 |
|
05-30-2009, 06:04 AM
|
#1
|
|
Member
Join Date: Apr 2008
Posts: 23
|
Need support/advice!!!!
Found out yesterday, that they think the cancer is back...in my "other" breast. Was having pain Thurs., checked it...hard, red mass on upper part of aroela to nipple. He said from looking at it, he could tell...having a diagnostic mammo & ultrasound Mon. morning to confirm. I'm just numb at this point... Crap!! I just had a mammo in Feb.!! I said that to the dr. & he said "I know, I'm sorry". I said, But I'm still taking Herceptin...and I'm on Tamoxifan...he just kept apologizing...Any thoughts on this or similar experiences shared would be welcomed...And mostly, prayers...
Blessings, Kelli
__________________
Kelli 40yrs. at dx 3-14-08, IDC, ILC,DCIS RB
Lumpectomy w/ snb 4-22-08 2/4+
ER+(5%) PR+(5%) Her2+(3+)
Axillary Node Dissection & Port Placement 5-08-08 2/24+(Total 4/28+)
4 dd AC/ 4 Taxol w/ Herceptin
Herceptin til July '09
Radiation 37 tx starting 10/20
Tamoxifan
|
|
|
|
05-30-2009, 07:27 AM
|
#2
|
|
Senior Member
Join Date: Oct 2007
Posts: 203
|
Kelli,
So sorry, this is a kick in the stomach! Cancer doesn't mess around, you have to be just as tough back. Thank God you are being vigilant and well monitored.
Wishing you strength to get through the next challenge.
Rebecca
__________________
Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
|
|
|
|
|
05-30-2009, 09:21 AM
|
#3
|
|
Senior Member
Join Date: Feb 2009
Posts: 1,526
|
So sorry to hear your news. I know you will get some really good advice from others here. It's such a blow when it comes back but you will find the strength to carry on fighting.
I will be saying lots of prayers for you
Hugs Ellie
|
|
|
|
|
05-30-2009, 12:13 PM
|
#4
|
|
Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
|
Kelli, I can only imagine your shock! Your first diagnosis sounds very similar to mine minus the positive nodes. Fight back and fight hard!! You can do it! Lots of hugs are being sent to you now!
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
|
|
|
|
|
05-30-2009, 02:01 PM
|
#5
|
|
Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
|
That S***s! It must feel very unfair. Good for you for getting it looked at quickly and good for your doc for taking it seriously. I hope it turns out to be benign, but if it isn't, may it be "nipped in the bud".
Hang in there!
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
|
|
|
|
|
05-30-2009, 03:33 PM
|
#6
|
|
Senior Member
Join Date: Jul 2006
Posts: 869
|
I am sorry to hear this--this disease is so unpredictable. Breathe and take the next step. Best to you. Ceesun
|
|
|
|
|
05-30-2009, 07:16 PM
|
#7
|
|
Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
|
Dear Kelli,
This is kick in the gut news; and scary news at that. Here you thought you had things under control then wham - it recurs in your other breast. Above all else you are, I am sure, sick of being sick.
Take hope. Listen to the options your doctor offers. Ask your oncologist who he/she called to discuss your case with. If you are not satisfied; make sure you get a second opinion BEFORE you start your next round of treatment.
Take hope.
Stay strong and clear minded. Have you checked out clinical trials? Check out our clinical trial message board and log on to clinicaltrials.gov. Have you thought about driving or even flying to the nearest regional cancer center for another opinion?
Don't take this lying down - please stay with us and keep us posted on how you are doing.
Love Kim from CT
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
|
|
|
|
|
05-30-2009, 08:23 PM
|
#8
|
|
Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
|
just sending lots of prayers and hugs your way!!!!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
|
|
|
|
|
05-31-2009, 08:56 AM
|
#9
|
|
Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
|
Kelli,
So sorry to hear this news. I remember you as you were diagnosed just after me last year and had a lumpectomy like I did too. I will be praying for you. Try and take one day at a time as you deal with these new developments. Please post back any news to us so we can continue to support and pray for you. Take care and God bless.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
|
|
|
|
|
05-31-2009, 05:31 PM
|
#10
|
|
Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
|
Sorry to hear your news. Please keep us posted. Will say a special prayer for you.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
|
|
|
|
|
05-31-2009, 05:50 PM
|
#11
|
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Just remember that someone thinking you have cancer in the other breast is different than you having cancer in the other breast. Wait until the biopsy is done. I am hoping and praying for good news. However, if it is not, please, please ensure that a full pathology is done. If it is cancer, it may not be the same cancer and may warrant different treatment.
I am wishing for B9 results. I am giving you a huge hug from NJ.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|
|
|
|
|
06-01-2009, 09:49 AM
|
#12
|
|
Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
|
Kelli,
Sorry to hear your news. I will say a special pray for you. Let us know when you get the results.
|
|
|
|
|
06-01-2009, 10:22 AM
|
#13
|
|
Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
|
Dear Kelli,
I am sending lots of prayers that it turns out to be benign and your worries are put to rest.
God bless!
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
|
|
|
|
|
06-01-2009, 02:07 PM
|
#14
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Believing for good news for ya, Kelli! Best wishes, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
06-01-2009, 05:51 PM
|
#15
|
|
Member
Join Date: Apr 2008
Posts: 23
|
Got a good report...thank you all for your prayers!!!!!!!
__________________
Kelli 40yrs. at dx 3-14-08, IDC, ILC,DCIS RB
Lumpectomy w/ snb 4-22-08 2/4+
ER+(5%) PR+(5%) Her2+(3+)
Axillary Node Dissection & Port Placement 5-08-08 2/24+(Total 4/28+)
4 dd AC/ 4 Taxol w/ Herceptin
Herceptin til July '09
Radiation 37 tx starting 10/20
Tamoxifan
|
|
|
|
|
06-01-2009, 07:13 PM
|
#16
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Thank God! I was getting ready to comment one thing, now I can comment on your good fortune! You rest easy tonight. Thanks for sharing the good news.
__________________
For Nicola
|
|
|
|
|
06-01-2009, 08:24 PM
|
#17
|
|
Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
|
Kelli,
Thanks God!!! I am soo happy for you. When I read your post last night I was very sad thinking about this terrible 'enemy'. Let us kinow how you feel, ok??
Lots of love,
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
|
|
|
|
|
06-02-2009, 05:09 AM
|
#18
|
|
Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
|
Kelli,
I am so glad you got a good report.
Amelia
|
|
|
|
|
06-02-2009, 05:51 AM
|
#19
|
|
Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
|
So happy you got a good report!
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
|
|
|
|
|
06-02-2009, 08:31 AM
|
#20
|
|
Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
|
So very happy to hear your good news. Sending lots of postive and peaceful thoughts your way.
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 04:49 AM.
|
Linear Mode
