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Old 05-17-2013, 06:34 AM   #1
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Question Steroid/herceptin withdrawal questions for you!

Hi wise ones,
I need your expertise.

My Situation:
- tapering off dex 1mg per day (second time doing this, but having a worse time this time around)
- last herceptin was in March (off due to low EF and probably will not go back on)
- on heart meds (just started a new one. So new, I don't even know the name of it *blush*)
- I'm on ramipril for my heart as well and tamoxifen


SO...... I've been feeling like poop. I feel like I'm in chemo again. My homeostasis is WAY off. I feel like I've been boozing outside all day long. Or maybe I feel like someone has punched me in the face, and injected my eyeballs with sand or kitty litter. I'm tired. My brain feels dirty, and most of the time I just want to say "HUH?" lol

Am I feeling this way because of the drugs and withdrawing from them mixed with a side of estrogen sucker and blood pressure downers?

Help from you:

I'm looking for my peeps out there to tell me their side effects from coming off herceptin and decadron.

Any help would be awesome!

Thanks, Jill xo
__________________
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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