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Old 08-09-2014, 04:17 PM   #1
chekmark
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Join Date: Nov 2010
Location: Doylestown, ohio
Posts: 334
Re: Could I have bone mets?

During and after treatment I had terrible bone and joint pain, it got worse when I was on the herceptin only and then I started Femara and holy cow just when I thought it couldn't get worse it did. I started to take glucosamine and calcium and within 2 weeks I was almost pain free. Always check with your doctor first to make sure it is safe to take anything. I, like Coolbreeze hear this complaint a lot. If u need piece of mind get the scan, good luck and keep us posted.

Darlene
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DX Sept 30 2010 at the age of 49. Oh crap! 1.5 cm idc, stage 1 grade 3 er/pr+, her2+ no lymph nodes, mastectomy Oct/10. Started 6 rounds of TCH Dec/10 and will continue herceptin until Nov /11 and just started femara.
Stray kitten found my lump while I was playing with it. It is now my pet and my dog is not real happy about that.
Mammo good
last herceptin 11/21/11 YAY
reconstruction 12/09/11
Chapter closed 12/10/11, hopefully, fingers crossed
Bone scan, chest xray, clear
04/27/12 Expander removed, implant put in, ahh sigh of relief, much more comfortable
Sept 30, 2014, 4 years NED
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Old 08-09-2014, 06:09 PM   #2
annettchen
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Join Date: Mar 2014
Posts: 95
Re: Could I have bone mets?

I have bone mets - had them off the bat on first diagnosis. One in T10/11, and possibly one in my shoulder. I do have back pain (had that for a while, at least a year prior to diagnosis). And my hips occasionally hurt. However, I feel like the back pain got worse during and after chemo, so it's possibly a chemo side effect. I also have muscle pain in my arms and legs. I finished THP some weeks ago, restaging indicated "healing metastatic lesions"; now on Herceptin / Perjeta only.

In my case the back pain is not where the met is - back pain feels like it originates T4, and according to scintigram, CT and MRI, there's nothing on T4 (or thereabouts).

I have also been told that scinti shows any area of increased activity in the bone, which can be other things like degenerative issues etc...

I would go and have it checked out for peace of mind. It's likely nothing... Wish you luck for the scan!
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Annette
----------------------------------------
03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic)
04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol)
07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working
10/2014: STABLE!
01/2015: STABLE!
04/2015: STABLE!
08/2015: STABLE!
12/2015: BRAIN METS. BODY STABLE.
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