Re: Any other Power Port patients here?
I have had a power port for 2.5 years. My problem has been to get them to use the correct power port needle which they dont have in the chemo dept. so I have to collect a needle from the CT dept and get the chemo nurse to insert it before I have the scans. They use the regular needles for chemo and blood drawing which I am really not happy with but I have given up arguing - why not use the right tool for the job! I have asked if I can buy the power port needles but with no luck. I would like a supply to use as needed. The power port needles are wonderful for getting blood out. All in all I am very happy with my port and hope it lasts many years I have no veins so access woukd be impossible without it.
Happy power day!
Best wishes
Diane
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adenocarcinoma ductal grade 3 DX Oct 2001 2mm grade111. Level one two out of four lymph nodes positive. ER strongly positive PR strongly positive HER2 staus not known. Chemo FEC six courses Radiotherapy course. Arimidex 5 years. Recurrence April 09 Liver, Lungs & Bones May 09 Liver Biopsy ER status changed to negative PR status changed to negative. HER2 now+++May09 Docetaxol 6 cycles Herceptin and Zometa added.Disease stable for 17 months Scans Jan 2011 one of the tumours in right lung has grown significantly scan due in April 2011 to check lung tumour. Current treatment Herceptin & Zometa February 2011 unwell so hospital. DX inoperable Brain mass 11x8mmx12mm left of midline. from lungs and heart March 2011 Gamma knife treatment to brain met.March2011Tykerb/Xeloda/Zometa
March 2011 Severe allergic reation to Tykerb July 2011 New met in lymph glandineck.July2011Navaline/Herceptin/Zometa
August 2011 Necrosis in brain
Herceptin/Zometa Oct 2011 considering Avastin for Necrosis
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