr. visit.
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Jean is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 05:50 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter