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Old 02-19-2006, 03:03 PM   #1
Patty H
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Join Date: Nov 2004
Location: Indiana
Posts: 123
State of denial


I know I have been dealing with this cancer for 5 1/2 years and you would think I would be over this by now. But I still go into a state of denial. I know my biopsy showed it was cancer the first 2 times. But after that they just assumed it was breast cancer in my lungs and bones because of the pet+ct-scan. The chemo didn't get rid of the lung mets but maybe the radiation did.( I have another ct-scan on Wed) But I have felt good through most of this and when I didn't it was because of something they did to me. Sometimes I still feel like they must be wrong, I can't have stage 4 cancer. Does anyone else go through this denial stage even after all this time. Patty H
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Old 02-20-2006, 05:04 AM   #2
Sheila
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Location: Morris, IL
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Patty

I understand where you are coming from...even though the scans look good, with every ache and pain comes doubt....I guess its just a fact of life for us...we are always waiting for the ball to drop. It is nice to go for a week or 2 forgetting that this disease lurks over our heads. Many days I think how can I feel so much like myself and be stage IV? I think mostly it is due to new technology....Stage IV used to be the end of the line, now its just more of a bend in the road. I just saw an article on TV that said the newest technology involves freezinf the tumor for breast cancer, avoiding lumpectomy and mastectomy altogether! Wouldn't that be amazing. Things change daily!!!!
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Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 02-20-2006, 07:26 AM   #3
sarah
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Join Date: Sep 2005
Location: france
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you mention that you aren't feeling any pain. that's GREAT! If that's due to denial then that's what works for you. Do everything the doctors tell you to do to fight the cancer but keep up your positive attitude.
good luck
Sarah
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Old 02-20-2006, 08:08 PM   #4
aquinis2000
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Posts: 51
state of denial

Patty, I too live in a state of denial. Your sounds like it from a great attitude. Mine is from many ativan, high doses of effexor and lunesta. When the onc talks to me I just keep thinking.............I reject your reality and replace it with my own. Mine is a much happier place than hers.Sometimes all i hear is.....bla bla bla...cancer..........bla bla bla......infusion..........bla bla bla......next week.And go out and live my life like nothings wrong.of course with my freinds, mr. ativan and miss effexor. I'm stage 4 too. I think denial is the best state in the country. good luck.
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