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Old 07-25-2012, 03:50 AM   #1
Julie D
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Location: Sydney Australia
Posts: 21
Breast lymphoedema

Hi, I had arm and hand lymphoedema following during chemo which I treated with massage and a compression sleeve and glove. I am 2 months out from end of radiotherapy and have now developed breast lymphoedema! Has anyone had good treatment/results with the breast lymphoedema? I am having manual drainage and compression bandaging which is really uncomfortable on the shoulder and back. I've noticed there is a bra - Bellisse, does it work and do you know if they have stockists in Australia?
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Diagnosed Sept 2011 with IDC whilst 31 weeks pregnant with 2nd child, age 37.
Her 2 +, ER/PR + but weak requiring no further treatment.
Left lumpectomy October 2011, 2.2cm tumour, full axillary clearance, 1/20 lymph nodes. Clear margins but lymphovascular invasion.
2nd bub born 10 days later.
FEC 100 x 3 Nov - Jan 2012
Taxotere x 3 from Jan - March 2012
February 2012 Left arm and hand lymphoedema
38 treatments of radiotherapy completed 29th May 2012.
Herceptin 1 yr until Feb 2013
Tamoxifen for 5 years.
July 2012 Breast lymphoedema
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Old 07-27-2012, 03:28 AM   #2
Ellie F
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Re: Breast lymphoedema

Hi Julie
Sorry I have no words of wisdom but am bumping this up so it doesn't get missed. I feel sure somebody on the board will have some info
Hugs
Ellie
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Old 07-27-2012, 05:25 AM   #3
Melissa
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Posts: 116
Re: Breast lymphoedema

Hello Julie,

A friend of mine used a bra for lyphoedema, not sure the name, and she said it helped. I have found if I swim everyday it heps more than anything else; manual drainage, therapy etc. Swimming along with the compression garments works best for me. I know it's hard to get to a pool everyday but you will notice a difference. I go before my family get up in the morning.

My friend has since had a masectomy with a small implant and now mainly deals with the hand and some back lyphoedema.

My surgeon went on and on about how they like to conserve the breast but it's the lymph nodes that have given me the most grief.

Heres to it getting better - I know it's a pain!
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Melissa

04/06, (42), 2cm tumor, 7/13 nodes, one positive node under clavicle
mastectomy/reconstruction
grade 3, stage lllb, er-65+, pr-90+, her2+++(80%)
4/AC, 12wks TH then 6wks rads
40 wks herceptin, and tamoxifen.
onc test tamoxifen resistance = poor metabilizer
04/07 ooph & on arimidex
08/07 completed herceptin

04/2022 - 16 year survivor!
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Old 07-27-2012, 06:57 AM   #4
JennyB
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Location: Port Hedland, Australia
Posts: 382
Re: Breast lymphoedema

Julie I was shopping for new bras today and came across this Aussie site Amoena are the bras I have to use for prosthesis but they do compression bras too. Not very sexy I don't think Arthur will like but should help you!
http://www.studioeurope.com.au/brand...ctomy.html?p=3

If the link doesn't work just google studioeurope and go to brand Amoena there on page 3

Speak soon

Jen xx
__________________
Diagnosed Nov '10 IDC whilst pregnant with 2nd child
Her 2 ++ ER/PR + but weak and patchy 50% + 5%
Left mastectomy Dec '10, 6cm tumour 1 of 2 lymph (micro mets)
Clear margins but lymphovasculer invasion
Stage 3a Grade 3
Fec 100 x 3 Jan '11 Taxotere X 3 and Herceptin X 1yr
Staging scans - CT brain & body and bone - May '11 - NED!!
Start Femara - in chemo induced menapause
25 Rads June '11
Dec '11 Menstruation resumed - zoladex inj monthly and Tamoxifen
Feb '12 Back on Femera and Zoladex
March '12 CT brain & body & bone scan all clear
Zometa x2/yearly
April '12 - Oopherectomy

Praying the Herceptin is as good as its hype!!
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Old 07-28-2012, 04:05 AM   #5
Julie D
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Posts: 21
Re: Breast lymphoedema

Thanks guys, will have a look at the site Jen xx
__________________
Diagnosed Sept 2011 with IDC whilst 31 weeks pregnant with 2nd child, age 37.
Her 2 +, ER/PR + but weak requiring no further treatment.
Left lumpectomy October 2011, 2.2cm tumour, full axillary clearance, 1/20 lymph nodes. Clear margins but lymphovascular invasion.
2nd bub born 10 days later.
FEC 100 x 3 Nov - Jan 2012
Taxotere x 3 from Jan - March 2012
February 2012 Left arm and hand lymphoedema
38 treatments of radiotherapy completed 29th May 2012.
Herceptin 1 yr until Feb 2013
Tamoxifen for 5 years.
July 2012 Breast lymphoedema
Julie D is offline   Reply With Quote
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