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06-25-2012, 03:30 PM
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#1
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Senior Member
Join Date: Nov 2011
Location: Satellite Beach, Florida
Posts: 36
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The View Show Today
I felt Maura Tierney could have done so much more on the show today. She's a survivor, bi-lat mast and HER 2 +.
I thought this is great somebody famous is gonna speak out about there being different types of breast cancer!
Instead it was hardly an afterthought and the interview fell apart after a member of the view quoted incorrect chemo maker's name. Maura's point was not made or the point was she'll be on The Good Wife later this year.....a real missed opportunity.
__________________
Dx'd 5/2011 IDC 1.6cm, stage 1, grade 2, er+pr-, HER 2, 0/2 nodes, P53 75%, KI67 90%
6/23 bilat mast, port 6/27 expanders, 8/08 AC x6, Herceptin 1 yr., Arimidex -Jan 1st 2012- 5 years, reconstruction- exchange surgery 3/30, nipples 7/2012? Then tattoos......
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06-25-2012, 06:27 PM
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#2
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Senior Member
Join Date: Dec 2006
Posts: 415
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Ugh!Re: The View Show Today
I agree - total missed opportunity to educate and empower the viewers. It's almost like she was reluctant guest, and as I sit here, I can't even remember the name of her charity?
I understand if she wants to keep the specific details of her own diagnosis private, but then why even bother going on TV to so dispassionately bring up the subject.
I was baffled by her appearance but imagine "her" charity is even more disappointed.
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06-25-2012, 06:44 PM
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#3
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Senior Member
Join Date: Aug 2010
Location: New York, New York
Posts: 1,580
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Re: The View Show Today
http://chemomythsorfacts.com/
Watched the clip and forwarded here.
Karen
__________________
World Trade Center Survivor (56th Floor/North Tower): 14 years and still just like yesterday.
Graves Disease, became Euthyroid via Radioactive Iodine, June 2001.
Thyroid Eye Disease. 2003. Decompression surgery in 2009; eyelid lowering surgery in 2010.
Diagnosed: June 2010, liver mets. ER-/PR+10%; HER2+++.
July 2010: Begin Taxol/Herceptin. Eliminate sugar from diet. No surgery or radiation.
January 2011: NED
April 2011: Progression in liver only. Other previous affected areas eradicated. Stop Taxol/Herceptin after 32 infusions.
May 2011: Brain MRI: clear.
May 2011: Begin Tykerb daily, Xeloda twice per day for one week on, one week off, and Herceptin.
November 2011: Progression in liver. All other tumors remain eradicated.
December 2011: BEGIN TRIAL #09-093 Taxol, MCC-DM1 (T-DM1), Perjeta.
Trial requires scans every six weeks, bloodwork and infusions weekly.
Brain MRI: clear.
January 2012: NED. Liver mets, good riddance!
March 2012: NED. Developed SMA (rare blood clot) in intestinal artery and loss of sight in right eye due to optical nerve neuropathy. Resolved when Taxol removed this month.
Continue Protocol of T-DM1 weekly and Perjeta every 3 weeks.
May 2012: NED.
June 2012: Brain MRI: clear.
June-December 2012: NED.
December 2012: TRIAL CONCLUDED; ENTER TRIAL EXTENSION #09-037. CT, Brain MRI, bone scan: clear. NED.
January-March 2013: NED.
June 2013: Brain MRI: clear. CEA upticking; CT shows new met on liver.
July 3, 2013: DISASTER STRIKES during liver ablation: sloppy surgeon cuts intercostal artery and I bleed out, lose 3.5 liters of blood, have major hemothorax, and collapsed lung requiring emergency resuscitative thoracotomy, lung surgery, rib rearrangement and cutting deep connective tissue, transfusion. Ablation incomplete. This life-saving procedure would end up causing me unforgiving pain with every movement I make, permanently, otherwise known as forever.
July 26, 2013: Try Navelbine/Herceptin. Body too weak after surgery and transfusion. Fever. CEA: Normal.
August 16, 2016: second dose Navelbine/Herceptin; CEA: Normal. Will skip doses. Watching and waiting.
September 2013: NED, Herceptin only. CEA: Normal. Started Arimidex.
October-November 2013: NED. Herceptin and Arimidex. CEA, CA125, 15-3: Normal.
December 2013: Something brewing. PET lights up on little spot on liver; CEA upward trend, just outside normal. PET and triphasic liver scan confirm Little Met. Restart Perjeta with Herceptin, stay on Arimidex. Genomic sequencing completed for future treatments, if necessary.
January 2014: Ablate Little Met on the 6th. Happy New Year.
March 2014: Brain MRI: clear. PET/CT reveal liver mets return; new lung mets. This is not funny.
March 2014: BEGIN TRIAL #10-005 A(11)-Temsirolimus plus Neratinib.
April 2014: Genomic testing indicated they could work, they did not. Very strange drug combo for me, felt weird.
April 2014: Started Navelbine and Herceptin. Needed something tried and true, but had significant progression.
June 2014: Doxil and Herceptin.
July 2014: Progression. Got nothing out of it. Brain: NED.
July 2014: Add integrative medical hematologist-oncologist to my team. Begin supplements. These are tumor-busting, immune system boosters. Add glutathione, lysine and taurine IV infusions every three weeks.
July 2014: Begin Gemzar, Herceptin & Perjeta. Happy.
August 2014: ECHO perfect.
January 2015: Begin weekly Vitamin D Analog infusions. 25 mcg. via port.
February 2015: CT: stable.
April 2015: Gem working, but not 100%. Looking into immunotherapy. Finally, treatments for the 21st century!
