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Old 09-09-2015, 05:57 AM   #1
KeriK
Senior Member
 
Join Date: Jan 2014
Location: Las Vegas
Posts: 26
My new chemo cocktail - Exemestane, Tykerb an Ainitor....anyone else??

hi all
Just reaching out to you all to see if anyone has been on this combo?
I started the Exemestane on Monday, I'll start Tykerb next Monday, Afinitir the following Monday.
Looking for any remedies or tricks to manage the side effects.......Tykerb rash/acne? Does the rash a one time thing or something that if happens, it will keep happening?? The big D? How soon does it happen after taking it? Is it better to take in the AM or PM? I'm going back to work so I'm just trying to prepare. Afinitor mouth sores? I've got my cool whip ready and rx of valtrex Anything other suggestions or tips would be much appreciated!!! I always learn so much on this site!!
Thank you all. I will keep you all posted on how this combo works for me. I can't find too many others on this combo. Fingers crossed!!
__________________
[/SIGPIC]37 years old
12/10 her 2+, ER+ invasive ductile carc stage 3C
1/11 taxol herc 12 wks
4/11 FEC herc 12 wks
8/11 masectomy 48 lymph nodes removed
9/11 tamoxifen
10/11 radiation thru Dec
11/12 recon!
12/12. It's back. :( mets to liver and lungs
Stopped tamoxifen
1/13 TDM1 expansion trial
4/13 lung mets gone 65% reduction in liver markers in low teens!
12/13 lungs still clear! Liver mets reduction
12/13 opherectomy
1/14. Tumor markers increasing. 30's now
2/14 TMs back in high teens
4/14 increased calcium levels
5/14 Xgeva to kadcyla. Scan showed tiny scar tissue on sternum, not previously ever seen
8/14 NED
12/14 NED!!
4/15. NED. YAY! Dr thinking about stopping kadcyla
7/15 still NED. LAST KADCYLA SCHEDULED FOR 9/3
8/15 left side of tongue and lips went numb, brain MRI revealed 10 lesions all over the brain. :(
8/15. Tumor markers still in high teens ???
8/15. 15 rounds of Whole Brain Radiation
Started an Alzheimer's medicine, Namenda, to help preserve brain cognition.
9/15 started Afinator and Tykerb
10/15. Brain MRI. 7 rumors left, nothing new, nothing growing
12/15. 3 sessions of cyber knife
3/16 MRI stable. Nothing new nothing growing nothing shrinking
5/16. MRI. 4 existing tumors doubled in size and 2 new tumor
Looking into clinical trials
6/16. 6 2 hr sessions of cyber knife
10/16 stable MRI
11/16 back in the body.......lungs liver lymph nodes sternum
11/16 abraxane herceptin xgeva
12/16 lungs clear but now 2 tumor in liver
2/17 Opdivo ibrance Tykerb xgeva
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