| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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06-27-2008, 11:48 PM
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#1
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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How do you keep cool??
NOT by eating spray cheese!
Me in the pool at our B & B in Austin, where it was 100 degrees and over.
Note the very fashionable Seattle pallor.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
Last edited by StephN; 06-28-2008 at 11:11 AM..
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06-28-2008, 05:45 PM
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#2
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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If I have to be outside, working or playing, I throw on a do-rag and periodically throw a handful of water on it. Sometimes I'll just soak a bandana and drape it around my neck. Also, I'll take small zip-lock bags, fill them with ice cubes and keep them in my shirt pocket. That works pretty good for awhile.
__________________
For Nicola
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06-28-2008, 05:51 PM
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#3
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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I just like to get a handful of water and make my hair ALL wet!
Yesterday, I went to yoga. I am currently getting over a scrapped knee from when I was being my normal klutzy self and tripped on the curb about 2 wks ago. I HAD a nice scab and I got so sweaty and hot doing yoga that my entire scab came off! Back to ground zero!
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*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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06-28-2008, 07:24 PM
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#4
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Senior Member
Join Date: Jan 2008
Location: Oregon City
Posts: 856
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This is something Miles and Ma'ire, my two youngest children dreamed up. They take a pair of pants and a shirt, put it in the freezer for an hour, and put it on. It is hot enough here so that I am considering trying it myself.
__________________
This happened to Colleen:
Diagnosed in September 2007
ER-/PR-/HER2 Neu+++ 2.1 cm x .9 cm spicluted tumor with three fingers, Stage 2B
Sentinal node biopsy and lymph node removal with 3/18 positive in October 2007
4 TAC infusions
lumpectomy March 2008, bad margins
Re-excision on June 3rd, 2008 with clean margins
Fitted for compression sleeve July 16, 2008
Started the first of two TCH infusions August 14, 2008
Done with chemo and now a member of the blue dot club 9/17/08
Starting radiation October 1, 2008
life is still on hold
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07-01-2008, 09:29 PM
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#5
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Senior Member
Join Date: Jun 2008
Location: NY
Posts: 81
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haha i like miles and maire's idea. it hasnt been too hot here on the east cost, i generrally just stay away from the second floor turn the ac on and become a couch potatoe. so much for my summertime diet
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07-02-2008, 08:08 AM
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#6
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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When I lived in New Jersey, we had an inground swimming pool. I used to mow the lawn in my bathing suit and dived in the pool when it got too hot.
Another way to get cool is to take a very hot shower.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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07-05-2008, 04:46 PM
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#7
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Joe.....
How does that work, a very hot shower?
Often times when i take a shower I think back on your thread and have been meaning to ask.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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07-05-2008, 08:36 PM
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#8
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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i for one like the heat. don't even have air conditioning.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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07-05-2008, 10:51 PM
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#9
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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I hate heat. Maybe I should switch places with Bill.
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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07-06-2008, 09:19 PM
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#10
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Senior Member
Join Date: May 2006
Posts: 3,142
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How do you keep cool??
I don't like the heat either. Try Hawaiian hot, humid summer everyone. Harrie and I know what that is all about. I use alot of fans and never go out without my hat, sunglasses and water. Alot of showers help. Some areas of Japan have very hot, humid summers too. Take a shower over there and you will need another one in 5 minutes. I like your ideas Bill and Joe.
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