Hi guys - Page 2

Mary Anne in TX · 02-08-2009, 07:19 AM

Hi Joy!
Please keep telling us how you feel, what you think and, well, whatever is happening with you. Your honesty is so helpful to us all. You speak of your experiences, but you also speak for all who are walking the same walk. Remember that love sees through love's eyes....seeing you only as beautiful, worthy, loveable, and so important.
I'm prayin' for this treatment to keep on working hard to destroy the bad cells and let our "cutie" Joy get back her energy, sparkle, and hope once again. Much love and belief, ma

Midwest Alice · 02-08-2009, 07:39 AM

Hi Joy`, I agree with Mary Ann, what ever your thoughts and feeling are they are very important to us. I read your post and I just want to give you a hug. You're so strong and in touch with your feelings. Your teaching me that I am going to be OK.

Have a wonderful day,
Love and Hugs,

nitewind · 02-08-2009, 07:39 AM

Joy, there's really nothing more that I can add, the others have expressed my feelings so well. I was just delighted to log on and see your post. You are always in my prayers.
Hugs

karen raines hunt · 02-08-2009, 02:00 PM

Dear Joy,

So sorry to hear about the high fever and pains. I hope those are gone forever!

You are the first bc survivor that I talked with in Fort Collins. You led me to this site. I don't post very often, but do read posts regularly.

You are a great mother and a great friend and I am confident you will feel better!

karen

sally · 02-08-2009, 02:47 PM

Hi Joy, I also had alot of pain in my forearms. I got it 2 hours after my last treatment. My Dr. said it sounded like I had nerve damage. I am currently on 4 tykerb daily and Gemzar. I have been having a hard time with the Gemzar and I haven't been NED in a couple of years now. I know what you mean when you feel your days are numbered. Good luck to you and getting the perfect cocktail. I always look forward to your posts. Hang in there and be strong. Sally

Paty · 02-08-2009, 07:50 PM

Sending you my love and prayers and big hugs. It was good to hear from you and hope that soon you will feel better.

Debbie L. · 02-09-2009, 08:55 PM

Joy, I am so appreciative of your honesty. Have you thought about journaling or writing in other ways that could help others dealing with cancer learn how to be clear about their feelings? You have a real talent for expressing yourself in a way that is not at all whiny but neither is it sugar-coated. That honesty and open-heartedness really resonates with readers. At least it does with this reader.

I hope that having this forum as a place where you can be honest, and supported, is of some help.

I don't mean to minimize (at all), the enormous pressures that you are dealing with. It is difficult enough to face hard things when we are feeling well - but to add in fatigue is just so hard.

So (lecture of sort follows)- being in bed a lot with no energy is not what defines being YOU. Being YOU means you are fully "there" for your kids and your loved ones, when you are able. Your loved ones do not value you for your ability to get up and "do things". Your preciousness to them is not in the tasks you accomplish. It has nothing to do with that (although of course, they appreciate those things, when you are able to do them). They value and need you most for your loving presence. If you allow yourself to be distracted with concerns about what you can't do (which alas, you cannot control), you are a little less there for them. I know that it is very easy for me to say and very hard for anyone to do - but I hope that you can try to let go of your regrets about what is not - and focus on what is. What is, in your life, is (I gather from your other posts), a lively and wonderful connection to special children and adults. I encourage you to savor that and to cherish it. Savor it as if it were your last moment to do so (even though it is not). I wish that we could ALL do that - savoring this moment as if it were our last. How rich life would be. But daily stuff does get in the way, for all of us. Still - not a bad thing to strive for.

With love,
Debbie Laxague

harrie · 02-11-2009, 11:47 PM

Hi Joy.....aka ms whiny pants....hahaha, that was cute.
You my dear are free to show all your highs and lows to all of us. That's what friends/sisters are for. Right??!!
Hows your WBC been? Are you feeling better?

If you feel like it, we would love to have you join us by the campfire. Its a great place to hang out and we all just breathe deeply and snuggly up together.

Much hugs, love, and peace to you my friend...
Maryanne

PS....and BTW, with that beautiful face of yours, hair or no hair, you are always beautiful. Really and truely girl!

Believe51 · 02-12-2009, 02:06 PM

Joy, if you have not joined the campfire yet, please do. I have been looking for you and need you to drink up this iced latte before the ice melts. Come on over, I saved you a place right in the middle....this way no one fights over you!!>>Love>>Believe51

naturaleigh · 02-12-2009, 06:34 PM

Hey Joy,

When your mother named you, she knew what she was doing, she should have given you the middle name of inspiration because that is what you are, a Joy and inspiration!!

I love reading your post. You totally amaze me by how you can feel so rotten and still come here with happiness and laughter in your heart (whinny pants!!). That's a riot!!

I am praying for you daily and hope your treatments get better for you and you are back on your feet soon (but not too soon, make sure you don't overdo).

harrie · 02-12-2009, 11:49 PM

Joy, got a new name for you......The Magnificent Warrior!! So please toss the Whiny Pants in the rubbish!!