April 2015: Penn Medicine. Dendritic cell immunotherapy.
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06-26-2012, 11:08 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: The View Show Today
I agree totally. Next time, one of us will go on the show!!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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06-27-2012, 12:34 PM
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#5
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Senior Member
Join Date: Mar 2012
Location: Alabama
Posts: 121
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Re: The View Show Today
I missed the show but just finished Elizabeth Edwards' last book and the afterward. It was apparent to me she was HER2+ but she never mentionned the specifics of her cancer or treatments. I read her explanation for being vague but what a HUGE missed opportunity to educate the public about HER2+, which most people have never heard of.
__________________
Vicki
Lord, give me the comfort of Your embrace and acceptance of Your will.
3/11: DX: IDC, HER2++, ER/PR neg, stage 4, mets to liver. Primary tumor: grade 3; 11 cm. 2nd smaller tumor: ~2.5cm. Multiple affected nodes, 1 spot on liver. 6 rounds TCH prior to bmx.
7/11: Nothing left except Primary breast tumor now 1.5cm.
8/11: BMX, 17/17 nodes clear. No post-op chemo or radiation indicated. NED!
10/11: NED! Continue Herceptin indef.
2/12: Reoccurence of liver mets; both lobes. Tykerb added to Herceptin.
5/12: Progression of liver mets. Stop Tykerb, start Abraxane & Herceptin weekly.
8/12: Progression in liver and lymph nodes around liver and right kidney. Herceptin not working anymore! Stop Abraxane and Herceptin. Start Tykerb and Xeloda.
10/12: Severe side effects. 3 weeks break from everything.
12/12: It's working! All tumors gone except 2 (from 20+) Continue Tykerb and Xeloda. Brain and spine MRIs clear.
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06-27-2012, 01:49 PM
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#6
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Senior Member
Join Date: Nov 2011
Location: Satellite Beach, Florida
Posts: 36
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Re: The View Show Today
@Vicky, I too read Elizabeth Edwards book but only gathered she was slightly hormonal.......really made me think she was closer to being triple negative. I'm going to go back and re-read the Forward and Afterword. I must have a bit of chemo brain! that sure was a missed opportunity for the entire world to learn about HER2, she was that famous!
I read WebMD's interview with EE. It was pretty interesting. She mentioned how slack she was about getting her regular check-ups and following her meds.......
You know I would really like to know the pathology on everyone's bc! These famous people like the Gilian and Bill, come out in People magazine and announce they have bc and it gives the impression there's only one type....it fuels the misnomer IF you catch it early, you can be cured!
Oy vey!
Lorraine
__________________
Dx'd 5/2011 IDC 1.6cm, stage 1, grade 2, er+pr-, HER 2, 0/2 nodes, P53 75%, KI67 90%
6/23 bilat mast, port 6/27 expanders, 8/08 AC x6, Herceptin 1 yr., Arimidex -Jan 1st 2012- 5 years, reconstruction- exchange surgery 3/30, nipples 7/2012? Then tattoos......
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06-27-2012, 02:09 PM
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#7
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Senior Member
Join Date: Mar 2012
Location: Alabama
Posts: 121
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Re: The View Show Today
I noticed that EE was on an IV med she received at the hosp. even after she was NED for almost a year. When it went to her bones she said she went back on that same iv med again and wondered if she shouldn't have ever stopped it. Her2+ would certainly explain the short remission as well as the aggressiveness when it returned.
I wonder about G Rancic as well but think the lack of details is to protect her career propects--they certainly don't care about keeping anything private.
__________________
Vicki
Lord, give me the comfort of Your embrace and acceptance of Your will.
3/11: DX: IDC, HER2++, ER/PR neg, stage 4, mets to liver. Primary tumor: grade 3; 11 cm. 2nd smaller tumor: ~2.5cm. Multiple affected nodes, 1 spot on liver. 6 rounds TCH prior to bmx.
7/11: Nothing left except Primary breast tumor now 1.5cm.
8/11: BMX, 17/17 nodes clear. No post-op chemo or radiation indicated. NED!
10/11: NED! Continue Herceptin indef.
2/12: Reoccurence of liver mets; both lobes. Tykerb added to Herceptin.
5/12: Progression of liver mets. Stop Tykerb, start Abraxane & Herceptin weekly.
8/12: Progression in liver and lymph nodes around liver and right kidney. Herceptin not working anymore! Stop Abraxane and Herceptin. Start Tykerb and Xeloda.
10/12: Severe side effects. 3 weeks break from everything.
12/12: It's working! All tumors gone except 2 (from 20+) Continue Tykerb and Xeloda. Brain and spine MRIs clear.
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06-27-2012, 02:30 PM
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#8
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Senior Member
Join Date: Dec 2006
Posts: 415
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Re: The View Show Today
Clearly, the "Personality" is what's newsworthy and not the disease, and even if these Survivors are offering details of their disease it's likely that those details are too mundane for primetime television.
And Lorraine is spot on - without these details the general public does view BC as one disease, not a complex of different variables, and over simplifies how we are going to find a CURE.
I have written to the Ellen De Generes show-who purports such an exhibition of BC support- on 3 occassions appealing to her to tell the story of Stage IV patients, that we live active, happy lives, with our disease, inspite of our disease and most importantly if 10 years ago, or if ever, I had seen MY story on her show or any tv program I might have been spared a sleepless night or two and been bolstered with HOPE of truly surviving with this disease until a cure is found. Scoot over Maura Tierney!
I'll gladly be NED forever. A "cure" is just semantics~
Keeping the Faith~
Jessica
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