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Old 07-13-2011, 05:24 AM   #21
Jackie07
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Re: Coffee and Tea

Thought this one might belong here (since coffee and tea are mentioned :

http://www.medpagetoday.com/PublicHe...icHealth/27519

Notice as cancer patients undergoing chemo/radiation treatment, our fluid intake might be different. What I do know is that because caffeine (in tea and coffee) dehydrates the cells, whenever we drink caffeinated drink, we need to add a cup of water to our intake.
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Old 07-13-2011, 07:08 PM   #22
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Re: Coffee and Tea

Aw shucks, Rich, I do drink tea, several cups daily. I was not fond of green tea, but have found this green-black chai combo that is very tasty. A bit expensive for 20 bags, but worth it, I think. Funny thing is how I find tea makes me jittery in the morning. Wonder why? I prefer good, old java for the a.m., but drink tea the remainder of the day. As I said before, I am hedging my bets on the tea/coffee consumption with a bit of both! Hope they never try to take away tea, but I won't be a bit surprised when they do. Seems inevitable! It will then have to go on the list! LOL.
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Old 07-14-2011, 10:56 AM   #23
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Re: Coffee and Tea

Laurel - love, love, love your response - made me laugh out loud.
thanks for that.
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Old 07-14-2011, 02:15 PM   #24
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Re: Coffee and Tea

Laurel, you always make me howl with laughter! The sooner they sort out what causes us to have bc the better. Then we can get back to all our vices!!

On a serious note my understanding is that green tea downregulates her 2 so it's very helpful as it is easily taken up by the body. I think as Rich has pointed out the confusion relates to ER+ status.
The issue about coffee is also murky. I thought I remembered Lani posting an article about coffee maybe being useful in the prevention of brain mets?

Ellie
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Old 07-14-2011, 06:39 PM   #25
Laurel
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Re: Coffee and Tea

Ellie, my personal barometer is still fluctuating on the coffee issue. I am keeping it a morning ritual and swearing off it the remainder of the day. The chai tea I mentioned that is a black/green combo is made by Stash and is organic. Good stuff. Green tea, just like water with lemon, dries my mouth. Water with lime does not. Black tea does not. That's why I am not a real fan of most green teas. I like the taste, but hate the dry mouth and thirst it seems to evoke.

Vices! Yes! Give me back some vices! Truth is I'm too old for most of 'em anyway!
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Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

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Old 07-16-2011, 05:25 AM   #26
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Re: Coffee and Tea

This is completely non-cancer related but it made me think of this thread as I read it and thought someone might enjoy it (in defense of coffee [moderate] and tea).

Do tea, coffee drinkers have lower "superbug"(MRSA) risk?

http://www.chicagotribune.com/health...,2301767.story
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Old 08-29-2011, 09:25 PM
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Old 08-30-2011, 01:47 PM   #27
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Re: Coffee and Tea

The thing about coffee that we have to watch is that some people have different glycemic responses than others. What I mean is that if a person is hypoglycemic, frequent caffeine intake can be a problem because it stresses out the adrenal glands and can make blood sugar levels wonky. And when our blood sugar levels are wonky, we are at greater risk for diabetes and cancer. So if you do choose to drink coffee and you are hypoglycemic, be careful that it is an occasional treat and stick to herbal teas as much as possible.

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Old 09-05-2011, 08:59 AM   #28
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Re: Coffee and Tea

Hi ladies. Laurel you are soo funny what a wit...Kristin when I said I only drank organic coffee I dont buy it because I think it is healthier I just buy it because of my concern for the rainforest, the habitat of the birds and the workers... hope all are having a good long weekend. I always look forward to the new seasons. I think fall is my favourite. When had an extremely hot hot summer and I am ready for some cool air.
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Old 09-28-2011, 07:16 AM   #29
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Re: Coffee and Tea

Friends...
I don't drink...
Don't smoke...
I eat a healthy diet (since BC, anyway)...loaded with phytochemicals and fiber. But...

Coffee, and chocolate take me to my happy place.
They relieve my stress.
They make me a nicer, more patient person.
Without them, I am terribly cranky (that's polite code for that 'B' word)

I suspect, that if I eliminated them from my diet, I might not have to wait for cancer to get me. Some random stranger (or beloved family member) might just put us both out of our misery!! (lol)

I'll give up red meat. No more fat-filled cheese fries. But, they simply cannot expect me to give up these last, precious vices!

