HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 03-31-2013, 11:13 AM   #101
candlegranny
Senior Member
 
candlegranny's Avatar
 
Join Date: Feb 2010
Posts: 151
Re: Brain Mets - new or old?

Hey Denise! Praying for you daily. I'm still working on the belly boob. Lol. Got it in July 15 hr surgery. Radiation damaged veins in chest he had to pull vein from my left arm....my lymphadema is really bad now...but stil can use my arm thank god! I went back in November for uplift and implant in my own boob. Just got out of hospital this week from lipo suction. 5 ounces of pure fat pulled from my love handles. And inserted into belly boob, and he stretched my stomach a little tighter to blend my flat parts with my not so flat parts. Supposed to be out patient I had to spend night. Hope this is my first and last lipo adjustment.....pushing 60 yrs old and over 200 pounds. This old girl wants to save energy for the big fight should I need to fight the dang cancer agin. Doc says fte this pet scan we will move from every 6 months to 12 months..scary for me. I do hope you feel enter my friend and I pray herceptin kicks in and does the job.
__________________
Mammogram Sep 21, 2009 everything good and clear
DX jan 19,2010 Invasive Ductal Carcinoma, Grade 2 Age 56
modified radical masectomy on LEFT side 29 Jan 2010
2.7 cm 18/31 nodes
mets to just above collar bone ( 2 nodes showed in PET)
ER- PR - / Her2 +++ (IHC) Stage 111 C
ki-67 60% nottingham score 7
A/C chemo mar 22,2010 DD
herceptin & taxotere DD june 1,2010
finished taxotere july 12, 2010
finished herceptin 16 May 2011
PET Scan 9 Aug 10, cancer in neck is gone! NED
33 Rads completed 1 Oct 2010
PET/CT Scan 6 Jan 2011 NED
PET/CT Scan 3 Aug 2011
MUGA 59% 3/22/10 -63% 9/23/10 - 51% 1/4/11 - 55% 2/17/11 - 50% 8/3/11
26 Aug 2011 NED
20 Feb 2012 NED
5 Mar 2012 PORT OUT
12 July 2012 DIEP breast reconstruction
23 Aug 2012 NED
15 Nov 2012 new breast tweeked and natural breast uplifted and implant added
17 Feb 2013 NED
27 mar 2013 lipo suction to add fat cells to new breast in hopes for needed adjustment.


"Don't spend your time worrying about when or how you are going to die, spend your time figuring out how you are going to live today". ~Elizabeth Edwards.
candlegranny is offline   Reply With Quote
Old 04-01-2013, 07:02 PM   #102
KsGal
Senior Member
 
KsGal's Avatar
 
Join Date: Dec 2011
Posts: 585
Re: Brain Mets - new or old?

Denise...((hugs)) I started WBR on Christmas Day, and I have been on steroids ever since. It has taken me forever to wean off these things...Every time I would go down a step, a few days later I would have to bump it back up. I was/am so frustrated. Over the past couple months I have been able to take it down really slowly, so now I am at 2 mg every other day, but I still haven't been able to get off them. Just wanted you to know I know your frustration. As you taper, be sure to do your best to keep exercising. I didn't stick to it like I should, and now Im so exhausted and my muscles in my legs are so weak Im functioning at about 40%. Im sure thinking about you and praying for you.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
KsGal is offline   Reply With Quote
Old 04-04-2013, 06:57 PM   #103
KG1993
Senior Member
 
Join Date: Sep 2011
Posts: 93
Re: Brain Mets - new or old?

Denise,
My mother is currently fighting a similar battle to yours. She had gamma knife in Feb and last week I started to see her balance off a little. Just got off the phone with my Dad and I think he is going to call doc tomorrow and she will prob go back on steroids.
Hang in there. I hope and pray her tumor results are good news like yours.

KG
KG1993 is offline   Reply With Quote
Old 04-09-2013, 04:57 PM   #104
KG1993
Senior Member
 
Join Date: Sep 2011
Posts: 93
Re: Brain Mets - new or old?

Not good news.....Mom is really having trouble with thoughts and walking again. mRi scheduled for thurs. sleeping a lot. Had gamma in feb afraid for what is going on now!!!
KG1993 is offline   Reply With Quote
Old 04-10-2013, 06:23 AM   #105
NEDenise
Senior Member
 
NEDenise's Avatar
 
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Re: Brain Mets - new or old?

KG
Keeping my fingers crossed for good info on Thursday. In the meantime, sleep probably is a comfort to your mom...being off balance is a disconcerting feeling.

Try not to let yourself get ahead of things. Wait for the test results...I know...easier said than done.

And remember...swelling after Gamma comes and goes. I was fine for months, and now 8 months later...here I am again.

Take a deep breath...feel the love coming your way...
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
NEDenise is offline   Reply With Quote
Old 04-10-2013, 09:20 AM   #106
KG1993
Senior Member
 
Join Date: Sep 2011
Posts: 93
Smile Re: Brain Mets - new or old?

Thanks Denise! I sure hope it is the brain healing causing the issues and not "new" problems! I think about you a lot because I know you have went through similar experiences as my Mother. It helps to hear from others who have/are dealing with these issues.

I hope you have a good day!
Kim
KG1993 is offline   Reply With Quote
Reply

Tags
brain lesions, brain mets, brain swelling

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 11:12 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter