Can you get IBC as a secondary local recurrence?

Dianne T · 07-03-2007, 12:13 AM

Hi guys

I have been checking out the site for a while, I was dx last July with stage 3, her2 +++. Have had 4 cycles of chemo, lumpectomy, 4 more cyles of chemo and finished up six weeks of radio in early April will be on herceptin until November.

Can anyone tell me if you can get IBC as a secondary local recurrence? I expected my doggy breast to end up smaller than the other and have been putting the increase in size down to surgery(last November) /radiotherapy which finished over three months ago. I also have breast tenderness and occasional shooting pains in breast and nipple and the breast is a bit warmer. Is it common to still have breast enlargement three months after radio? I mentioned it to my oncologist a couple of months ago who felt it was due to radio. I have seen my GP who I have a lot of faith in and he is treating me for mastitis however I can't help but wonder if it could be IBC?

Dianne

lexigirl · 07-03-2007, 07:33 AM

Dianne,

I don't know the answer to your question. However, I have read that can happen after radiation. It is awfully scary and I understand your worry. Can they do some sort of skin biopsy to be sure? I am hopeful that it isn't IBC and you get some answers soon.

Hugs,
Lexi

Kaye · 07-04-2007, 07:57 PM

Hi Lexi, I cannot answer your question, but I can share that I was dx'd with IBC BEFORE I had radiation, and I have not yet had a recurrence of IBC. I don't know if the following has any relationship to developing IBC, but about a year and a half+ before my diagnosis I had all the signs of formaldehyde poisoning after over-exposure to 'new' fiberboard. I had thought that there had been regulations that any fiberboard that was used at that time was 'safe' but learned that the only regulation in place, I believe, was that the treated, safe fiberboard had to be labelled and/or newly manufactured fiberboard was safe. It was still legal to use the old, untreated fiberboard at that time.

Roz · 07-08-2007, 02:06 AM

Hi Dianne,
Did you have the tissue from the lumpectomy tested? I expect that you did. I can't imagine that you would get a secondary mutating to IBC. I had a biopsy to determine the nature of the tumour, so perhaps the onc can suggest something along those lines.

pattyz · 07-09-2007, 05:48 AM

Just within the past couple of days I ran into a post from a gal who DID have Inflammatory as a recurrance. Don't recall the details or just where the heck I saw this, tho'. sorry.

pattyz

mslinda · 07-09-2007, 07:29 PM

I thought I also had IBC shortly after radiation.

My breast was swollen, most of the breast was red, and I had what looked like the orange peel skin. I have a mole on the inside of my left breast that has always been flat. It looked like a blister it was so swollen. I had 4 centinel nodes removed. That is the culprit. My lympy system in the left breast is not draining properly. It is still swollen, and as large if not larger than before the lumpectomy. It is still very tender to the touch at times and I have had the redness and warmth a few times. The doctor gives me an antibiotic to take. It has been two years, so I don't guess I will ever be back to normal. What I would give to be back before breast cancer.

I hope this helps.
Linda in S. Mississippi