I'm off for a lowfat decaf mocha latte!
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
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11/11 radiation x28
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1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
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12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
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5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 09-28-2011, 09:08 AM   #30
rhondalea
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Re: Coffee and Tea

I drink darjeeling tea all day, every day. Now and then, I have a cup of coffee (to which I add chocolate and milk). They are my main source of fluids (although I also drink .75 to 1.5 liters of filtered tap water a day).

It is a myth that caffeine causes water depletion/dehydration:

http://www.mayoclinic.com/health/caf...drinks/AN01661

http://www.nytimes.com/2008/03/04/he...on/04real.html

Apart from that, I have not found any convincing evidence that tea and coffee contribute to breast cancer, and most of the evidence says just the opposite. The only caveat is that it seems best to avoid green tea during treatment because some of its constituents have been shown to block the effects of at least one cancer drug (and possibly others).

The problem with black tea is that it may contribute to anemia by blocking non-heme iron in the diet (which would've been a good reason for me to stop drinking it while receiving AC, but I'm an addict).

Finally, my grandmother drank black tea (mostly orange pekoe) several times a day, every day for her entire life. Although she was diagnosed with colon cancer when she was in her mid-to-late 70s, she lived to be 101. And the only reason she died then is that the colon cancer came back and was not caught in time. She was in otherwise perfect physical health (although her mind was pretty well paste at that point--she had non-Alzheimer's dementia, probably related to thyroid malfunction/depression).

(I've just re-read my post, and I see that I'm vehemently not-humorous. I apologize, but as I said above, I'm an addict, and I take any threat to my drug of choice very seriously. Make that over-seriously. Sheesh.)
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Old 09-28-2011, 09:27 AM   #31
NEDenise
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Re: Coffee and Tea

Me, again...
Just wanted to add that I drink only coffee, and water. Okay...I do drink some fruit juice occasionally...

But the point is, I'm hydrated.

I like tea, but it's just not coffee. Drinking coffee isn't quite a spiritual experience...I'm not that far gone...but it really is mood altering for me.
On the other hand, when I was a kid, my Mom always made me tea and toast when I was sick. So I associate tea with being sick. Frankly...I don't need any reminders that I'm "sick"! (lol) I've got that covered!

And dark chocolate...if loving that is wrong, I don't wanna be right!
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 09-28-2011, 10:56 AM   #32
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Re: Coffee and Tea

Denise, the good news is cocoa is thought to have cancer fighting components:
http://her2support.org/vbulletin/showthread.php?t=43594

If you can consume it with minimal sugar or a sweetener like Stevia, should be all good. There are some options aimed at diabetics that can help with that craving.

The coffee issue (estrogenic) is at this point an issue in ER+ cancer. But caffeine itself tends to raise cortisol and reduce the quality of sleep, which will at some point likely be correlated to the "stress" issue mentioned elsewhere. But if you get more stressed without it....

Rhonda,
Do you have the study showing green tea interferes with treatment? I have tried to compile info on green tea and haven't encountered that yet:
http://her2support.org/vbulletin/showthread.php?t=44079
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Old 09-28-2011, 11:09 AM   #33
NEDenise
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Re: Coffee and Tea

Rich,
Good news for me! I'm ER neg ... so no worries there.
And...wait for it...
I drink decaf anyway!!
(I only drink one or two cups a day...so very little caffeine involved.)

Interestingly...I used to avoid artificial sweeteners because I was afraid they caused cancer! What a crazy world!

As far as chocolate is concerned...I knew something that good HAD to be good for me.

Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 09-28-2011, 11:59 AM   #34
rhondalea
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Re: Coffee and Tea

Hi Rich,

Green tea (specifically EGCG) interferes with Velcade:

http://bloodjournal.hematologylibrar...nt/113/23/5927

That, of course, has nothing to do with us, but the pharmacists where I receive treatment (CINJ) recommend against any antioxidant supplementation during chemo under the theory that just as antioxidants protect healthy cells, they will also protect cancer cells by disrupting the free radicals produced by certain cancer drugs.

There are some studies for this idea (for and against), but I will have to search for them again (didn't save them when I did the initial search after the slash and burn on my supplement list), but the overall recommendations (which actually contradict the pharmacists to some extent) are on the Robert Wood Johnson site, here:

http://healthlibrary.epnet.com/GetCo...chunkiid=33802

Of course, my faith in the pharmacists was somewhat shaken by the fact that they did not caution me about the grandmother of all antioxidants--alpha lipoic acid--but I dropped that from my supplements on my own.

I tried to renegotiate some of my supplements after I was done with AC and moved on to Taxol and Herceptin, but it was put to me that I'm better safe than sorry. I did get a reluctant okay about SAM-e, but even that came with a caution. I'm still debating it, because it's great for the liver, and I need it for SAD now that winter's coming, but I'm seriously thinking about waiting until I'm done with Taxol. I'd rather have SAD for a couple of months than cancer for a (shortened) lifetime.

As an aside, the one antioxidant supplement I've increased (to prevent Taxol-induced neuropathy) is acetyl-l-carnitine. I've had two doses so far, and both my hands and feet are doing fine. There's a study for this also (ongoing, but promising, I believe), and having given up all the rest of the antioxidants on my list, I figured I was owed a compromise. ALCAR is a somewhat specialized antioxidant, though, so it shouldn't actually interfere the way the others might.

I'll get back to you on the other studies as soon as I have the mental fortitude to find them again. (Either that, or I'll do it the lazy way and ask the pharmacists for documentation next time I go for chemo.)

Edited to add: Here's one:

http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Citation

Last edited by rhondalea; 09-28-2011 at 12:49 PM.. Reason: poor word choice; add citation; move citation
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Old 09-28-2011, 12:54 PM   #35
Rich66
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Re: Coffee and Tea

Quote:
This pronounced antagonistic function of EGCG was evident only with boronic acid–based proteasome inhibitors (BZM, MG-262, PS-IX), but not with several non–boronic acid proteasome inhibitors (MG-132, PS-I, nelfinavir).
So even within that unique class of chemo, for a blood cancer, kind of unusual effect in a blood cancer.
For solid tumor, specifically BC drugs like Herecptin, Taxol, Cisplatin and Tamoxifen..suggestion is it's helpful.
Though in a new search came across the possibility that it might be wise to take it time separated from oral meds:
http://www.ncbi.nlm.nih.gov/pubmed/21331509

A bit of discussion on the anti ox/pro ox issue:
http://her2support.org/vbulletin/showthread.php?t=43289

A response to the Vit C/chemo abstract:
http://cancerres.aacrjournals.org/co...22/8830.1.long
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Old 09-29-2011, 07:39 AM   #36
rhondalea
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Re: Coffee and Tea

Yikes. There's a ton of information but no good reassurance either way.

I have links to the articles that seem to underlie the concerns of the pharmacists at CINJ (as well as the pharmacists that maintain Cancer Supportive Survivorship Care:http://www.cancersupportivecare.com/complementary.html). The first link is to the Labriola/Livingston article of 1999:

http://www.cancernetwork.com/display...le/10165/68553

Unfortunately, the above link requires a login, but registration is free. In the alternative, I have a copy of the article, but it's pretty long to paste into a post, so if there's a better alternative, please let me know.

The more recent article is this one from the Journal of the National Cancer Institute:

http://jnci.oxfordjournals.org/content/100/11/773.full

and this is the semi-rebuttal:

http://jnci.oxfordjournals.org/conte...18/1334.1.full

The research is being done, albeit slowly, but consensus is really lacking.

As for me, I have no love for green tea, so giving it up for chemo was no skin off my nose (in other words, I didn't have anything to give up, because all I've ever done with green is to occasionally mix it half and half with black). I've waffled about giving up L-Theanine extract, but it's not in the same class as the green tea antioxidants so I tell myself it's okay now and then.

I asked about carrot juice, which I had been drinking daily (4 ounces), and it was discouraged. I didn't ask about coffee, black tea and chocolate, all of which are pretty high in antioxidants, but I console myself that the studies I have read demonstrate that milk--which I add to all of the above--seems to neutralize, at least to a great extent, the antioxidants contained in each.

Most, but not all, foods (like my carrot juice) seem to get a pass under the theory that the antioxidant amounts in the normal diet are not great enough to cause a problem. I expect that for someone who craves green tea like I crave darjeeling, a cup or two is not an issue, but drinking it in excess for the purpose of helping things along may be counterproductive.

Bottom line is that I probably shouldn't have posted so definitively because I'm not the Shell Answer Man. (I blame the excessive steroids in my system for my over-abundant enthusiasm, because I'm mostly over it today, thank God.)

At the moment, I'm eating what I crave, and according to my food diary, it's not causing a problem with my nutrient intake (which is right at the midline, except for the B vitamins, which I continue to supplement), so I figure I can survive another eight weeks sans the ones the pharmacists banned. Feels kinda like a crapshoot, though, and I really miss n-acetyl-cysteine (which has the same uneven results as green tea).

Last edited by rhondalea; 09-29-2011 at 07:44 AM.. Reason: missing word; placement error; font size
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